The sisters who can't go out in sunlight - born different
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Date: 2023-09-12
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Comments and reviews: 28
vigal79
I stumbled across this. I just knew when I saw this what the diagnosis was going to be. There was a movie here that came out in the United States in the 1990s called children of the dark. It was a made for TV movie. And this was the first time I-d heard of this condition. It was supposed to be based on a true story, and the kids in that movie were treated absolutely horrible. The family ended up moving to California.
And it sounds like this family is either from Australia or New Zealand where they are soaking up the sun most of the time. I live in the states, and I live in a pretty northern state where we do have all four seasons here. But the sun still shines a lot. I give this family a lot of credit for making the best of a really crappy situation. I can-t even imagine.
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I stumbled across this. I just knew when I saw this what the diagnosis was going to be. There was a movie here that came out in the United States in the 1990s called children of the dark. It was a made for TV movie. And this was the first time I-d heard of this condition. It was supposed to be based on a true story, and the kids in that movie were treated absolutely horrible. The family ended up moving to California.
And it sounds like this family is either from Australia or New Zealand where they are soaking up the sun most of the time. I live in the states, and I live in a pretty northern state where we do have all four seasons here. But the sun still shines a lot. I give this family a lot of credit for making the best of a really crappy situation. I can-t even imagine.
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Lona
And there're some people who hate themselves just because they've no perfect nose according to them or thin lips, flat hips and they're willing to change themselves so badly. I've noticed one thing that special people love themselves and accept them more than normal ones. We should love ourselves accept ourselves just the way we're because we're fortunate enough to have a normal life unlike many other people in the world.
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And there're some people who hate themselves just because they've no perfect nose according to them or thin lips, flat hips and they're willing to change themselves so badly. I've noticed one thing that special people love themselves and accept them more than normal ones. We should love ourselves accept ourselves just the way we're because we're fortunate enough to have a normal life unlike many other people in the world.
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Barry
Awwww, I'm glad they're not embarrassed to go out anymore, sod what anyone else thinks! Just keep yourselves safe and if anyone asks just explain to them.
It sounds as though you're Australian, that must be really difficult, perhaps move to a country with less sun? I know you'll still need protection but maybe not quite so much?
Great little family anyway and I'm glad you all have fun together! Best of luck guys.
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Awwww, I'm glad they're not embarrassed to go out anymore, sod what anyone else thinks! Just keep yourselves safe and if anyone asks just explain to them.
It sounds as though you're Australian, that must be really difficult, perhaps move to a country with less sun? I know you'll still need protection but maybe not quite so much?
Great little family anyway and I'm glad you all have fun together! Best of luck guys.
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Stevie
If I was the parent of a child with this condition I would move somewhere with little sunlight, like somewhere in Scandinavia or Ireland. I would not have stayed in such a sunny place as Australia and I can-t see why these parents would. If they moved then their children might be able to have slightly more normal lives.
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If I was the parent of a child with this condition I would move somewhere with little sunlight, like somewhere in Scandinavia or Ireland. I would not have stayed in such a sunny place as Australia and I can-t see why these parents would. If they moved then their children might be able to have slightly more normal lives.
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Katherine
My mother has albinism and has to live similarly. She has had many skin cancers removed (luckily not yet melanoma. We too keep all the windows covered up for her. She also has extreme photosensitivity. I myself am a very fair redhead and have to be rather cautious of the sun as well. I feel for those kids!
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My mother has albinism and has to live similarly. She has had many skin cancers removed (luckily not yet melanoma. We too keep all the windows covered up for her. She also has extreme photosensitivity. I myself am a very fair redhead and have to be rather cautious of the sun as well. I feel for those kids!
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Elena
When I was younger I used to hate the sun because I didn't want to get dark but now these days I spend endless hours in the sun i love the sun now so I can't imagine not being able to sit, lay in the Sun enjoying it! May the lord's blessings always shine upon these precious gift from god!
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When I was younger I used to hate the sun because I didn't want to get dark but now these days I spend endless hours in the sun i love the sun now so I can't imagine not being able to sit, lay in the Sun enjoying it! May the lord's blessings always shine upon these precious gift from god!
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Yuli
May be Australia is not suitable for their skin? Probably their ancestors are from some not so sunny European country. Australian aboriginal people have darker skin, I guess they dont suffer from the sun. So, may be moving to another country would be a good idea
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May be Australia is not suitable for their skin? Probably their ancestors are from some not so sunny European country. Australian aboriginal people have darker skin, I guess they dont suffer from the sun. So, may be moving to another country would be a good idea
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Jessica
What a wonderful family so glad that the girls aren't letting their disabilities stop them from doing anything plus their brother is helpful to them too, I enjoyed watching these shows and learn about them too thanks for sharing these.
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What a wonderful family so glad that the girls aren't letting their disabilities stop them from doing anything plus their brother is helpful to them too, I enjoyed watching these shows and learn about them too thanks for sharing these.
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Jesus
I bless the Lord for keeping their spirits high even with this skin condition of theirs. I am also thankful to Him for protecting their health, even with gear on. I wish them the best, and let it be known that God loves them!
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I bless the Lord for keeping their spirits high even with this skin condition of theirs. I am also thankful to Him for protecting their health, even with gear on. I wish them the best, and let it be known that God loves them!
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Mrs.
Their parents are so sweet and truly amazing humans. Such great parents. Their brother's love for them is so visible. His excitement over them being able to feel free and play with him without gear is absolutely precious.
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Their parents are so sweet and truly amazing humans. Such great parents. Their brother's love for them is so visible. His excitement over them being able to feel free and play with him without gear is absolutely precious.
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Jessica
I cried when they took their gear off, just the sheer joy at the freedom. I-m glad they-ve found ways to still enjoy their lives and in some ways how wonderful the sisters have each other through this.
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I cried when they took their gear off, just the sheer joy at the freedom. I-m glad they-ve found ways to still enjoy their lives and in some ways how wonderful the sisters have each other through this.
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Gemma
Must be so hard to have this condition living in Australia. It-s like rubbing salt in the wound. Living that close to the beach all the time and not being able to enjoy it properly. Poor kiddos.
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Must be so hard to have this condition living in Australia. It-s like rubbing salt in the wound. Living that close to the beach all the time and not being able to enjoy it properly. Poor kiddos.
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sydney
The fact their brother cheered with them when they were able to take gear off is heartwarming. He's really wanting to spend time with them and truly loves them but he also wants them safe
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The fact their brother cheered with them when they were able to take gear off is heartwarming. He's really wanting to spend time with them and truly loves them but he also wants them safe
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Cookiecoocie
In German, children that are diagnosed with XP are called Mondscheinkinder which translates to moonshine children, since in severe cases, they can only go outside at night
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In German, children that are diagnosed with XP are called Mondscheinkinder which translates to moonshine children, since in severe cases, they can only go outside at night
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Denise
Any chance you would relocate? I have heard of other families who have this condition move to less sunny places. I've heard Prince Rupert in BC Canada has low UV UB light
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Any chance you would relocate? I have heard of other families who have this condition move to less sunny places. I've heard Prince Rupert in BC Canada has low UV UB light
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drhermancarter
oh this is cute, how they have such a positive perspective on everything.
If i could build cool helmets, i would make them a few different ones: D for fun
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oh this is cute, how they have such a positive perspective on everything.
If i could build cool helmets, i would make them a few different ones: D for fun
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Patricia
Beautiful girls and happy and they will live a good life as loving and caring family and God has a plan for them keep the Faith and trust in him as he is the healer
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Beautiful girls and happy and they will live a good life as loving and caring family and God has a plan for them keep the Faith and trust in him as he is the healer
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blogs
Sorry to say it, but Australia isn't the best place for these girls to live, if they want to avoid sun light. I'd also be burnt to a crisp if I lived over there.
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Sorry to say it, but Australia isn't the best place for these girls to live, if they want to avoid sun light. I'd also be burnt to a crisp if I lived over there.
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PupRiku
It must be absolutely terrible to not be able to play in the sun as a kid. However it's really great a something as simple as UV meter can really help.
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It must be absolutely terrible to not be able to play in the sun as a kid. However it's really great a something as simple as UV meter can really help.
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CorinnaxSophia
At the beach, they were fully covered. However their backs were -free-. Is this sickness limited to specific areas? (curious question: )
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At the beach, they were fully covered. However their backs were -free-. Is this sickness limited to specific areas? (curious question: )
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My
The pure happiness when they got to take off their gear was wonderful. I-m Super sensitive to the sun and I-m grateful it-s not to this extent.
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The pure happiness when they got to take off their gear was wonderful. I-m Super sensitive to the sun and I-m grateful it-s not to this extent.
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blogs
Australia is one of the worst countries to live in with this condition. I wonder if the family could move to a country with lower UV?
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Australia is one of the worst countries to live in with this condition. I wonder if the family could move to a country with lower UV?
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Authentically
When the girls shouted out that they were finally free, I felt overjoyed. Loads of love for them and their entire family --
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When the girls shouted out that they were finally free, I felt overjoyed. Loads of love for them and their entire family --
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sofii
its terrible that they have this condition but in a way its great that they both have it and can help eachother through rough times
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its terrible that they have this condition but in a way its great that they both have it and can help eachother through rough times
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Malak
Even if your born different you will get a life time to enjoy the world and make a good and great memorie of the life you lived
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Even if your born different you will get a life time to enjoy the world and make a good and great memorie of the life you lived
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н---_Ј---
She's probably missing a layer of her epidermis on her skin, so her skin gets damaged faster than others
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She's probably missing a layer of her epidermis on her skin, so her skin gets damaged faster than others
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fatima's
this make me notice how little o go outside like i when outside to play with my cats for like 20mins?
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this make me notice how little o go outside like i when outside to play with my cats for like 20mins?
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blogs
I have this but I-m a girl in the states. People really judge me and look at me funny for my condition
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I have this but I-m a girl in the states. People really judge me and look at me funny for my condition
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