
I used to hide my skin, now i'm modelling for vogue - shake my beauty
video description
Date: 2023-09-12
Comments and reviews: 18
sara
I-m not saying she-s LUCKY by any means BUT.
She-s actually IS pretty lucky that her EB doesn-t seem to be THAT severe! There are kids out there COMPLETELY immobile and in EXTEME pain every day just changing their clothes. There-s that family with the two brothers who had/have it. The one brother died at 14 and the other is now like 18? And when asked what the first thing he thinks about every morning. he says -how much pain I-m going to be in when I have to get dressed/changed- it-s SO sad!
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I-m not saying she-s LUCKY by any means BUT.
She-s actually IS pretty lucky that her EB doesn-t seem to be THAT severe! There are kids out there COMPLETELY immobile and in EXTEME pain every day just changing their clothes. There-s that family with the two brothers who had/have it. The one brother died at 14 and the other is now like 18? And when asked what the first thing he thinks about every morning. he says -how much pain I-m going to be in when I have to get dressed/changed- it-s SO sad!
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Fer
I now believe that everything happens for a reason, thank you for this show. It has taught me to be truly grateful for each breath I take. to accept life with all its flaws. grateful for each breath and each step I take no matter how insecure I feel. she's strong and beautiful. I wish her long life and health.
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I now believe that everything happens for a reason, thank you for this show. It has taught me to be truly grateful for each breath I take. to accept life with all its flaws. grateful for each breath and each step I take no matter how insecure I feel. she's strong and beautiful. I wish her long life and health.
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Amanpreet
Wow that's so good oh dont think your ugly I understand we all feel like that because of our imperfectations always think positive slowly confidence will build now look your doing modelling wow better prettier than normal models
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Wow that's so good oh dont think your ugly I understand we all feel like that because of our imperfectations always think positive slowly confidence will build now look your doing modelling wow better prettier than normal models
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R.
I think you are absolutely gorgeous inside and out! No one deserves a time limit to be set on them by a doctor. You are doing right and living your best life! So many Blessings to you. Thanks for your inspiration
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I think you are absolutely gorgeous inside and out! No one deserves a time limit to be set on them by a doctor. You are doing right and living your best life! So many Blessings to you. Thanks for your inspiration
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Gina
wow I'm getting inspired, since childhood I have always dreamt of being a model but because of my scars I believed that I was ugly. But after seeing this. I'm going to that modeling agency!
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wow I'm getting inspired, since childhood I have always dreamt of being a model but because of my scars I believed that I was ugly. But after seeing this. I'm going to that modeling agency!
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blackvol2
Anyone wants to be a model nowadays. People who actually look like high fashion models have troubles getting signed lmao If you're not blck and without a limb or two, you're screwed.
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Anyone wants to be a model nowadays. People who actually look like high fashion models have troubles getting signed lmao If you're not blck and without a limb or two, you're screwed.
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'Melyssa
It's not easy living with a collagen disorder, but at least my skin's not falling apart. I just suffer constant connective tissue injuries.
#EhlersDanlosSyndrome
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It's not easy living with a collagen disorder, but at least my skin's not falling apart. I just suffer constant connective tissue injuries.
#EhlersDanlosSyndrome
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unicornmadness
Interesting that she said the first thing people see of her is her skin condition. The first thing I saw was her pretty face and gorgeous hair.
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Interesting that she said the first thing people see of her is her skin condition. The first thing I saw was her pretty face and gorgeous hair.
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Beth
Beautiful in all ways. Bright too. St. Andrews is a very good University. Sending love and strength to this courageous and inspiring young lady. -
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Beautiful in all ways. Bright too. St. Andrews is a very good University. Sending love and strength to this courageous and inspiring young lady. -
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Anna
I have eczema all over my body, super nice to see this type of representation! Of course her condition is way more severe, but still nice to see.
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I have eczema all over my body, super nice to see this type of representation! Of course her condition is way more severe, but still nice to see.
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StrydyrR
I disagree to. But. I'm guessing u found someone that doesn't think that way about u. Which is awesome for you. But some, never do. ever.
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I disagree to. But. I'm guessing u found someone that doesn't think that way about u. Which is awesome for you. But some, never do. ever.
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Lady
This lady is a remarkable woman and it's amazing to see how she Embraces day today and embarked on a wonderful career for herself
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This lady is a remarkable woman and it's amazing to see how she Embraces day today and embarked on a wonderful career for herself
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beba
I also suffer from the same disease, to update this disease, and I also enjoy the beauty of my hair and I am a plastic artist.
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I also suffer from the same disease, to update this disease, and I also enjoy the beauty of my hair and I am a plastic artist.
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Whatever8276
-It'll ruin your day. Ha! - - I love that. Such a simple way to break it down and it's so true. Don't dwell. Like why?
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-It'll ruin your day. Ha! - - I love that. Such a simple way to break it down and it's so true. Don't dwell. Like why?
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blogs
I'm an old school male and this popped up. I just want u to know I really respect you. Outstanding work young woman. X
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I'm an old school male and this popped up. I just want u to know I really respect you. Outstanding work young woman. X
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Ted
Your walking moves with no problem so I was wondering, is this condition painfull. Are you in cronic pain.
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Your walking moves with no problem so I was wondering, is this condition painfull. Are you in cronic pain.
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Legacy
If friction is dangerous for her then I don't understand why is she wearing finger rings and bracelets.
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If friction is dangerous for her then I don't understand why is she wearing finger rings and bracelets.
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Bridgett
What regime do they have her on? Collagen type 2 helps with elasticity and vitamin c plus vitamin d3
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What regime do they have her on? Collagen type 2 helps with elasticity and vitamin c plus vitamin d3
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