Top 5 Things You Should Know About Epilepsy
video description
Date: 2023-11-20
Related videos
Comments and reviews: 30
Jae
I have hallucinations with my seizures. Medicine is helping. At first I didnt realize that I was having seizures and my hallucinations often involved seeing people and pets that had died. One day I had a full conversation with my grandma completely unaware of the fact that she had died years ago and it was just a hallucination. When I was diagnosed and given medication I was hesitant to take it because I felt like I was loosing loved ones all over again. But I know it was all in my mind and I needed to take care of myself. But now Im getting pain in my heart and breathing difficulties. I have heart valve disease but its been mild and I havent had pain in my chest quite like this before so out of curiosity I looked up if lamictol could affect the heart and it can! So I have to call my doctor in the morning and see what he thinks would be a good alternative to try. Side effects are scary! Sometimes the meditation can be worse than the disease! Before when I was on keppra I wanted to get in the car and drive into the river. It was terrifying! I told everyone to hide their car keys from me just in case. I dont know what is worse sometimesthe illness or the treatment!
reply
I have hallucinations with my seizures. Medicine is helping. At first I didnt realize that I was having seizures and my hallucinations often involved seeing people and pets that had died. One day I had a full conversation with my grandma completely unaware of the fact that she had died years ago and it was just a hallucination. When I was diagnosed and given medication I was hesitant to take it because I felt like I was loosing loved ones all over again. But I know it was all in my mind and I needed to take care of myself. But now Im getting pain in my heart and breathing difficulties. I have heart valve disease but its been mild and I havent had pain in my chest quite like this before so out of curiosity I looked up if lamictol could affect the heart and it can! So I have to call my doctor in the morning and see what he thinks would be a good alternative to try. Side effects are scary! Sometimes the meditation can be worse than the disease! Before when I was on keppra I wanted to get in the car and drive into the river. It was terrifying! I told everyone to hide their car keys from me just in case. I dont know what is worse sometimesthe illness or the treatment!
reply
Amanda
I appreciate spreading awareness. Seizures arent guaranteed to stay controlled, some people cant control seizures with medications, and a person can have more than one type of seizure. Never hold a person who is having a seizure down, never put anything in their mouth, always put something under a persons head, turn them on their side if possible for better breathing. The recovery stage (post ictal) after a seizure is finished can have a variety of reactions from the epileptic from looking drunk, loss of communication, being combative, just needing sleep, to confusion, and many more. If a person has a seizure, time it, video tape it if you can, and you dont need to call 911 unless the seizure lasts more than 5 minutes, there are multiple seizures repeating, or its the first seizure. Look for medical ID like an ID bracelet, a medical card in a wallet, or emergency medical information that is accessible from the phone under the word emergency. The person may have a list of people to contact and should never be left alone until they are fully aware. They should not drive.
reply
I appreciate spreading awareness. Seizures arent guaranteed to stay controlled, some people cant control seizures with medications, and a person can have more than one type of seizure. Never hold a person who is having a seizure down, never put anything in their mouth, always put something under a persons head, turn them on their side if possible for better breathing. The recovery stage (post ictal) after a seizure is finished can have a variety of reactions from the epileptic from looking drunk, loss of communication, being combative, just needing sleep, to confusion, and many more. If a person has a seizure, time it, video tape it if you can, and you dont need to call 911 unless the seizure lasts more than 5 minutes, there are multiple seizures repeating, or its the first seizure. Look for medical ID like an ID bracelet, a medical card in a wallet, or emergency medical information that is accessible from the phone under the word emergency. The person may have a list of people to contact and should never be left alone until they are fully aware. They should not drive.
reply
Brianna
Id appreciate any input on my situation:
I recently have been having a lot of convulsions for the last eight months where I lose control of parts of my body like my head, torso or arm, and have sudden jerking movements, but Im completely aware and can have full cognitive function. It started where I had to be hospitalized for having what seemed to be 26 seizure type symptoms in a day. I always feel a pain in the right side of my brain, and a tingling sensation in my muscles before they involuntary convulse. I have no brain damage from the incidents, and the seizure medication makes it worse. Its happening about five or six times a day now and can last for up to three hours an episode. Would this be considered a form of seizing even though Im aware of it?
If anyone has an opinion on this Id appreciate the input! Im really confused and its exhausting, and Ive reached the extent of my ability to try and understand my situation. Thanks
reply
Id appreciate any input on my situation:
I recently have been having a lot of convulsions for the last eight months where I lose control of parts of my body like my head, torso or arm, and have sudden jerking movements, but Im completely aware and can have full cognitive function. It started where I had to be hospitalized for having what seemed to be 26 seizure type symptoms in a day. I always feel a pain in the right side of my brain, and a tingling sensation in my muscles before they involuntary convulse. I have no brain damage from the incidents, and the seizure medication makes it worse. Its happening about five or six times a day now and can last for up to three hours an episode. Would this be considered a form of seizing even though Im aware of it?
If anyone has an opinion on this Id appreciate the input! Im really confused and its exhausting, and Ive reached the extent of my ability to try and understand my situation. Thanks
reply
Funko
I have epilepsy and I've almost died five times from having seizures
I have nocturnal epilepsy which basically means seizures happen when I'm asleep I once rolled over into my pillow face first during one and stopped breathing out of every one I had that one I was closest to dying but I've been two years seizure free now
My parents have known in had it since I was seven years old I didn't know until I was fourteen I'll be eighteen July 30th and have been taking my seizure meds but for about three-four years now I take two tablet's ever twelve hours 8am-8pm
I also get my epilepsy from my mother's father him and I are the only two in our family that have it at least that we know of
He passed away when I was six weeks old but never would have been part of my life even if he was still alive due to reasons
reply
I have epilepsy and I've almost died five times from having seizures
I have nocturnal epilepsy which basically means seizures happen when I'm asleep I once rolled over into my pillow face first during one and stopped breathing out of every one I had that one I was closest to dying but I've been two years seizure free now
My parents have known in had it since I was seven years old I didn't know until I was fourteen I'll be eighteen July 30th and have been taking my seizure meds but for about three-four years now I take two tablet's ever twelve hours 8am-8pm
I also get my epilepsy from my mother's father him and I are the only two in our family that have it at least that we know of
He passed away when I was six weeks old but never would have been part of my life even if he was still alive due to reasons
reply
1975KyleDavid
I became epileptic at the age of 12. I had taken different medications, but none seamed to work fully. Thirteen days before my 26th birthday, I underwent temporal lobe lobectomy. I had been on medications until about 6 years ago; the last medications I had taken were lamotragen and topirimate (I may have misspelled these. I have had a few seizures in the last three years, usually one or two seizures per year. I can tell you a world of difference being off my medications. I thought I was never going to be off. The first time my doctor attempted weaning me off, I resulted in a seizure while driving and lost my license for a year. I just want everyone to be hopeful in getting control of your seizures because there was a time when I had doubt that I would.
reply
I became epileptic at the age of 12. I had taken different medications, but none seamed to work fully. Thirteen days before my 26th birthday, I underwent temporal lobe lobectomy. I had been on medications until about 6 years ago; the last medications I had taken were lamotragen and topirimate (I may have misspelled these. I have had a few seizures in the last three years, usually one or two seizures per year. I can tell you a world of difference being off my medications. I thought I was never going to be off. The first time my doctor attempted weaning me off, I resulted in a seizure while driving and lost my license for a year. I just want everyone to be hopeful in getting control of your seizures because there was a time when I had doubt that I would.
reply
Christopher
Im 26 and started having seizures at like 19 after suffering with extreme OCD. I remember having auras as a child tho and didnt know what they were. Again, I remember auras, but never had seizures until I started panicking, stressing, and never getting rest due to the OCD. The OCD got bad around 18. Ive been seizure free for at least two years now, and Im currently on Aptiom. Ive been making serious changes and recovering from OCD. I have noticed the constant fog, slowness, and problems thinking and coordinating from Aptiom. On the 8th, I see my neurologist about weening off of medication. I hope I can safely ween off of the medication. I also havent had an aura probably at least two years.
reply
Im 26 and started having seizures at like 19 after suffering with extreme OCD. I remember having auras as a child tho and didnt know what they were. Again, I remember auras, but never had seizures until I started panicking, stressing, and never getting rest due to the OCD. The OCD got bad around 18. Ive been seizure free for at least two years now, and Im currently on Aptiom. Ive been making serious changes and recovering from OCD. I have noticed the constant fog, slowness, and problems thinking and coordinating from Aptiom. On the 8th, I see my neurologist about weening off of medication. I hope I can safely ween off of the medication. I also havent had an aura probably at least two years.
reply
DESHI
I am suffering from epilepsy from 6 years. Even after taking prescribed medications, it just don't go away. After trying everything, i have lost myself and i just want to go away from this life. I tried every type of things that i could try, after 3 months, i would be going away from my family and everyone is afraid that i should not go alone. Even though I am 18, i will not be able to learn anything and be dependent on my family for everything. doctors are not able to find the cause of my epilepsy and i am just so disgusting now. Meri life jhand ho gyi h bs.
reply
I am suffering from epilepsy from 6 years. Even after taking prescribed medications, it just don't go away. After trying everything, i have lost myself and i just want to go away from this life. I tried every type of things that i could try, after 3 months, i would be going away from my family and everyone is afraid that i should not go alone. Even though I am 18, i will not be able to learn anything and be dependent on my family for everything. doctors are not able to find the cause of my epilepsy and i am just so disgusting now. Meri life jhand ho gyi h bs.
reply
Mohammad
I know what it is to just live and survive such a tough condition. If treatment is not done early, it could result in side effects like minor to severe headaches which could possibly last days. Early treatment is the best thing to do. When you get such epileptic seizures, you can get involuntary body movement. This can frequently occur where the head and neck is located (but that not just depends on the type of epileptic seizure, but it also has to do with how severe it could be.
reply
I know what it is to just live and survive such a tough condition. If treatment is not done early, it could result in side effects like minor to severe headaches which could possibly last days. Early treatment is the best thing to do. When you get such epileptic seizures, you can get involuntary body movement. This can frequently occur where the head and neck is located (but that not just depends on the type of epileptic seizure, but it also has to do with how severe it could be.
reply
Wafflez-Man-
A few nights ago I lit up a cigarette and walking home with my mother, I fell into a seizure and fell on my back and head and my mother told me I was shaking and spit coming out my mouth. I still dont know whats the main reason why it happened but it was scary because I have no consciousness until I was in the ambulance. Now I have a concussion in my head now I get dizzy sometimes and it really sucks. Seizures are no joke. if it happens at the wrong time it can be death.
reply
A few nights ago I lit up a cigarette and walking home with my mother, I fell into a seizure and fell on my back and head and my mother told me I was shaking and spit coming out my mouth. I still dont know whats the main reason why it happened but it was scary because I have no consciousness until I was in the ambulance. Now I have a concussion in my head now I get dizzy sometimes and it really sucks. Seizures are no joke. if it happens at the wrong time it can be death.
reply
skylersky11
I have a very scary and weird type of epilepsy it makes me have da ja vu from dreams. I start to feel like Im passing out and Im dying my head feels like Im dying. The neurologist have said he dont know if I actually am dying when it feels like I am. When it first started happening I was scared to get help I thought everyone would think I was crazy. I was very surprised when I told the symptoms and they knew what I was talking about. And they did not call me crazy.
reply
I have a very scary and weird type of epilepsy it makes me have da ja vu from dreams. I start to feel like Im passing out and Im dying my head feels like Im dying. The neurologist have said he dont know if I actually am dying when it feels like I am. When it first started happening I was scared to get help I thought everyone would think I was crazy. I was very surprised when I told the symptoms and they knew what I was talking about. And they did not call me crazy.
reply
Christina
I was born with epilepsy. I went from the generalized epilepsy, to the tonic colonic epilepsy, to the now partial epilepsy but it seems people who does not have it is only familiar with one form of seizures and thats the generalized epilepsy. My seizure is only stable with medication, if I miss one the next day my generalized seizure would be present
reply
I was born with epilepsy. I went from the generalized epilepsy, to the tonic colonic epilepsy, to the now partial epilepsy but it seems people who does not have it is only familiar with one form of seizures and thats the generalized epilepsy. My seizure is only stable with medication, if I miss one the next day my generalized seizure would be present
reply
Scott
Anything with the brain and treatment is a guessing game. The brain is so vastly complex. I live with major depressive disorder with psychotic features aka hallucinations. I take Prozac and Gabapentin (ironically enough an anti seizure med) to treat my depression. I do well these days, Stay strong everyone and much love to all of you!
reply
Anything with the brain and treatment is a guessing game. The brain is so vastly complex. I live with major depressive disorder with psychotic features aka hallucinations. I take Prozac and Gabapentin (ironically enough an anti seizure med) to treat my depression. I do well these days, Stay strong everyone and much love to all of you!
reply
fanjoy
After 2 years i am watching this video Because of Epilepsy i have some other memory issues too. Few days Ago i started my first job of my life and my memory issues created a biggest barrel in my job. I don't know what to do I even forget smaller things like switch on/off the equipments I don't know i am broken from inside
reply
After 2 years i am watching this video Because of Epilepsy i have some other memory issues too. Few days Ago i started my first job of my life and my memory issues created a biggest barrel in my job. I don't know what to do I even forget smaller things like switch on/off the equipments I don't know i am broken from inside
reply
Ironcladgaming
Ive been epileptic for 2/3 years now and I have to say I have the greatest respect for those that are born with the condition. Everyday Im more scared and mentally drained to the point I just want to give in its exhausting especially when the people around you cant understand what you are going through
reply
Ive been epileptic for 2/3 years now and I have to say I have the greatest respect for those that are born with the condition. Everyday Im more scared and mentally drained to the point I just want to give in its exhausting especially when the people around you cant understand what you are going through
reply
Michelle
I've had seizures since middle school. My last seizure was 2016. Thankfully my medication has been working as much as I rather be off it. I also took a huge risk of being pregnant with my daughter when I was off the medication for a year. So thank god I didn't get my last one until after I had her in 2015.
reply
I've had seizures since middle school. My last seizure was 2016. Thankfully my medication has been working as much as I rather be off it. I also took a huge risk of being pregnant with my daughter when I was off the medication for a year. So thank god I didn't get my last one until after I had her in 2015.
reply
Dr
This man specializes in casting all kinds of spells, LOVE SPELL DIVORCE SPELL MARRIAGE SPELL BINDING SPELL BREAKING SPELL LOTTERY SPELL OFFICE PROMOTION CONTRACT APPROVAL SPELL PREVIOUS LOVER EXAM SUCCESS SPELL PROTECTION SPELL IF YOU WANT TO SATISFY YOUR LOVER VISA APPROVAL SPELL SPELL TO WIN COURT CASES, etc.
reply
This man specializes in casting all kinds of spells, LOVE SPELL DIVORCE SPELL MARRIAGE SPELL BINDING SPELL BREAKING SPELL LOTTERY SPELL OFFICE PROMOTION CONTRACT APPROVAL SPELL PREVIOUS LOVER EXAM SUCCESS SPELL PROTECTION SPELL IF YOU WANT TO SATISFY YOUR LOVER VISA APPROVAL SPELL SPELL TO WIN COURT CASES, etc.
reply
Turkey
Ive had a seizure disorder (not technically epilepsy) since I was 18. I went up to almost the highest dose of Keppra and I was still having seizures once a month. Im gonna try CBD, hopefully I can get some positive results. I hate living life in fear of my own self.
reply
Ive had a seizure disorder (not technically epilepsy) since I was 18. I went up to almost the highest dose of Keppra and I was still having seizures once a month. Im gonna try CBD, hopefully I can get some positive results. I hate living life in fear of my own self.
reply
Christian
I've been talking with this girl who I really like and we're kind of getting into each other and I want to know what I can do what I need to know what should I know about her condition in regards to this. Any help from anyone would be much appreciated
reply
I've been talking with this girl who I really like and we're kind of getting into each other and I want to know what I can do what I need to know what should I know about her condition in regards to this. Any help from anyone would be much appreciated
reply
Mehak
My brother is 30. Seizures started when he was 18 months old. Now his condition has worsen! We tried a lot of medications but all in vain. He has behavioral problems now and severe mood swings. Most of the times he's aggressive! Kindly pray for him.
reply
My brother is 30. Seizures started when he was 18 months old. Now his condition has worsen! We tried a lot of medications but all in vain. He has behavioral problems now and severe mood swings. Most of the times he's aggressive! Kindly pray for him.
reply
Muuip
Over 20 years seizure free on Phenytoin with no major side effects.
Thanks to research!
Ketogenic diet with intermittent fasting and vitamin+minerals supplementation also helps.
Thank you for your video to help raise epilepsy awareness.
reply
Over 20 years seizure free on Phenytoin with no major side effects.
Thanks to research!
Ketogenic diet with intermittent fasting and vitamin+minerals supplementation also helps.
Thank you for your video to help raise epilepsy awareness.
reply
Samantha
Ive been 2 months seizure free so glad I try to figure out when its gonna happen every time my stomach aches i get concerned I have noticed it seems like im having an out body experience any whoo too many symptoms stress a big trigger too
reply
Ive been 2 months seizure free so glad I try to figure out when its gonna happen every time my stomach aches i get concerned I have noticed it seems like im having an out body experience any whoo too many symptoms stress a big trigger too
reply
chaotic
I wish there was more information on epilepsy. I've been dealing with it for over five years now (I'm 16) and I still don't know what could be a side effect or another problem I have. So I just can't do anything about it.
reply
I wish there was more information on epilepsy. I've been dealing with it for over five years now (I'm 16) and I still don't know what could be a side effect or another problem I have. So I just can't do anything about it.
reply
Jose
Does anybody take keppra for treatment for your seizures? And if you do, do you also have memory issues? I dont know if its due to the keppra or the epilepsy in general. If anybody know please let me know thank you
reply
Does anybody take keppra for treatment for your seizures? And if you do, do you also have memory issues? I dont know if its due to the keppra or the epilepsy in general. If anybody know please let me know thank you
reply
Dominique
After 15 years of having seizures I made it past 6 months! Ill be 17 months seizure free on the 23rd! Im telling you all to stay POSITIVE and HOPEFUL! BTW smoke weed, even if your doctor disagrees!
reply
After 15 years of having seizures I made it past 6 months! Ill be 17 months seizure free on the 23rd! Im telling you all to stay POSITIVE and HOPEFUL! BTW smoke weed, even if your doctor disagrees!
reply
Grace
Epilepsy Awareness Month in Canada is in March. It might be any another month for other countries out there. So pick your month. There's always time to learn or teach some information about epilepsy.
reply
Epilepsy Awareness Month in Canada is in March. It might be any another month for other countries out there. So pick your month. There's always time to learn or teach some information about epilepsy.
reply
Ini
Let me take out a moment in my busy life to send a thank you note to a very amazing doctor who is full of love and commitment, Dr ogie is truly a blessing to the world thanks for curing my epilepsy
reply
Let me take out a moment in my busy life to send a thank you note to a very amazing doctor who is full of love and commitment, Dr ogie is truly a blessing to the world thanks for curing my epilepsy
reply
Ini
Let me take out a moment in my busy life to send a thank you note to a very amazing doctor who is full of love and commitment, Dr ogie is truly a blessing to the world thanks for curing my epilepsy
reply
Let me take out a moment in my busy life to send a thank you note to a very amazing doctor who is full of love and commitment, Dr ogie is truly a blessing to the world thanks for curing my epilepsy
reply
Native
I have complex Partial seizures from birth and Cerebral Palsy and medication doesn't do sht, My brother has them from a head injury back in 1997 and my sister had them from taking Wellbutrin,
reply
I have complex Partial seizures from birth and Cerebral Palsy and medication doesn't do sht, My brother has them from a head injury back in 1997 and my sister had them from taking Wellbutrin,
reply
Anna
my mom have seizures in 3 year it my mom seizure then the next year she have nothing after that year she a seizure in a different years! but she not epilepsy she have type 2 diabetes
reply
my mom have seizures in 3 year it my mom seizure then the next year she have nothing after that year she a seizure in a different years! but she not epilepsy she have type 2 diabetes
reply
Aimee
People get confused when I tell them Ive had a seizure after my focal seizures sometimes once Ive recovered, how its possible to have a seizure without the physical convulsions.
reply
People get confused when I tell them Ive had a seizure after my focal seizures sometimes once Ive recovered, how its possible to have a seizure without the physical convulsions.
reply
Add a review, comment
Other channel videos
