VehiclesFashionRecipesBlogsHuntTravelsSportFunHandmadeITEducation
Mini-Games
x

x
zakruti.com » Blogs and People » Truly
Docs said i wouldn't reach 5 - now i'm 30 - born different

Docs said i wouldn't reach 5 - now i'm 30 - born different

FBTwitterReddit

video description

Rating: 4.0; Vote: 1
DOCTORS thought Jeremiah would not live to the age of five, but now at 30 years old, he has continuously defied their prognosis. Jeremiah, from San Diego, was born with an extremely rare skin condition called Recessive Dystrophic Epidermolysis Bullosa - also referred to as EB or -butterfly skin-. The condition means his skin is extremely fragile and friction or pressure can cause it to blister or tear. He lost the ability to walk and the full function of his hands due to the condition. In 2018 Jeremiah was diagnosed with skin cancer but this brought on an -epiphany- that he needed to start living life. He started sharing his story online and has now started a video and audio production course. Jeremiah told Truly: -It does feel good to be able to reach the milestones and the limitations the doctors put on me. It makes me feel unstoppable
Date: 2023-09-12

Comments and reviews: 23


He just seems like a really cool genuine guy.
I think it's understated and underestimated how chronic conditions can really cement your life until you are able (IF you are able) to get a bit of a handle on them. Really resonated when he said he's just starting to learn -how to adult-, and I wish him the best of luck with reaching those milestones and personal goals.
Can't help but feel that people like Jeremy deserve all the good karma.

reply

This sounds so corny but I teared up with inspiration watching this. I feel like, as a society, we take so much for granted and wallow in our pains, and just give up. It takes someone with this kind of strength to wake you up and remind you that you get one chance so don't let life pass you by. This is truly inspirational and I'm sure I'm not the only one that this touched. Thank you so much! I wish him all the happiness he spreads to the masses.
reply

Don't listen to doctors they are often wrong, the body is an amazing thing it compensates and cures itself, the doctors told my parents I wasn't going to make it to 3 years old and I prooved them wrong. they said I would never have kids, wrong again lol I have a few elves and they are all over 18. So doctors are not experts the body can rejuvenates it's self. Your a tough brave attractive man. Keep up the good work Jeremiah.
reply

Such a great fighter. In a world where people with all the abilities, physically fit are ranching on others and wasting there time complaining how the world is somehow not enabling them to do what they wanna do, my man out here showing up everyday with a great smile and courage. People like Jeremiah are the real fighters out there who teaches us that no matter what, you can live happily and better you life.
reply

It's amazing everything he has accomplished and his future goals! He's not letting his skin condition keep him from a fulfilling life. And side note he has the best most supportive mother. You can tell they both have a great relationship.
reply

Good looking both inside and out, lovely to meet you! Please share the discord you hang out in. I'm sure we'd all love to hang with you. (noticed it on your pc screen to the left) You're truly inspriatonal!
reply

Jeremiah, you will live an amazing and healthy life you have a pure heart, you will have the physical capacity to push through no matter how trying the circumstances and I'm sending you my prayers.
reply

I starting tearing up throughout this whole video. it hurts me to see someone suffering this much. it-s awesome he-s found a community online and learned to proudly embrace his difference from others!
reply

Jeremiah, you made my day. You are a leader and so inspirational. I was a school nurse taking care of several kids with he same. I know how difficult even just sitting can be! Stay strong!
reply

Man, I can't imagine what this guy has had to go through in his life. Yet he still has a positive attitude and lives his life to the fullest. I wish you nothing but the best buddy -
reply

Hi Jeremiah, this is Sean-s mom and I just want to say that I think you are A warrior and I cannot wait to meet you and your mom when I come to visit Sean! Stay strong and I love you!
reply

Much respect for his optimism in spite of a lifelong and super painful condition. I can't say of myself that I'm nearly as positive going through my own troubles.
reply

The amount of pain! This man is a real life superhero. Much respect for his good spirit, sense of purpose and amazing style. And that's an awesome mom too!
reply

question for him, is that a heart hat from the heart hatter? I'd not you should totally contact him and get one, you would look fabulous -
reply

sorry, but i actually cried, i feel so small compared to him, this makes you think about life more than once, big hugs from Levi in Sweden
reply

LOVE the spirit, love love love love the hat! --- Oh I didn't even get that he was wearing that bc of EB until I typed the emoji - cute!
reply

Sending warm hugs to you. You are absolutely amazing! Keep living buddy. Keep inspiring and being you and never lose that sparkle in you!
reply

Blooddove you are a pleasure to have around! Keep on following your dreams no matter what people tell you. Much love from the Mr Clan
reply

He is beautiful inside and out! And he has the kindest eyes! Much love to him and his Mom. May all your dreams come true!
reply

His Mom is the epitome of Unconditional Love. He is amazing and gorgeous, and his Mom is the person we should all strive to be!
reply

I hope they find a cure for this. I learned about it from Pearl Jam because they do fundraising and awareness for EB.
reply

Poor thing. Hes a good looking dude. Hes smart. Hes ambitious. wish his the best life he could possibly have.
reply

Thank you for educating those of us not familiar with this issue. God's blessings to you and your loved ones.
reply
Add a review, comment






Other channel videos