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zakruti.com » Blogs and People » Truly
The man whose skin falls off - born different

The man whose skin falls off - born different

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Rating: 4.0; Vote: 1
NICKY Zahorcak, from Los Angeles, wasn-t expected to live past his first birthday when he was diagnosed with Recessive Dystrophic Epidermolysis Bullosa (known as EB) at birth. But now, the 24-year-old has surpassed all expectations while living with the painful skin condition. EB causes skin to blister, and even fall off if there-s too much friction. Nicky admits it has impacted his entire body, and he can no longer walk because of the condition. Despite this, Nicky and his mother Silvia are determined not to let the disease define him. He-s an avid gamer and even has dreams of being a pastry chef. Silvia lives in hope that a cure can be found for the disease, and is fundraising to help pay for Nicky-s growing medical bills. Nicky is hopeful that new research can help understand the condition, and benefit others living with the same skin disorder. He told Truly: -I have faith there will be future developments to prolong my life and for others who are suffering. - You can
Date: 2023-09-12

Comments and reviews: 17


Sir can you or someone please please please help me. I'm struggling a lot for food and medical expenses. I am paralized below neck level c5 c6 c7 spinal cod injury due to a major accident. I can't move or walk any more. I am struggling a lot for food and medical expenses. Please please please please help me. You can cross check all my medical reports and after that if you wish you can help me. Please help me.
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I can-t even imagine how painful this is for him, and I can-t see pain meds giving him much help. The itching would quite literally drive me insane. Next time something itches on you, force yourself to not touch it. Then try to imagine that all over your body at the same time. Nope. This kid is superman!
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I'm not gonna say -I hope they find a cure soon- cause who knows how long that could take. But I will say that I hope he finds a partner in life, a woman who will love him and care for him just as much as his mother does. This guy really deserves it.
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Honestly this is one of the worse illnesses to have. I had two insect bites and was going crazy with itching and irritation omg I cannot imagine this suffering this poor young man has to go through and his mom poor lady
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Such an incredible young man! His courage and strength is so inspiring! Best wishes on Nikkis pastry career! What a mom tho! So much respect for this lady! Best wishes to each of them!
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Do you know about tilapia skin? They use it for burnvictims to repair the skin. Maybe it is also an idea for your skin? I hope your pain will be less and less in the future. Good luck!
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Now I know My condetion is not as bad as this i eont have Pain like him I have Abetis If i eat sugar i have like somthing i wish he was normal but hes good and smart: )
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R. I. P Nick you can rest from all these trials now and eat away in heaven. Mama you are a gem. God's got you covered and you are blessed because you are a blessing
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The mom is a beast: makes sure her kid is covered, eloquently talks about the issues and never treats her kid as if he couldn't achieve great things
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He was a brave young man. I'm donating to EB Research today in honor of him and his wonderful Mother. Nicky passed this morning at 5am. :(
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RIP, Nicky. :-( I hope you are now happy and healthy boy, waiting for your family reunion in the future behind the rainbow bridge.
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Is the itching because of the skin condition or is it just that much more worse due to all the painkillers he gets. mhm
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Rest in peace Nicky - you warmed the hearts of many and we will miss seeing your smile. You faught hard, rest easy now.
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its hard to believe this guy is 2 years older than me. I feel so bad for him living daily with the suffering.
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He-s such a sweet guy! And he is so incredibly strong ohmy! I hope the cure is near and that it-s gonna help him!
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This condition is caused by the Diphtheria/Tetanus vaccine that in the US is given to babies at 2 months old.
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If this guy can wear a mask when his -literal skin is falling off his body- then you can wear one too
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