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My sleep seizures make me forget my own girlfriend - born different

My sleep seizures make me forget my own girlfriend - born different

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Rating: 4.0; Vote: 1
A YOUNG woman has opened up about a little-known condition that sees her suffer with memory-wiping seizures - triggered by everything from extreme emotion to food. Meg, 21, has functional neurological disorder (FND) - where the basic wiring of the nervous system is intact, but the brain is unable to send or receive signals properly. As a result, she experiences debilitating symptoms like seizures, limb weakness, temporary paralysis, tics and narcoleptic-style episodes where she will uncontrollably fall asleep. So little is known about the condition that experts are still unsure what causes it, or exactly how to treat it. Since then, she has been trying to adapt to life, which is difficult, as every day is so unpredictable. Most days, she will have seizures, and also experiences regular sleep attacks. Both can be triggered by heightened emotions. In the past, she's had a seizure celebrating winning a sweepstake bet, and a sleep attack laughing at an episode of a sitcom. One of the worst parts of Meg's condition is that the episodes can wipe her memory, so she'll forget key people in her life - including devoted girlfriend Tara, 23, who keeps a diary and shows her photos or takes her to meaningful places to help her remember. Meg, who documents life with FND on TikTok to raise awareness, concluded: I want to help give people with hidden disabilities a voice
Date: 2023-09-12

Comments and reviews: 30


So practically I do soccer and I really like this dude Jackson, you know I didn't think he was really that physically attractive and I still don't but his personality and his manners really pop out I mean when I first joined the team I really thought Kayden was cute, but we had a game yesterday and it was really freezing outside and I had forgot to my jacket with my mom, anyways he let me borrow his jacket and then I went to go get mine and when I got back he said that I could still borrow his jacket if I wanted to which doesn't make sense because I'm already wearing a jacket but whatever. And he is such a gentleman so these two girls were cuddling up on the bench to get warm and he was grabbing his water bottle out of his bag and he said -excuse me ladies-, I've never met a preteen boy with such manners. Me and him have been playing defense together since I joined the team he's been playing soccer since he was a toddler and I've barely joined and so he is really good at it and he's been helping me through a lot since everyone on the team has played soccer before but me and I've really enjoyed it especially with his help and not just because I am attracted to him I really enjoy the sport. But what should I do about the whole crush thing?
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It's so frustrating living with an invisible illness. I have several. I use a cane or a walker (for really bad days. FYI, I'm 40 and look about my age or maybe a bit younger, idk, but anyway, people look at me funny when I use the handicapped parking or tell them I'm on disability benefits. I'm like, just cause I look ok, even if I don't have my cane and I'm just sitting, I can feel absolutely awful and there are days I can't get up. People need to be much more open-minded and stop judging. I'm sick of hearing about -leaching off the system. - How about instead, be grateful that you're able to work and have a life where you don't worry about how much pain you're gonna be in and how exhausted you're gonna be just from trying to shower and run a couple errands. The system is there for people who can't work. We didn't ASK to be sick.
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I know what it's like to have a hidden disability. I'm on the Autism Spectrum. So no one actually knows about it straight away. They'll see I act a bit strangely and do things and say things in unusual ways. I know all about the judgment from others. I've had name calling and funny looks and being misunderstood.
But on the flip side it makes me more empathetic towards others. Especially those who are -different-.
I wouldn't change who I am though cuz I'd be a different person. My best friends are the ones who love and accept me for who I am.

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I think it is absolutely disgusting that people would be so cold and to write that she's faking and wants attention. Who are you to say that! Do you live with this person? Do you know what she goes thru on a day to day? What is her pay out for doing this then? Because for all that -attention- she gets, it's followed by a lot of hate and that alone would make anyone want to stay in their home and never leave. You have no idea what that does to someone's self worth and their soul. People come on. You have no right judging her. Ever!
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I have no idea if you girls read the comments, but you could get a service dogg who is trained to warn you when a seizures is comming. That way you can go lie down on a save place and take care of your self before it starts. Also the dog will stay with you and it can learn what to do after the seizure. I saw a video about some one else where she trained the dog to go lay on her belly (or was it the leggs, what helps the girl. Pressure seems to even help prevent getting a seizure sometimes. Hope this will help!
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Ive had three seizures in the past year. My cognition regressed so much that i couldnt tell very much aside from a small moment as if i woke up in the middle of a dream and felt it with comfort all around. And my mom and stepdad around me as if to watch but not for the right reasons. I dont like it. Before that my friend collin had a seizure in my bed. Didnt remember anything about it and luckily survived by way of my neighbor who was an older male to bring him back.
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I don't know if this would help you but my cousin was basically born having seizures as well. Her mother put her on a gluten-free diet and detoxed her system with a lot of cilantro smoothies and as long as she stays on something like a Paleo diet and doesn't eat gluten or I think dairy she doesn't have seizures anymore. Anytime she goes back to the standard American diet she starts to have seizures again. I hope this helps you or someone else.
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There must be some kind of treatment for this. Its so similar to epileptic seizures- maybe a chip installed innher brain, stuff like that- there even was a case where a little girl had seizures like, every 5 mins, and the treatment she received was removing half of her brain and fill the space with some sorto of special gelatine. The memory loss is really something unexpected, but she kind of falls in love every time again.
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Loved this: ) Everyone thinks I am all good but I have chronic health stuff side effects from treatment to cure my TTP from birth control I was on so now joint stuff headaches teeth eweakening etc. I get just you look fine does me you are not pushing through pain all the time. this helped cuz dealing with chronic TMJ at the moment
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The part of the video about people commenting about whether she's drunk nearly made me cry. But then the diary her girlfriend made for her DID make me cry for a much better reason. I wish more people were kind and supportive. But I'm so happy for both of them to have found each other. What a lovely couple.
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I was just diagnosed and I came to this video to see what's its really like and see that I can get better. So far I have trembling and weakness and I have trouble walking. I might've had absence seizures but luckily I'm getting care. This is such a nice video to see that I can have a normal life.
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i love when people share things like this. i had never even heard of this diagnosis. i'm sure there are a lot of people like her suffering in silence. it's super important to bring awareness to the fact that a lot of disabilities are -hidden-.
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As a 17 year old person. This is just epilepsy with weakness. I literally asked my Dr. And it's just epilepsy with limb weakness. I have it. It's really not that bad. Not to be rude but this is misinformation
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I have nocturnal epilepsy. We gotta support each other as people who have seizures! It's very scary. I wake up dizzy sometimes and I'll even bite my lip and get sores on the inside of my mouth.
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I totally feel for this person. My seizures also have multiple I'll side effects. I have forgotten people and other stuff multiple times. Keep on epilepsy trooper. My heart goes out to you
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Have you thought about looking into a dog to help you? My friend has horrible seizures and just got a support German Sheppard. Just a idea for you. Love how your girlfriend supports you.
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My ex used to have seizures. I would always know she was about to have one because she would go pale, she would stare off into space, or she would complain about feeling weird.
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the aching brain pain behind the ears after my seizures is the only way i can tell i had one in my sleep. my partner luckily helps and let me know as well. it IS scary!
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I have neurological conversation disorder mines caused by ptsd and stress they say, it-s been 4 years it was scary I was at school I-m grade 9 when I had my first one
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She appears to have primary Narcolepsy Neurological Disorder, which is more close to all of her symptoms and secondary Functional Neurological Disorder.
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I don-t think she-s faking it, I just don-t understand why her seizures look like she-s sleeping! Seizures are supposed to make your whole body convulse
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I hope this woman gets a seizure dog because they can smell when you are about to have a seizure and pull you to the ground so you don-t pass out and fall.
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Wow this is scary but I go through similar things and I-ve had all these mris but now the neurologist is getting an EEG because she thinks it-s seizures
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I've been watching a few of these videos and thought why isn't there one on epilepsy/seizures, as I have epilepsy myself, I'm so glad I found this!
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Her girlfriend is so sweet being patient and reminding her of their love together. They have such a beautiful and unconditional partnership.
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I wonder if she's ever tried CBD oil. I've watched videos of people mid seizure given oil and it calms them down in seconds.
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I found Doctor isibor treatment that actually happened to cure me totally from epilepsy and balance my hormones, no more seizures
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I'm so disgusted by those people that even dare to say she's faking it! What do they know about it anyway! Pisses me off!
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I have seizures as well and it's so hard to cope with, mine don't happen as often as hers but she's so amazing! --
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Love that this disorder that me along with so many people suffer with! I hope people see now hard FND can be!
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