Why i won't hide my lupus anymore - shake my beauty
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Date: 2023-09-12
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Comments and reviews: 30
Hazelkitty
I get horrible rashes too. When I didn-t know what it was with first rashes I had I thought I brought fleas home from the indoor pool, lol! Summers are the worst. I do have allergies and follow a Paleo AIP diet which helps when I don-t cheat too much, hard to stay away from dairy I love it so much.
I am self conscious about my lack of eyebrows and all the hair I have lost, the weight I have gained which people do not understand it is the medication, Insulin Resistance because Lupus attacks the Liver and really kicks my Thyroid around plus the Prednisone doesn-t help.
You are a beautiful girl. I was having a crap day because as you know any little thing can set the Stress-O-Meter off in our bodies to the point we become frazzled and can-t think straight, the heart palpitations, etc. You made me feel so much better. Thank you. We are not alone (Lupies. I get the same stress about the same things. Love and -.
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I get horrible rashes too. When I didn-t know what it was with first rashes I had I thought I brought fleas home from the indoor pool, lol! Summers are the worst. I do have allergies and follow a Paleo AIP diet which helps when I don-t cheat too much, hard to stay away from dairy I love it so much.
I am self conscious about my lack of eyebrows and all the hair I have lost, the weight I have gained which people do not understand it is the medication, Insulin Resistance because Lupus attacks the Liver and really kicks my Thyroid around plus the Prednisone doesn-t help.
You are a beautiful girl. I was having a crap day because as you know any little thing can set the Stress-O-Meter off in our bodies to the point we become frazzled and can-t think straight, the heart palpitations, etc. You made me feel so much better. Thank you. We are not alone (Lupies. I get the same stress about the same things. Love and -.
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Stylomagic
Hello I have ulcerative colitis, its a autoimmune disease where the body attacks your colon. I think its very important what you do! Awareness so that peole understand what autoimmune diseases are! Because people don't even know that this stuff exists. The most painful thing that someone told me after I said the disease is untreatable, is how long do my doctor think I will live from now on. untreatable doesn't mean I am terminally ill! People need to learn, that we live with this and we are also happy! I answer now to such people: -60 years maybe from now on, I know. I live too healthy because of my disease! - Which is true: less stress, cooking for myself, no alcohol, no smoking, lot of sports. Thank you so much for showing the world that its possible to be happy when you are chronical ill!
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Hello I have ulcerative colitis, its a autoimmune disease where the body attacks your colon. I think its very important what you do! Awareness so that peole understand what autoimmune diseases are! Because people don't even know that this stuff exists. The most painful thing that someone told me after I said the disease is untreatable, is how long do my doctor think I will live from now on. untreatable doesn't mean I am terminally ill! People need to learn, that we live with this and we are also happy! I answer now to such people: -60 years maybe from now on, I know. I live too healthy because of my disease! - Which is true: less stress, cooking for myself, no alcohol, no smoking, lot of sports. Thank you so much for showing the world that its possible to be happy when you are chronical ill!
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MadeinUk
Darling it looks like you've had a post prednisone attack. This happened to me after seeing my dermatologist about my skin condition. I ended up being allergic to a disastrous chemical, my dad spent thousands of dollars trying to find out what was wrong. I was taking prednisone for over 6 months and made my skin worse when I stopped it. Even the steriod cream made my skin sore, thin and very angry. This chemical attacks the immune system. Please stop taking those tablets as soon as you can. Please check your make-up, skin wash, shampoo, body care for this ingredient. If you want to know what it is, please leave a comment. I know it first hand and no one wants to listen how bad it is
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Darling it looks like you've had a post prednisone attack. This happened to me after seeing my dermatologist about my skin condition. I ended up being allergic to a disastrous chemical, my dad spent thousands of dollars trying to find out what was wrong. I was taking prednisone for over 6 months and made my skin worse when I stopped it. Even the steriod cream made my skin sore, thin and very angry. This chemical attacks the immune system. Please stop taking those tablets as soon as you can. Please check your make-up, skin wash, shampoo, body care for this ingredient. If you want to know what it is, please leave a comment. I know it first hand and no one wants to listen how bad it is
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Mary
Hey Bev my name is Mary I have a daughter that has lupus neuropathy she was on dialysis for 8 years we became aware of Lupus after she got pregnant and had the baby she has so many surgeries draining blood from around the heart draining fluid off her lungs started having seizures just a bunch of stuff finally got a kidney last month on the 28th but she still bummed out I really wish you guys can be friends I love the way you put that makeup on it is so beautiful people can be so cruel don't pay their comments no attention they jealous so have a good day continue to be happy joyous take care of yourself and live life to the fullest OG Mary
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Hey Bev my name is Mary I have a daughter that has lupus neuropathy she was on dialysis for 8 years we became aware of Lupus after she got pregnant and had the baby she has so many surgeries draining blood from around the heart draining fluid off her lungs started having seizures just a bunch of stuff finally got a kidney last month on the 28th but she still bummed out I really wish you guys can be friends I love the way you put that makeup on it is so beautiful people can be so cruel don't pay their comments no attention they jealous so have a good day continue to be happy joyous take care of yourself and live life to the fullest OG Mary
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Cindy
I have lupus and as 64cm with blonde hair blue eyes (making me sensitive to sunlight even without lupus and 1000x more so with lupus) I totally feel this! The lupus -night butterfly/wolf- lupus mask l, especially in the summer totally screws my normally beautiful, pale skin. On top of that I am a former state wide beauty competition finalist but now have total hair and tooth loss because of lupus and it's comorbidities of alopecia and Raynaud's syndrome so 98% of time I, personally, HATE pics of myself, so this gives me hope that one day I might be comfortable with the way I look. THANK YOU!
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I have lupus and as 64cm with blonde hair blue eyes (making me sensitive to sunlight even without lupus and 1000x more so with lupus) I totally feel this! The lupus -night butterfly/wolf- lupus mask l, especially in the summer totally screws my normally beautiful, pale skin. On top of that I am a former state wide beauty competition finalist but now have total hair and tooth loss because of lupus and it's comorbidities of alopecia and Raynaud's syndrome so 98% of time I, personally, HATE pics of myself, so this gives me hope that one day I might be comfortable with the way I look. THANK YOU!
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Jackie
wow! you re so brave and I m glad you are finding different ways to cope. keep it up!
ps I think you are great with makeup. be sure to keep all your pads and brushes washed. I soak briefly in a 5 oz plastic cup. mild cleanser and water. keep changing water till all makeup is washed out. dry with white paper towels. Remember, although you want to cover the face rash in public just get it off asap.
Accutane or other lazer treatments
may still help your skin. seek more medical opinions. you may have both issues going on.
good luck!
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wow! you re so brave and I m glad you are finding different ways to cope. keep it up!
ps I think you are great with makeup. be sure to keep all your pads and brushes washed. I soak briefly in a 5 oz plastic cup. mild cleanser and water. keep changing water till all makeup is washed out. dry with white paper towels. Remember, although you want to cover the face rash in public just get it off asap.
Accutane or other lazer treatments
may still help your skin. seek more medical opinions. you may have both issues going on.
good luck!
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Jodi
Hey hey lupie sister! I had no clue how man woman have lupus! I had no clue wha it was when diagnosed. I-ve learned so much! But yet not totally aware of all its damages to our bodies. Does any other lupus patients get swollen legs/feet? Or dizzy spells? I-ve gotten worse over the summer with those two areas more then before. I-m always learning, and I-m so happy to see woman embracing there differences and being proud of the skin we-re in! -----
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Hey hey lupie sister! I had no clue how man woman have lupus! I had no clue wha it was when diagnosed. I-ve learned so much! But yet not totally aware of all its damages to our bodies. Does any other lupus patients get swollen legs/feet? Or dizzy spells? I-ve gotten worse over the summer with those two areas more then before. I-m always learning, and I-m so happy to see woman embracing there differences and being proud of the skin we-re in! -----
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FullerMoments
You are adorable. I am so glad you decided to use your passion for makeup and your desire to spread Luous Awareness. Lupus runs in my family, so I really familiar with it. You are one of earths Angels. You share your -true self- and in doing so you get joy doing what you love and others who may be in your situation feel impowered to do the same. You Go Girl!
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You are adorable. I am so glad you decided to use your passion for makeup and your desire to spread Luous Awareness. Lupus runs in my family, so I really familiar with it. You are one of earths Angels. You share your -true self- and in doing so you get joy doing what you love and others who may be in your situation feel impowered to do the same. You Go Girl!
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Asako
if she wouldnt be a fatass i bet her -lupus- would go away. its just another term for inflammation. can be managed. i was told id get lupus after being diagnosed with crohns. didnt wanna take pills so i just fixed my diet and now 12 years pill and flare up free. doubt ill be seeing progressive inflammation
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if she wouldnt be a fatass i bet her -lupus- would go away. its just another term for inflammation. can be managed. i was told id get lupus after being diagnosed with crohns. didnt wanna take pills so i just fixed my diet and now 12 years pill and flare up free. doubt ill be seeing progressive inflammation
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BoogieMonster
Doesn't Mercedes from America's next top model have lupus? I wonder why some people seem to get these rashes when they have this, while others have other symptoms like hair loss -. I guess it just has the potential to affect people very differently. Glad she's not letting it hold her back though.
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Doesn't Mercedes from America's next top model have lupus? I wonder why some people seem to get these rashes when they have this, while others have other symptoms like hair loss -. I guess it just has the potential to affect people very differently. Glad she's not letting it hold her back though.
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Lindsay
Good for her! Confidence is everything! -Truly- however, might wanna consider renaming the title. Considering she literally does the complete OPPOSITE lol. She DOES cover her lupus. she covers it with makeup.
---And before anyone twists my words- this is not directed towards her by any means!
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Good for her! Confidence is everything! -Truly- however, might wanna consider renaming the title. Considering she literally does the complete OPPOSITE lol. She DOES cover her lupus. she covers it with makeup.
---And before anyone twists my words- this is not directed towards her by any means!
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Luveena
Most people do not understand the internal pain people with Lupus go through. Skin rashes are just the beginning of a flare up. Glad someone did a video to educate others because most people dont know anything about lupus ---
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Most people do not understand the internal pain people with Lupus go through. Skin rashes are just the beginning of a flare up. Glad someone did a video to educate others because most people dont know anything about lupus ---
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Hazelkitty
Forgot to mention I had a crazy rash on my neck a few months ago I looked like a leper. Next time I am going to say; oh, yes very contagious, just to see the look on their faces, lol. Then say no, it is Lupus.
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Forgot to mention I had a crazy rash on my neck a few months ago I looked like a leper. Next time I am going to say; oh, yes very contagious, just to see the look on their faces, lol. Then say no, it is Lupus.
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MzGumby02
Lupus has definitely changed the appearance of my face. My eyes and cheeks look horrible when I have a flareup. I'm just learning to be more gentle with myself, and take it day by day. The battle continues.
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Lupus has definitely changed the appearance of my face. My eyes and cheeks look horrible when I have a flareup. I'm just learning to be more gentle with myself, and take it day by day. The battle continues.
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MrsSlocombes
Well the heading doesn't really make sense. Says won't hide it anymore. before covering herself in makeup. Anyway she seems a beautiful women both inside and out, and has some good makeup skills.
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Well the heading doesn't really make sense. Says won't hide it anymore. before covering herself in makeup. Anyway she seems a beautiful women both inside and out, and has some good makeup skills.
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Jae
I feel u! I have 3 autoimmune diseases, SLE being just one. The others are EDS, and Myasthenia Gravis. All are unbelievably debilitating. Thank u for putting a little sunshine to my gloomy day! --
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I feel u! I have 3 autoimmune diseases, SLE being just one. The others are EDS, and Myasthenia Gravis. All are unbelievably debilitating. Thank u for putting a little sunshine to my gloomy day! --
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Laura
I found this in a Lupus online support group. Great job. I have systemic lupus and arthritis and I hate my skin so much. She is a good role model. I will watch the video again when I feel sad.
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I found this in a Lupus online support group. Great job. I have systemic lupus and arthritis and I hate my skin so much. She is a good role model. I will watch the video again when I feel sad.
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Stacy
- I have SLE & was diagnosed in 2011 with The horrible butterfly rash! Thank you for bringing awareness to this! Let me know what foundation you use girl. You're beautiful inside & out -
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- I have SLE & was diagnosed in 2011 with The horrible butterfly rash! Thank you for bringing awareness to this! Let me know what foundation you use girl. You're beautiful inside & out -
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Katherine-Rose
Hahahaha how can people say she-s not that good at makeup- man you should see my makeup if you think that-s bad lol. She-s stunning and talented and brave -- keep it up girl
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Hahahaha how can people say she-s not that good at makeup- man you should see my makeup if you think that-s bad lol. She-s stunning and talented and brave -- keep it up girl
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Judy
You are beautiful and strong. I have Lupus as well, but I have no idea how to do make up or what to buy. I've never worn make up. Wish you were my neighbor. Mrs lonely Lupus Lady!
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You are beautiful and strong. I have Lupus as well, but I have no idea how to do make up or what to buy. I've never worn make up. Wish you were my neighbor. Mrs lonely Lupus Lady!
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blue-
My mom has lupus and we didn-t know. She got the rash as well and she-s doing better now but lupus definitely isn-t anything to be ashamed of! My mom was for awhile: (
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My mom has lupus and we didn-t know. She got the rash as well and she-s doing better now but lupus definitely isn-t anything to be ashamed of! My mom was for awhile: (
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Alex
I wish I could do make up and think of myself as pretty. I-m fat and I don-t like my face because of it plus I have a lot of dark and light patches. You-re so beautiful
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I wish I could do make up and think of myself as pretty. I-m fat and I don-t like my face because of it plus I have a lot of dark and light patches. You-re so beautiful
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anyways
I have dle (discoid lupus) it-s not as bad as sle but seeing how confident she is now makes me so happy and it makes me realize that my scars shouldn-t define me
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I have dle (discoid lupus) it-s not as bad as sle but seeing how confident she is now makes me so happy and it makes me realize that my scars shouldn-t define me
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none
Truly can you turn on the comments on the pedophile video. I wanna know what people think. It's weird that it's the only video that has a turned off comments?
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Truly can you turn on the comments on the pedophile video. I wanna know what people think. It's weird that it's the only video that has a turned off comments?
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Aviaska
im also lupus, actually i believe that we can feel happy, or comfort when we be good person. positive woman. ure body unhealhty but ure soul very pretty.
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im also lupus, actually i believe that we can feel happy, or comfort when we be good person. positive woman. ure body unhealhty but ure soul very pretty.
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Mia
I hope she-s sees this. Organic sulfur CAN TREAT LUPUS THERE ARE REAL LIFE PEOPLE WHO HAVE HAD LUPUS GONE BECAUSE OF ORGANIC SULFUR AND IT HELPS WITH CANCER
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I hope she-s sees this. Organic sulfur CAN TREAT LUPUS THERE ARE REAL LIFE PEOPLE WHO HAVE HAD LUPUS GONE BECAUSE OF ORGANIC SULFUR AND IT HELPS WITH CANCER
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Sulky
Her skin looks like an exaggerated version of that e-girl makeup look where they put lots of blush on their cheeks and nose. I think it looks super cute!
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Her skin looks like an exaggerated version of that e-girl makeup look where they put lots of blush on their cheeks and nose. I think it looks super cute!
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steph
I wish I was half as confident as her. I love her attitude and outlook. She's beautiful inside and out, and those eyelashes! I'm envious
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I wish I was half as confident as her. I love her attitude and outlook. She's beautiful inside and out, and those eyelashes! I'm envious
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Kath
I'm sorry, but you are beautiful! You're just gonna have to learn to live with that. -- I also have Lupus. And RA. I know the struggle.
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I'm sorry, but you are beautiful! You're just gonna have to learn to live with that. -- I also have Lupus. And RA. I know the struggle.
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Kimberly
My grandma had lupus and she didn-t talk about it too much and I never really knew what it was. I knew she wore wigs because of it.
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My grandma had lupus and she didn-t talk about it too much and I never really knew what it was. I knew she wore wigs because of it.
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