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zakruti.com » Blogs and People » Truly
The 6-year-old who's ageing too fast - born different

The 6-year-old who's ageing too fast - born different

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Rating: 4.0; Vote: 1
A LITTLE boy from Germany is living with an extremely rare genetic condition which sees him age eight times faster than the average person. Luke Bohm, six, was born with Progeria, which occurs in around one out of eight million people, and there are only around 120 cases known worldwide. His dad, Ronny, has dedicated his life to helping Luke experience as much as possible with the life-limiting condition. He told Truly: -I quit my job immediately, I have no time to work. Eight hours work that's eight hours less for Luke and for me in life. Part of living life with Progeria means Luke isn-t able to grow as a regular child would, but physiotherapists say his body is around that of a 60-year-old. For Ronny, he-ll stop at nothing to help prolong Luke-s life. As well as sharing Luke-s story on social media to almost half-a-million
Date: 2023-09-12

Comments and reviews: 13


My daughter had a rare genetic syndrome and it really is horrible to have to go to doctors that don't even understand their diagnosis or syndrome. I am in the U. S. and i have to explain to the doctors what her syndrome is everytime she goes to a new doctor. they need more research on as many rare genetic syndromes that they can get to help parents and doctors alike to understand more about them.
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Such a cute little boy. I had A FIRE accident when I was 5. In which my right side of face and part of my head was affected. Even after the surgery I have visibel scares. it is very hard to live in this world when you don't look like other people. It is very hard for me to have a relationship I wish i find someone to love me for who I am not what do I look like.
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My heart is just broken for thos little boy. sometimes i think children like this are angels put on this earth to enrich our lives and teach us to be humble. theyre so pure and innocent. ive worked in the hospital for years and still have the most difficult time working with sick children and babies. Especially being a mom myself.
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Wow. I cant guarantee that my children will make it past childhood. God forbid they get into an accident or something. Makes me wonder, if I KNEW I had limited time with a certain child of mine, would I also quit my job? Should I quit my job now because I just dont know?
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Anyone who would teach their kids to fear children who are different, are the reason prejudice, hatred and bullying exist. This family is so strong, and knows the true meaning of life. Every day is a gift, and how we chose to use it is the most important thing.
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He is an Angel. His eyes are so blue as sparkling sapphire. His dad said, -Time is very limited, let make the best of it. - Sometimes, people will appreciate more when they realize TIME is the only thing can-t buy more.
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He Spends everyday with his son and shows him that his loves him as one day he won't get that chance. Giving up his job to spend the days he has with his son will be priceless.
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Wow what wonderful parents. They really get it. They understand the power of family and the most limited resource we have is time. Such love there, you can really see it
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He looks pretty cute, plus, he looks pretty smart and intelligent like us, why should people dislike this video?
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How awesome he is to have you for parents! There is a blessing in everything. Look at the love you have found in him.
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He's a special, an amazing and a cute boy. I wish him and his family all the best! Sending my love and best wishes!
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They are really proud parents.
Encouragingly all such parents over there.
I feels great to watch them.

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It-s always so sad to see people sick but especially kids. They are so young and deserve to live a normal life!
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