Eb took my hands and my hair - but not my spirit - born different
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Date: 2023-09-12
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Comments and reviews: 19
Laniakea
It's in the top ten of worst diseases that a person could have.
I'm sure in 200 years we can completely forget about these types of illneses.
Maybe someday we create nanomachines that could constantly repair DNA throughout a life of a person with this illness
Don't know what to say. It's not fair that someone has to go through that every day. But life at a whole scale is unfair.
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It's in the top ten of worst diseases that a person could have.
I'm sure in 200 years we can completely forget about these types of illneses.
Maybe someday we create nanomachines that could constantly repair DNA throughout a life of a person with this illness
Don't know what to say. It's not fair that someone has to go through that every day. But life at a whole scale is unfair.
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Rat
my late daughter (not real daughter) had EB along with other conditions and there's not a day I don't miss her. seeing this video reminds me of cathys spirt and reminds me that despite life being hard on some more than others there's always some who see the good things in life. ill remember all the sassy comments cathy. much love kourtyney keep the strength up
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my late daughter (not real daughter) had EB along with other conditions and there's not a day I don't miss her. seeing this video reminds me of cathys spirt and reminds me that despite life being hard on some more than others there's always some who see the good things in life. ill remember all the sassy comments cathy. much love kourtyney keep the strength up
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Rangoli
I have this condition. But by the grace of Almighty, I've got the mildest form. Of course it hurts a lot.
You don't know how strong you are when being strong is the only choice you have.
She is legit an inspiration. Go ahead girl! I know you can achieve whatever you want. All my blessings and love with you!
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I have this condition. But by the grace of Almighty, I've got the mildest form. Of course it hurts a lot.
You don't know how strong you are when being strong is the only choice you have.
She is legit an inspiration. Go ahead girl! I know you can achieve whatever you want. All my blessings and love with you!
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Gemtuzumab
Life is so painful for her and her caregivers, so sad. Rare diseases are not that rare. They should be given more importance than other common diseases. Such, patients should be given more care, by creating awareness and more research should be done on such diseases.
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Life is so painful for her and her caregivers, so sad. Rare diseases are not that rare. They should be given more importance than other common diseases. Such, patients should be given more care, by creating awareness and more research should be done on such diseases.
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Leenie
I would just like to say kourtney you are such a brave person I really look up to you. I have exzema and small rashes and when I see your pain I love how calm, you are. You should be proud of who you are and keep on being amazing!
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I would just like to say kourtney you are such a brave person I really look up to you. I have exzema and small rashes and when I see your pain I love how calm, you are. You should be proud of who you are and keep on being amazing!
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TipsyChechen
If someone like her and whoever with these painful conditions can live with such a bright spirit even while in pain, I think all of us can, people need to appreciate life more but sadly this isn't what I see anywhere.
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If someone like her and whoever with these painful conditions can live with such a bright spirit even while in pain, I think all of us can, people need to appreciate life more but sadly this isn't what I see anywhere.
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Barry
I suffer with depression, I struggle to even get out of bed or to do anything, don't even want to speak to people. When I see videos like this it makes me feel so guilty, I wish I could give my body to someone else. :(
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I suffer with depression, I struggle to even get out of bed or to do anything, don't even want to speak to people. When I see videos like this it makes me feel so guilty, I wish I could give my body to someone else. :(
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RECLUTA
I have a chronic illness since I was born I have spent my whole life back and forth in hospitals, Behind these diseases is a world of holiness, purity and humanity that the rest of the world could never reach.
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I have a chronic illness since I was born I have spent my whole life back and forth in hospitals, Behind these diseases is a world of holiness, purity and humanity that the rest of the world could never reach.
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Red
This is the result of decades of atomic bomb testing and radiation accidents like Chernobyl and Fukushima. People with cancer all over the world and children born with genetic mutations.
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This is the result of decades of atomic bomb testing and radiation accidents like Chernobyl and Fukushima. People with cancer all over the world and children born with genetic mutations.
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ellen
It makes me feel sad that she is going through so much, but i believe in her and she can achieve everything she wants to. Stay strong, Kourtney and never give up. -
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It makes me feel sad that she is going through so much, but i believe in her and she can achieve everything she wants to. Stay strong, Kourtney and never give up. -
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Yasminister
You are an inspiration, Courtney. I don-t have your condition. I have something else. And you warm my heart young lady - you have the strength of a lion.
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You are an inspiration, Courtney. I don-t have your condition. I have something else. And you warm my heart young lady - you have the strength of a lion.
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Pearl
She's such a inspiration this is a cruel skin disorder. Brave, and what a beautiful soul. To anyone that complains about silly things shame on you.
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She's such a inspiration this is a cruel skin disorder. Brave, and what a beautiful soul. To anyone that complains about silly things shame on you.
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Lilly
God whenever I am ungrateful, please remind me that there are persons like this lovely young lady who goes through so much and yet still press on
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God whenever I am ungrateful, please remind me that there are persons like this lovely young lady who goes through so much and yet still press on
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Red
We are Humans, we love and help each others to build a beautiful Community. Live Your life as your Wish. Every human have problems in life.
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We are Humans, we love and help each others to build a beautiful Community. Live Your life as your Wish. Every human have problems in life.
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Donna
Thats great that they were able to get all the cancer in the one surgery/amputation. Your strength is amazing. wishing you all the best.
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Thats great that they were able to get all the cancer in the one surgery/amputation. Your strength is amazing. wishing you all the best.
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------Mushroom
Her parents imposed her into hell - as all breeders do. I feel really bad for her that she has to endure so much suffering.
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Her parents imposed her into hell - as all breeders do. I feel really bad for her that she has to endure so much suffering.
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Tweek
I feel so sorry for her, she may have EB like I do, but hers is worse than mine - she lost her hair and arm from the pain of it -
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I feel so sorry for her, she may have EB like I do, but hers is worse than mine - she lost her hair and arm from the pain of it -
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Shauna
You are beautiful and don't let any body bully you because you are not different then other people we are all the same
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You are beautiful and don't let any body bully you because you are not different then other people we are all the same
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Gladys
In 1968 I had an EB baby and when see this people I can-t help but be glad he didn-t live to go through this.
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In 1968 I had an EB baby and when see this people I can-t help but be glad he didn-t live to go through this.
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