My eb has taken my hair but not my spirit - born different
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Date: 2023-09-12
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Comments and reviews: 21
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You are beautiful with and without the wig and inside and out and who thinks otherwise doesn't matter. You're strong for posting for your story and trying to connect with everyone and remind people we're beautiful regardless of what we think we might be wrong and we're all beautiful regardless of our circumstance. So thank you for that.
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You are beautiful with and without the wig and inside and out and who thinks otherwise doesn't matter. You're strong for posting for your story and trying to connect with everyone and remind people we're beautiful regardless of what we think we might be wrong and we're all beautiful regardless of our circumstance. So thank you for that.
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CHRIS. D. MUGIWARA
U gotta be strong willed and hearted and have lots of patience just to dedicate 5-6-7 hours to just putting on the dressings / etc. She has what most of us with - regular - life-s could only wish or dream of b/c we never been there and take for granted what we do have
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U gotta be strong willed and hearted and have lots of patience just to dedicate 5-6-7 hours to just putting on the dressings / etc. She has what most of us with - regular - life-s could only wish or dream of b/c we never been there and take for granted what we do have
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Mel
Sometimes I wonder. I can relate to being different because I have a huge scar but I dont think a lot of people truly understand. I think they watch because they pity you and it makes them feel better about their miserable lives.
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Sometimes I wonder. I can relate to being different because I have a huge scar but I dont think a lot of people truly understand. I think they watch because they pity you and it makes them feel better about their miserable lives.
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Catapillargirl
I wish her pain could be improved & her to have a streamlined way to dress her wounds that gave her more time back into her day. But mostly she-s raising awareness which could help toward a cure. Amazing!
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I wish her pain could be improved & her to have a streamlined way to dress her wounds that gave her more time back into her day. But mostly she-s raising awareness which could help toward a cure. Amazing!
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blogs
No way! I have the exact same duvet set! :0 Assya, you are beautiful, hair or no hair, inside and out. Beauty is not with a girls hair, but with her spirit. Keep striving to be you, Assya, you-re doing amazing! -
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No way! I have the exact same duvet set! :0 Assya, you are beautiful, hair or no hair, inside and out. Beauty is not with a girls hair, but with her spirit. Keep striving to be you, Assya, you-re doing amazing! -
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Annie
You look beautiful! I really like how your skin looks regularly. It-s so beautiful and unique. I-d love to see a makeup look on you that doesn-t cover that up! Any look you do always looks great!
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You look beautiful! I really like how your skin looks regularly. It-s so beautiful and unique. I-d love to see a makeup look on you that doesn-t cover that up! Any look you do always looks great!
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Boot
So weird that she's got a ton of followers on TikTok and the beautiful girls have a ton of followers on TikTok and most of the average women in between have next to none. TikTok is such a circus.
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So weird that she's got a ton of followers on TikTok and the beautiful girls have a ton of followers on TikTok and most of the average women in between have next to none. TikTok is such a circus.
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Original
This is really vile I wish they wouldn't show this anymore.
Oh this? Oh no, Assya is so lovely. I'm talking about the FREAKING SUGAR BABY videos, truly feels the need to blast us with.
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This is really vile I wish they wouldn't show this anymore.
Oh this? Oh no, Assya is so lovely. I'm talking about the FREAKING SUGAR BABY videos, truly feels the need to blast us with.
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CuhhZayyUhh
This was the first condition I learned about via documentaries, it seems so difficult to live with but everyone I-ve seen who deals with this is so strong and resilient.
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This was the first condition I learned about via documentaries, it seems so difficult to live with but everyone I-ve seen who deals with this is so strong and resilient.
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Tyrone
My little brother had a similar problem to you, he has fully recovered, I can help you, please provide me with your email - I will provide more info
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My little brother had a similar problem to you, he has fully recovered, I can help you, please provide me with your email - I will provide more info
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Mel
We should all be grateful with what we have especially the life we have. Assya has shown us the way. The indomitable spirit she has is rare these days!
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We should all be grateful with what we have especially the life we have. Assya has shown us the way. The indomitable spirit she has is rare these days!
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Linda
I-m praying for you. I wish I could take away your pain for a day. You are a inspiration for me. Wish I could hang out with you and become a friend.
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I-m praying for you. I wish I could take away your pain for a day. You are a inspiration for me. Wish I could hang out with you and become a friend.
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tsui
You are my warrior-.
You are beautiful inside and out-----God made you special. gave you extra strength. you are very inspiring------------
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You are my warrior-.
You are beautiful inside and out-----God made you special. gave you extra strength. you are very inspiring------------
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SF6
Sister I suggest to you a water of zamzam ask people from Arabia Saudi to bring you and I really sorry I wish to recovered completely
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Sister I suggest to you a water of zamzam ask people from Arabia Saudi to bring you and I really sorry I wish to recovered completely
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Vivian
You're a remarkable woman, so brave and strong. Sending prayers you can enjoy your life and a cure can be found in your lifetime.
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You're a remarkable woman, so brave and strong. Sending prayers you can enjoy your life and a cure can be found in your lifetime.
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Benjamin
I love Assya so much. I'm proud to know her, and proud of what she does for Birmingham and awareness of Epidermolysis Bullosa.
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I love Assya so much. I'm proud to know her, and proud of what she does for Birmingham and awareness of Epidermolysis Bullosa.
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Perich
What a beautiful person she is. I love her confidence & style. You can tell by listening to her that she is very intelligent.
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What a beautiful person she is. I love her confidence & style. You can tell by listening to her that she is very intelligent.
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Elizabeth
Bless your heart, dear friend
The pain must be very painful
It-s so unfair
Hugs from Amman Jordan Middle East
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Bless your heart, dear friend
The pain must be very painful
It-s so unfair
Hugs from Amman Jordan Middle East
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Diana
People complain about the smallest things, and this woman didn't complain once here, She doesn't feel sorry for herself,
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People complain about the smallest things, and this woman didn't complain once here, She doesn't feel sorry for herself,
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evelyn
I like how you are so inspirational to other women passing through a similar situation, keep up the good work! - -
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I like how you are so inspirational to other women passing through a similar situation, keep up the good work! - -
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Susan
Only God understands the pain and discomfort. My prayers are with the warriors living and overcoming EB daily
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Only God understands the pain and discomfort. My prayers are with the warriors living and overcoming EB daily
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