VehiclesFashionRecipesBlogsHuntTravelsSportFunHandmadeITEducation
Mini-Games
x

x
zakruti.com » Blogs and People » Truly
Bullied because of my rare genetic condition - shake my beauty

Bullied because of my rare genetic condition - shake my beauty

FBTwitterReddit

video description

Rating: 4.0; Vote: 1
AN 18-YEAR-OLD who was bullied over her rare genetic condition - that severely affects her appearance - has silenced her critics by embracing her disorder on social media. Hannah, from Mirfield, UK, was born with Hay-Wells syndrome, also known as Ectodermal Dysplasia, - a condition that has left her hair, teeth, and skin undeveloped. Hannah, who is one of only eight people in the UK and 30 world-wide known to have this disorder, decided to embrace it and is on a journey to become a disabled model. She also started posting videos of her on TikTok and Instagram to raise awareness of her condition and help other people with Hay-Wells syndrome
Date: 2023-09-12

Comments and reviews: 21


I have ectodermal dysplasia and my symptoms are different however I can empathise with the bullying, the misunderstanding, and the frustration around symptom manifestation. My oligodontia in particular has been such an uphill and difficult battle and to see you in front of a camera and showing the world who you are beyond your symptoms is amazing. You are such an amazing and beautiful girl and I hope you know how many people out there support you every step of the way! Keep it up! -
reply

I noticed that most of the time when she's talking she doesn't make eye contact to the camera or others and I kind of resonated with her because I struggle with social anxiety. I think she is really strong, she stopped caring what thought about her and said - This is who I am and so I'm going to love myself. -
reply

Im not shocked they're always bullying you, cuz as i know most of them like western people are bullies: ) just like you people labeled us as peasants, rice country, and third world country on the internet just because we're living in southeast asian: )
reply

Omw she is so beautiful. to me she's perfect to be a model and those who bully her should be ashamed cos I feel she has such an amazing look which to me is unique. being you is you just embrace what God has given you. you are a gift-
reply

I discovered you on your new video Savage (Your hooks) by Kario. You are absolutely amazing and memorizing. I love watching you in it so much. The song is great but you make it a thousand times better. Love you so much. --
reply

I watched a vid where a teenager from Japan questioned why most American teens hate HS, this is why. Many kids are not raised to be respectful despite one's appearance or disabilities and can be cruel beyond measure.
reply

She never got bullied she was a bully herself that-s why people didn-t like her then when she got to highschool she was picked on for being gobby and verbally abusive for no reason which lets be honest is rude
reply

This is why respect does go along way. We-re all fighting our own battles, demons, struggles, etc so there-s just no point in being messed up to other people. Much love from Cali---
reply

I really related when she said she used to take it out on people. We should normalize people not having hair too -
Edit: off topic but I have the same skirt as her at 4: 36

reply

Peope bullying others because of health issues are the lowest of the low. How sad and pathetic can a human being be to insult a person because of their disorder.
reply

Hannah is amazing. I would gladly be friends with her. Just because she looks different doesn't mean she should be treated any different to anyone else. Xxx
reply

i'd love to see one on Polyamorous people. I'm poly and i've always wanted to share my thoughts and experiences so people can understand a bit more, yknow?
reply

I feel like kicking the teeth in on anybody making hateful comments. Pathetic pieces of trash making fun of this poor girl. May karma wish them well.
reply

Ok but she-s so beautiful, from someone who works in Photography and Design, I would love to shoot with her, she-s so unique and stunning!
reply

She's gorgeous and i have a feeling she's a bit of a kawaii chick and that's really cool. However, her Mum is a monstrosity!
reply

If they are picking on you they are unhappy with themselves or their idiots. Your cute and your pictures are really good!
reply

She has great fashion sense, I would absolutely encourage her to get into modeling! Also adore her tiktoks lol
reply

So schools are STILL letting children get away with bullying like why is this still a issue? That's ridiculous.
reply

She's beautiful I think she should try lace wigs in blond or brow curly or straight short it doesn't matter
reply

Obviously non of you have ever met her, because she definitely isn-t the -angel- you think she is lmao
reply

She is so incredibly beautiful its shocking and I'm glad she can see it.
You shine on, you baddie -

reply
Add a review, comment






Other channel videos