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Father and daughter battle rare facial condition - born different

Father and daughter battle rare facial condition - born different

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Rating: 4.0; Vote: 1
A FIVE-YEAR-OLD girl born with a rare craniofacial disorder is navigating the world with the help of her father, who was diagnosed with the same condition. Duane, aged 36, and his daughter Ariasha, aged five, have Treacher Collins Syndrome, which affects the development of facial bones and tissue. Duane has no ears or cheekbones and wears prosthetic ears. As a result of the condition, both Duane and Ariasha live with hearing loss and have worn hearing aids almost their entire lives. Ariasha's mother, Becky, now aims to bring hope to families facing a challenging diagnosis of a new baby by writing an educational children's book 'Asha's Little Ears', and by selling custom headbands that support bone-anchored hearing aids
Date: 2023-09-12

Comments and reviews: 20


Matthew 25: 31-46-
New International Version-
The Sheep and the Goats-
31 -When the Son of Man comes in his glory, and all the angels with him, he will sit on his glorious throne. 32 All the nations will be gathered before him, and he will separate the people one from another as a shepherd separates the sheep from the goats. 33 He will put the sheep on his right and the goats on his left. -
34 -Then the King will say to those on his right, -Come, you who are blessed by my Father; take your inheritance, the kingdom prepared for you since the creation of the world. 35 For I was hungry and you gave me something to eat, I was thirsty and you gave me something to drink, I was a stranger and you invited me in, 36 I needed clothes and you clothed me, I was sick and you looked after me, I was in prison and you came to visit me. --
37 -Then the righteous will answer him, -Lord, when did we see you hungry and feed you, or thirsty and give you something to drink? 38 When did we see you a stranger and invite you in, or needing clothes and clothe you? 39 When did we see you sick or in prison and go to visit you? --
40 -The King will reply, -Truly I tell you, whatever you did for one of the least of these brothers and sisters of mine, you did for me. --
41 -Then he will say to those on his left, -Depart from me, you who are cursed, into the eternal fire prepared for the devil and his angels. 42 For I was hungry and you gave me nothing to eat, I was thirsty and you gave me nothing to drink, 43 I was a stranger and you did not invite me in, I needed clothes and you did not clothe me, I was sick and in prison and you did not look after me. --
44 -They also will answer, -Lord, when did we see you hungry or thirsty or a stranger or needing clothes or sick or in prison, and did not help you? --
45 -He will reply, -Truly I tell you, whatever you did not do for one of the least of these, you did not do for me. --
46 -Then they will go away to eternal punishment, but the righteous to eternal life. -

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i was born with microtia, having my right ear undeveloped. i remember when i was around 6 and under i used to wear those head bands but now i got surgery and i have the same hearing aid as the man! as for my ear, i got surgery to make it look like a real ear, so no i cant take it off - Now i am 13 and i feel like its really nice to know otehr peoples diseases and differences from the world. have a nice day
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i have the hearing aids i lots my hearing when i was 10 years old and i ben bully all my life because i have special needs we are kind of the same person because i was born with special needs and i was born with a tracheotomy and a g tube that i still have but i don-t have to tracheotomy anymore i got it out when i was 7 years old just befor i turned 8 years old i got it out for good - - - -- 6: 27
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sorry but unpopular opinion here- they should not have had biological children. The wife could have gotten a sperm donor even. Or adoption. This man although seems very nice knows what pain he went through in life. How could he take that chance and pass it on to his kids? It just seems very selfish.
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Know what? no matter if you look normal or different, people with no self confidence will surely get bullied. Raise her confidence cause she's gorgeous. Looks won't matter when it comes to friendship and love. Best example is her own father. He's unique and won his wife's heart. Lol
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The little babie thinking the mother is the -weird- one just shows perspective. Its really is how people tend to see that they are the -normal- one but in reality everyone is the -normal- one and everyone is also the -weird- one. Depending on which eyes you see it from
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Why would anyone knowingly take a chance of passing on a deformity or disease to a another human being? If I was your daughter and became old enough to understand, I wouldn't forgive you. You don't just slough this off for the rest of your life.
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-does somersault- -and my ear fell off- Ha ha ha the comedic timing for that was great! I can tell this guy uses comedy as a way to make it in life, and I think that's pretty damn cool! He and his daughter are amazing people!
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Galatians 5: 22-23-
New International Version-
22 But the fruit of the Spirit is love, joy, peace, forbearance, kindness, goodness, faithfulness, 23 gentleness and self-control. Against such things there is no law.

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Thank GOD most these comments are AWSOME! I would want to kick some butt sometimes! Brave, BRAVE, COUPLE. What a wonderful family I am so impressed! The wife is my hero. There really are some AWSOME people still out there!
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Wow I-ve rarely seen such irresponsible parents still knowingly passing on these faulty genes. It-s wholly unethical so unfair to the little ones. And the dad-s shamelessness is astounding.
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my old neighbour who i was such great friends with had that exact same condition, she was the nicest person i have ever met. i wish the best for this lovely family x x
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It only matters on the inside not the outside. My friend has this and she comes to me crying and Saying they judged me and I say it matters in the. Inside not the. outside
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I have never felt this condition makes anybody different. I find it so unfair when people judge you by the way you look. I think the little girl is totally adorable.
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Despite the Facial Disfigurement He still manages to have a Glorious Beard
A beard worthy of the gods

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if i had to have prosthetic ears, i would not like it, but i would have like elf ears, and like weird ears lol
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That's sad bullying should not be a part of life. we are called to love each other not bully/hate. eachother.
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Now I don-t have any thing that affects me from when I was born and I still get bullied it a part of life
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If Ariasha was being bullied I would step in for her. And also I think she-s very cute the way she looks.
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Every dad that is not in their child life by choice need to see this! How precious this moment is omg -
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