The boy who can't stop biting himself - born different
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Date: 2023-09-12
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Comments and reviews: 21
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My brother too has Lesch Nyhan. His name is Simon and just turned 17. We are from Denmark so we are very lucky the Danish healthcare system pays for sugerys and helps with stuff as wheelchairs, home helpers all day and our own van with a lift. Even lifts in our roof so we don't have to carry him around and hurt our backs. Hes a big boy around 6'2 (190 cm) Its funny how much Holdens movement is similar to my brothers. The arm movement is exactly the same and the crossed legs too. I love that you made it possible to race with him with the toy cars. Simon loves driving in the van and when he is most in peace its in the van in his wheelchair, its like all his symptoms disappear and he can just chill.
I loved this video and totally love Holden. Big ups to you guys for making Holden have as great a life a lesch nyhan kid can have
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My brother too has Lesch Nyhan. His name is Simon and just turned 17. We are from Denmark so we are very lucky the Danish healthcare system pays for sugerys and helps with stuff as wheelchairs, home helpers all day and our own van with a lift. Even lifts in our roof so we don't have to carry him around and hurt our backs. Hes a big boy around 6'2 (190 cm) Its funny how much Holdens movement is similar to my brothers. The arm movement is exactly the same and the crossed legs too. I love that you made it possible to race with him with the toy cars. Simon loves driving in the van and when he is most in peace its in the van in his wheelchair, its like all his symptoms disappear and he can just chill.
I loved this video and totally love Holden. Big ups to you guys for making Holden have as great a life a lesch nyhan kid can have
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Karen
In the early 70s I worked as a camp counselor for United cerebral palsy of Chicago and in the summer we would provide the camps and we had a boy in our camp with the same situation and no imagine us you know over 30 years ago 35 years ago from now and you know the family had to tie his hands to the wheelchair because he would chew his lips off bite at himself and he limited speech but he would be like I can-t help it I can-t stop he also would swear without meaning to but it wasn-t called Tourette-s at the time anyway he was such a sweet boy otherwise and he had an uncle with the same condition- Was very sad I still remember his name his first name was Jimmy- So my heart goes out to your child and to the family bless his little heart
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In the early 70s I worked as a camp counselor for United cerebral palsy of Chicago and in the summer we would provide the camps and we had a boy in our camp with the same situation and no imagine us you know over 30 years ago 35 years ago from now and you know the family had to tie his hands to the wheelchair because he would chew his lips off bite at himself and he limited speech but he would be like I can-t help it I can-t stop he also would swear without meaning to but it wasn-t called Tourette-s at the time anyway he was such a sweet boy otherwise and he had an uncle with the same condition- Was very sad I still remember his name his first name was Jimmy- So my heart goes out to your child and to the family bless his little heart
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Heidi
such a handsome buy. what an amazing father, grandmothe( I love how the grandmother interacts with Holden), sister and friends this young man has to help support him and encourage him. Holden's father is truly what every man should be, loving, commited, unconditonal love, creative in trying to help him participate in sporting activities with others, and to be able to experience the joy of movement, you can just see the true love this father has for his son
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such a handsome buy. what an amazing father, grandmothe( I love how the grandmother interacts with Holden), sister and friends this young man has to help support him and encourage him. Holden's father is truly what every man should be, loving, commited, unconditonal love, creative in trying to help him participate in sporting activities with others, and to be able to experience the joy of movement, you can just see the true love this father has for his son
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CoChief
There was a boy on a documentary series, called Mr. diagnosis named Tristan, and he was diagnosed at a year old. He had to have his teeth extracted because he would bite his lips and tongue until they would bleed all over and it was for his own safety, despite it being barbarian. The barbarian part is getting all the teeth extracted. It-s what I-m saying. Then he would start hitting his head constantly, but sadly he passed away when he was 14
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There was a boy on a documentary series, called Mr. diagnosis named Tristan, and he was diagnosed at a year old. He had to have his teeth extracted because he would bite his lips and tongue until they would bleed all over and it was for his own safety, despite it being barbarian. The barbarian part is getting all the teeth extracted. It-s what I-m saying. Then he would start hitting his head constantly, but sadly he passed away when he was 14
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Taj
MAJOR KUDO'S 2 this Dear child's Daddy! N'stead of run'n away from his child like a coward, he IS GRAVITATING TOWARDS his handicapped child, HELPING him, PLAYING w/ him, CREATING not only memories but also ways 4 his child 2 interact with his peers & PARTICIPATE in activities w/ them as well! THIS man is a SPECIAL HERO not only in his children's eyes but, mine as well!
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MAJOR KUDO'S 2 this Dear child's Daddy! N'stead of run'n away from his child like a coward, he IS GRAVITATING TOWARDS his handicapped child, HELPING him, PLAYING w/ him, CREATING not only memories but also ways 4 his child 2 interact with his peers & PARTICIPATE in activities w/ them as well! THIS man is a SPECIAL HERO not only in his children's eyes but, mine as well!
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Max
The fascinating thing about this disease is that it's essentially just an enzyme defect that leads to hyperuricemia, and as far as I know it's not yet understood why this particular enzyme change leads to such specific neurological symptoms.
It's amazing how little we still understand about ourselves.
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The fascinating thing about this disease is that it's essentially just an enzyme defect that leads to hyperuricemia, and as far as I know it's not yet understood why this particular enzyme change leads to such specific neurological symptoms.
It's amazing how little we still understand about ourselves.
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Pretty
My son has cerebral palsy as well and I-m just impressed with the parents and how they do everything to normalize their child-s life! You guys are so wonderful! May God always bless all of you for your hard work -
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My son has cerebral palsy as well and I-m just impressed with the parents and how they do everything to normalize their child-s life! You guys are so wonderful! May God always bless all of you for your hard work -
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Rain
What a adorable young man. The dad is such a amazing father. I'm loving seeing him involved with his son. They have a amazing family. The grandma is so in love with her grandson. Thank u for sharing.
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What a adorable young man. The dad is such a amazing father. I'm loving seeing him involved with his son. They have a amazing family. The grandma is so in love with her grandson. Thank u for sharing.
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Zoe
The poor boy what a horrible condition to live with tho he seems to have a fair quality of life and an amazing family but life is cruel sometimes i wish him all the best
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The poor boy what a horrible condition to live with tho he seems to have a fair quality of life and an amazing family but life is cruel sometimes i wish him all the best
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alyssa
Wow you are an incredible dad! Having been disabled since childhood myself and not having a father who accepts me for what I am this just brings tears to my eyes.
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Wow you are an incredible dad! Having been disabled since childhood myself and not having a father who accepts me for what I am this just brings tears to my eyes.
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Megan
If he was my son I-d have ALL his teeth removed and then stuff put there to prevent them from growing back. Also his hands and feet removed so he can-t kick or hit
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If he was my son I-d have ALL his teeth removed and then stuff put there to prevent them from growing back. Also his hands and feet removed so he can-t kick or hit
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crazycatlady68
Hamilton Canada? Maybe narrow it down a bit? Ontario? What a sweet little fellow. Amazing but sad how the mind works. Hard dealing with people with SIBs.
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Hamilton Canada? Maybe narrow it down a bit? Ontario? What a sweet little fellow. Amazing but sad how the mind works. Hard dealing with people with SIBs.
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Arixbuildss
THIS CHILD shouldn't have been allowed to be born. This is so very, very sad. What's going to happen when his parents die, so who will care for him then?
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THIS CHILD shouldn't have been allowed to be born. This is so very, very sad. What's going to happen when his parents die, so who will care for him then?
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Lakeisanela
You and your family are rare gems. Your love for your son is palpable. You-re perfect for each other. And we just give mad props to the pizza shirt -
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You and your family are rare gems. Your love for your son is palpable. You-re perfect for each other. And we just give mad props to the pizza shirt -
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Freda
I don't know about this. What does the future hold for him? Will he go to school? Will he get married and have children? I don't know about this.
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I don't know about this. What does the future hold for him? Will he go to school? Will he get married and have children? I don't know about this.
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SB98
This dad is so heart warming, he doesn-t shield his son for what he wants to do, but gets him out there to achieve everything and anything.
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This dad is so heart warming, he doesn-t shield his son for what he wants to do, but gets him out there to achieve everything and anything.
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CoChief
His dad should build adaptive equipment for other special needs children as well because I believe it would be really cool
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His dad should build adaptive equipment for other special needs children as well because I believe it would be really cool
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Eunae
For the record, people with this disorder do not really want to hurt themselves - they are just compelled to do it.
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For the record, people with this disorder do not really want to hurt themselves - they are just compelled to do it.
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AdBlockUser
I will probably get hate for asking this: He will never be able to help society, so why keep him alive?
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I will probably get hate for asking this: He will never be able to help society, so why keep him alive?
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Manhattan
What a beautiful boy and amazing dad. No mom in the picture? Thats ok cuz dad is rockin Holdens- world.
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What a beautiful boy and amazing dad. No mom in the picture? Thats ok cuz dad is rockin Holdens- world.
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blogs
What a precious, beautiful boy and an absolutely amazing father. Wow. I wish them the very best always.
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What a precious, beautiful boy and an absolutely amazing father. Wow. I wish them the very best always.
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