VehiclesFashionRecipesBlogsHuntTravelsSportFunHandmadeITEducation
Mini-Games
x

x
zakruti.com » Blogs and People » Truly
My skin condition hasn't stopped me finding love - born different

My skin condition hasn't stopped me finding love - born different

FBTwitterReddit

video description

Rating: 4.0; Vote: 1
MEET the woman with a skin condition so rare, she cannot be exposed to direct sunlight. At three years old, Karine de Souza was diagnosed with Xeroderma Pigmentosum - meaning every time she is exposed to ultraviolet rays, she is at risk of contracting melanomas on her skin. Karine, 29, has undergone over 130 surgical procedures to remove each one of these lesions, which has included removing her lower lip and part of her nose. Karine told Truly: -I am the target of a lot of glances, a lot of people staring at me, some of them distance themselves. - She spends her days inside her home, only venturing into the sunlight for a necessary doctor-s appointment, where she has to cover herself with 100 spf sunscreen every two hours. Three years ago, she met her husband Edmilson through social media. Edmilson said that he -fell in love with her story- and her -strength-. With special thanks to Victor Andr- Teixeira for use of his photography
Date: 2023-09-12

Comments and reviews: 22


I have very sensitive skin to the sun but not like hers. I had dreams that the sun is stronger and that the ozone layer is broken badly and I-m outside with short sleeves and no sunscreen my skin is burner fast and it hurts. I-m the only one trying to cover my skin with a hoodie I found outside. But my skin is burning from the exposure still. It-s a nightmare I have often. Not sure how she can even consider going outside ever. But it-s hard to stay inside and never go anywhere. There-s been stories of men that went through difficult situations that made me want to know them when I was single. Even in my situation of being disabled when I was 25 and the limitations I have many men didn-t want to be with me. I was surprised my husband wanted me and even some of the so called friends he had were telling him not to marry me because I have health problems and that would make him have problems. My husband was angry with them because he loves me. So there are men that can love a woman with imperfections that seem more challenging in life to deal with. But the men really love who the woman is her personality her positive attitude and her love she shows. There are woman near perfect but are absolutely miserable ugly people.
reply

Sunscreen is loaded with toxic chemicals, and if she is coating her skin with it every 2 hrs even when inside, and still getting melonomas, it cant be working.
With all the heavy metals and toxicity in the world, the sun is a purifier.
I wouldnt be suprised if as a child she was exposed to something very toxic, and the sun tries to draw it out.
The skin is also an organ and may need specific nutrients to keep it functioning free from disease.
These are just my thoughts as someone who healed a disease drs were no help with, because I researched and took holistic herbs and supliments.

reply

Why no body loves me the way how i am?
I am pretty, educated, smart, compassionate. I have so much to offer. But the man that i want never wants me. and i start getting older and freaks me out. Because my brain thinks i will never be able to find the man that i want especially if i start getting older amd uglier. i am in such pain with all of my thoughs. And reality is no matter who i am and what i do is not enough for a man.

reply

You never when your with someone if they will always be a whole or half of a body. What we need to think about is that little being inside called spirit and soul. We better make sure we love that part because you never know whether your guaranteed the rest. He definitely has to be looking at the deeper picture and mYbe that's what is most important to him.
reply

Why she said ne more then once, I thought ne would mean sun the subtitle say at the end, but then she said ne when the subtitle say appeared, but sound like a different word when the subs say appear, I'm confused, it also means no in Czech, but yes in Pakistani or ne is a particle in Korean and Chinese right?
reply

She found a man. What does that say about her personality. BEAUTIFUL peeson.
Why cant they graft her lips and do something to fix her face more. Like her right eye? Theres a mass like substace on it. That way she can feel better. And make up? She is beautiful rehardless, but just a thought.

reply

The way all the thirsty women in this comment thread keep swooning over how great her husband is, how they want a man to love them like this, etc etc, are seriously missing the point. SHE is the remarkable one. He-s just decent enough to appreciate that fact.
reply

What they didn't mention in this video is that her husband actually had trust issues and had problems being in a relationship. He chose to marry her because he said he feels safe that his wife would never cheat on him!
reply

it saddens me people can be so cruel. This poor woman has had enough to deal with in life, why on earth would anyone then want to say nasty things to her and put her down.
reply

DANGGG, imagine having a bad skin condition, being called a monster, suffering every day, and YET she lives as the queen she is. That's surprising and incredible.
reply

She rely on her soul that's why she is so positive strong. Keep going dear. Kudos to her men. He is compassionate and able to see her beyond the physical body.
reply

She may have had a career of an actress. Film makers can spend money on special effects with her. And she could make good money. Very tough woman!
reply

I think he gives her the confidence she needs to live a happy life. Not that she NEEDS it, just that it helps her feel beautiful and she deserves it!
reply

Such a wonderful woman, it's what's inside that matters, I wish you both, happiness, stay strong, ignore other people, take care, love to you both,
reply

you only drink - more and more - ( alcohol --- ) in the morning in your breakfast you do it and repeat this everyday you will fine very soon
reply

I am so happy for her that she has found real love! She also inspired me to love myself and look past my flaws. What a remarkable woman.
reply

Beautiful love story and a story of strength and survival. I wish I could find someone like him, I have alot of bad scars on my body.
reply

Why do people try to get approval online? Why? Just live your life, why do you want approval from a whole bunch of strangers online?
reply

You go girl! You rock. Youre strong - - I've some thing with me too and I find you very inspirational. Xoxo
reply

She is a very beautiful and humble woman, I wish her so much love than he haves because she is a good woman.
reply

Her Husband is such a special person who born once in a centuries. All bow down knee to this superhero.
reply

Well if she took that bandage off her face. She mite find true love. They will see her in inner beauty.
reply
Add a review, comment






Other channel videos