I teach doctors about my rare condition - born different
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Date: 2023-09-12
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Comments and reviews: 27
Cindy
I have a rare condition as well and often have to educate my medical team about it. Being the patient and the professional teaching others about your disease is exhausting. That combined with the chronic pain of my condition sometimes feels overwhelming. I have also shared the experience of a doctor googling my condition while I-m sitting in the room for treatment. Very discouraging. Your attitude is amazing. I glad you found makeup as a form of therapy. Keep up the courageous attitude
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I have a rare condition as well and often have to educate my medical team about it. Being the patient and the professional teaching others about your disease is exhausting. That combined with the chronic pain of my condition sometimes feels overwhelming. I have also shared the experience of a doctor googling my condition while I-m sitting in the room for treatment. Very discouraging. Your attitude is amazing. I glad you found makeup as a form of therapy. Keep up the courageous attitude
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Laura
It's so rare that I haven't heard of a condition, but this one is new to me. I'm sorry that you've had to teach doctors about your condition, I have as well, and I cannot imagine how hard it must be to have to wake up in the night to take medication. You seem like a really lovely person, and if you ever feel the desire to have a friend from the US, let me know!
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It's so rare that I haven't heard of a condition, but this one is new to me. I'm sorry that you've had to teach doctors about your condition, I have as well, and I cannot imagine how hard it must be to have to wake up in the night to take medication. You seem like a really lovely person, and if you ever feel the desire to have a friend from the US, let me know!
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TMM
I have a litany of autoimmune diseases and a genetic mutation. It's radically altered my life but I am still the same person. That said, the last thing I want to do when I am laid up in bed or feel dreadful is to do my makeup. I've noticed that I seem to be in the minority in this regard. Maybe I can't get into the look good, feel good mentality.
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I have a litany of autoimmune diseases and a genetic mutation. It's radically altered my life but I am still the same person. That said, the last thing I want to do when I am laid up in bed or feel dreadful is to do my makeup. I've noticed that I seem to be in the minority in this regard. Maybe I can't get into the look good, feel good mentality.
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Melz
the drag queen, Willow Pill has cystinosis as well. both Millie and Willow use the power of makeup to handle their condition they have. I too have multiple rare medical condition but use both art, makeup, and drag to show people that disabled people are valuable and do matter in the world. can't wait to get Millie's makeup line.
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the drag queen, Willow Pill has cystinosis as well. both Millie and Willow use the power of makeup to handle their condition they have. I too have multiple rare medical condition but use both art, makeup, and drag to show people that disabled people are valuable and do matter in the world. can't wait to get Millie's makeup line.
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hellaSwankky
haaaa ditto! i used to tell the story of the ER doctor leaving the room to go get a book to lookup my disease - the most common genetic illness in the u. s. but it wasn-t being taught in med school beyond a paragraph in a single text book.
so, i totally blv her about this.
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haaaa ditto! i used to tell the story of the ER doctor leaving the room to go get a book to lookup my disease - the most common genetic illness in the u. s. but it wasn-t being taught in med school beyond a paragraph in a single text book.
so, i totally blv her about this.
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0000moz
She is amazing. I love that it has been adapted for vision impaired people to be able to scan a QR code and a video of a tutorial on how to use it opens up. That-s incredible in itself. This girl is obviously talented and intelligent. Good on her for being so positive.
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She is amazing. I love that it has been adapted for vision impaired people to be able to scan a QR code and a video of a tutorial on how to use it opens up. That-s incredible in itself. This girl is obviously talented and intelligent. Good on her for being so positive.
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DeeDee
I also have a condition that-s rare, it only affects 700 people in the world. I used to hate telling people what it is but as I-ve got older I find it quite funny when even doctors don-t have a clue or they ask me to repeat the name because it sounds like I-m joking -
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I also have a condition that-s rare, it only affects 700 people in the world. I used to hate telling people what it is but as I-ve got older I find it quite funny when even doctors don-t have a clue or they ask me to repeat the name because it sounds like I-m joking -
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lyra
I understand what she is dealing with, my mom has infindibular cystinosi of the kidneys. It is rare in females, I have been there for her throughout all 15 surges she had. The last one she had was removing her left kidney. They both are super heros in my book
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I understand what she is dealing with, my mom has infindibular cystinosi of the kidneys. It is rare in females, I have been there for her throughout all 15 surges she had. The last one she had was removing her left kidney. They both are super heros in my book
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HereIsHelena
The Mascara that is designed to be applied vertically could very well be a game changer in terms of accessibility! It really caught my eye.
I do hope that, and the brand is able to gain some traction!
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The Mascara that is designed to be applied vertically could very well be a game changer in terms of accessibility! It really caught my eye.
I do hope that, and the brand is able to gain some traction!
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truly
I cant see myself taking to steak if it was the first thing I ever tasted in my adult life loll. Her makeup line is so polished looking and well thought out for someone so young and she's such a bright light!
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I cant see myself taking to steak if it was the first thing I ever tasted in my adult life loll. Her makeup line is so polished looking and well thought out for someone so young and she's such a bright light!
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Caitlin
She is such an amazing woman. She is beautiful on the outside and inside. I really like her positive attitude. I'm proud of her. Congrats to her and her own makeup products. I wish I could see her makeup.
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She is such an amazing woman. She is beautiful on the outside and inside. I really like her positive attitude. I'm proud of her. Congrats to her and her own makeup products. I wish I could see her makeup.
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Maureen
What's sad is because this is a rare condition the research is very little, but you have a magnificent attitude about your condition. Keep educating the Doctors to make them have more research
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What's sad is because this is a rare condition the research is very little, but you have a magnificent attitude about your condition. Keep educating the Doctors to make them have more research
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Kate
-The Power of Makeup- by Bobbi Brown is a great book. I used to be one of her artists. This poor girl is so young and beautiful. I-m sorry she has to go thru all of this.
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-The Power of Makeup- by Bobbi Brown is a great book. I used to be one of her artists. This poor girl is so young and beautiful. I-m sorry she has to go thru all of this.
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Sheena
Two kidney transplants at such a young age, im sorry to hear. You are one tough cookie. Keep believing in yourself, you are doing well and you're so pretty-.
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Two kidney transplants at such a young age, im sorry to hear. You are one tough cookie. Keep believing in yourself, you are doing well and you're so pretty-.
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Rose
Beautiful I will definitely be interested in practising some eyeshadow palettes from her and the mascara. -- Do you have a website for her so we can purchase?
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Beautiful I will definitely be interested in practising some eyeshadow palettes from her and the mascara. -- Do you have a website for her so we can purchase?
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xirisx1988
Congrats with your make-up brand -.
I also have a metabolic disorder. Mine affects my muscles. I have enzyme replacement therapy every other week.
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Congrats with your make-up brand -.
I also have a metabolic disorder. Mine affects my muscles. I have enzyme replacement therapy every other week.
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MAKY-BY-KELLY
I my self have 2 very rare symdroms and most doctors have never herd of it and I also have used makeup as terapy I adentyfy to her a lot love her
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I my self have 2 very rare symdroms and most doctors have never herd of it and I also have used makeup as terapy I adentyfy to her a lot love her
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Antwon
To Mille keep going forward you are a beautiful woman with determination and beautiful smile your parents are so proud of you and and Friends
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To Mille keep going forward you are a beautiful woman with determination and beautiful smile your parents are so proud of you and and Friends
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Jack
I thought I had it rough with 8 pills a day. She is so very pleasant, given what shes going through. A beautiful young lady, inside and out.
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I thought I had it rough with 8 pills a day. She is so very pleasant, given what shes going through. A beautiful young lady, inside and out.
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Kiether
I love your effort that you put to your personality and it makes me happy when someone embraces their self by no longer hiding themselves.
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I love your effort that you put to your personality and it makes me happy when someone embraces their self by no longer hiding themselves.
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Lauren
Hi, I also have cystinosis I live in Leicester in the uk. I watched your video and your such an inspiration keep going x
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Hi, I also have cystinosis I live in Leicester in the uk. I watched your video and your such an inspiration keep going x
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Southern
You should be a model. I have ms and fibro and arthritis and more. The mascara would help some many people like me.
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You should be a model. I have ms and fibro and arthritis and more. The mascara would help some many people like me.
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shoshanna
Milly has a wonderful approach and is gifted as a make up artist. wishing her the greatest success in her business
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Milly has a wonderful approach and is gifted as a make up artist. wishing her the greatest success in her business
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Tainted_Julz_Radio
I-m vision impaired/blind and super appreciate what you did with that QR code. You are amazing Millie
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I-m vision impaired/blind and super appreciate what you did with that QR code. You are amazing Millie
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blogs
I love her style so much - feels like you can kind of sense her great vibes just by seeing her for the first time
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I love her style so much - feels like you can kind of sense her great vibes just by seeing her for the first time
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skyflower213
This title caught my attention. I have Dysautonomia/ pots. A lot of older doctors have never heard of it.
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This title caught my attention. I have Dysautonomia/ pots. A lot of older doctors have never heard of it.
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There
In the United States, when you know more than a doctor does about your condition, they call it Munchhausen-s. -
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In the United States, when you know more than a doctor does about your condition, they call it Munchhausen-s. -
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