The 'karate' teen with butterfly skin - born different
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Date: 2023-09-12
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Comments and reviews: 21
breebrat56
I-m a Tang Soo Do Student in my 3rd year & final belt rank before black belt -. I have physical difficulties that make some days harder & limits what I can do in class. It-s not impossible. I just have to do things a bit differently and modify so I can continue to learn and grow as a person.
I get what he-s going thru just a little bit.
His school is like mine with the - you can do it! - attitude, support, welcoming to everyone, , teaching everyone to defend themselves, growing character, learning respect for everyone, & being surrounded by the best community you could ask for! -
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I-m a Tang Soo Do Student in my 3rd year & final belt rank before black belt -. I have physical difficulties that make some days harder & limits what I can do in class. It-s not impossible. I just have to do things a bit differently and modify so I can continue to learn and grow as a person.
I get what he-s going thru just a little bit.
His school is like mine with the - you can do it! - attitude, support, welcoming to everyone, , teaching everyone to defend themselves, growing character, learning respect for everyone, & being surrounded by the best community you could ask for! -
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Joe
I was wincing in pain when I was watching this (not out of cruelty) and I was amazed and impressed at how his karate sensei has modified the curriculum to help suit his condition. I myself am an orange, black stripe (though I am going up for 8th kyu in two weeks) in Kyokushin karate and my respect for both Fazeel and his sensei are enormous.
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I was wincing in pain when I was watching this (not out of cruelty) and I was amazed and impressed at how his karate sensei has modified the curriculum to help suit his condition. I myself am an orange, black stripe (though I am going up for 8th kyu in two weeks) in Kyokushin karate and my respect for both Fazeel and his sensei are enormous.
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GABBYadjust
Watch documentary about marrow bone transplantation taken from close relative. I can't find link, but I watched on yt recently. There is a cure for kids with EB. They have to do hemo first, so it's down side and from 13 kids doing treatment, 2 died and 10 was cured with very good and fast results.
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Watch documentary about marrow bone transplantation taken from close relative. I can't find link, but I watched on yt recently. There is a cure for kids with EB. They have to do hemo first, so it's down side and from 13 kids doing treatment, 2 died and 10 was cured with very good and fast results.
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My
I have seen videos of a lot of kids and grown-ups, struggling with E B, and it just looks like the most absolute painful disease that you could ever imagine. He-s my hero. - And his mom to because I-m a mom and I can-t imagine having to watch my child go through that every day.
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I have seen videos of a lot of kids and grown-ups, struggling with E B, and it just looks like the most absolute painful disease that you could ever imagine. He-s my hero. - And his mom to because I-m a mom and I can-t imagine having to watch my child go through that every day.
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Mark
Oh my goodness - so mature and so eloquent. Puts my worries about a bit of acne into perspective-
Problem is with less common illnesses, they don-t get the attention or the investment in research that they so deserve. Fingers crossed things starts a change-
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Oh my goodness - so mature and so eloquent. Puts my worries about a bit of acne into perspective-
Problem is with less common illnesses, they don-t get the attention or the investment in research that they so deserve. Fingers crossed things starts a change-
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blogs
Ha Ha Ha Fazeel. Now you're fifthteen and you told your naysayers -Screw you- hahaha oh my. that as a baby you had no chance in life. Dammm Fazeel. look at you. A fighter. Wonderful. Oh Fazeel. Wish you the best. SUPERSTAR. ------
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Ha Ha Ha Fazeel. Now you're fifthteen and you told your naysayers -Screw you- hahaha oh my. that as a baby you had no chance in life. Dammm Fazeel. look at you. A fighter. Wonderful. Oh Fazeel. Wish you the best. SUPERSTAR. ------
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DSN
-no offense but I'm intrigued whether his parent's r very closely related to each other since he is a mus! im, cousin or very close related marriages r allowed in it n result in a lot of problems in children born to such parents -
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-no offense but I'm intrigued whether his parent's r very closely related to each other since he is a mus! im, cousin or very close related marriages r allowed in it n result in a lot of problems in children born to such parents -
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Apryl
What an amazing young man. He is so strong and determined to never give up. we could all learn alot from him. I think he has such a wonderful family and Sensei. he is cared for and loved. Bless all of them.
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What an amazing young man. He is so strong and determined to never give up. we could all learn alot from him. I think he has such a wonderful family and Sensei. he is cared for and loved. Bless all of them.
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DEBRA
You are an inspiration to us all Fazeel. Thank you to you, and Truly, for helping to raise awareness of the painful genetic skin condition, EB, also known as 'Butterfly Skin'. -
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You are an inspiration to us all Fazeel. Thank you to you, and Truly, for helping to raise awareness of the painful genetic skin condition, EB, also known as 'Butterfly Skin'. -
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Susanna
It makes no sense do karate cause if someone try to attack or something ur little body can't take anything at all. just exercise and rest well I think karate is his thing so
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It makes no sense do karate cause if someone try to attack or something ur little body can't take anything at all. just exercise and rest well I think karate is his thing so
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WebVMan
I guess I can-t complain about having 8 layers of skin. Sure, it can be flaky and painful if removed, but takes far more friction to come off and I don-t get infections.
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I guess I can-t complain about having 8 layers of skin. Sure, it can be flaky and painful if removed, but takes far more friction to come off and I don-t get infections.
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blogs
Wow, what a kid. Such an inspirational soul, such a fighter. Pheeww made me tear up watching and listening to his story. Hope and prayers for a cure for him
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Wow, what a kid. Such an inspirational soul, such a fighter. Pheeww made me tear up watching and listening to his story. Hope and prayers for a cure for him
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Mariana
Somethings happen to me for I see what I need give valorize. With you I dont know what a happened but I will try help with studies about your problem.
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Somethings happen to me for I see what I need give valorize. With you I dont know what a happened but I will try help with studies about your problem.
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Samurai
I can't imagine what he has to go through but I'm glad he's got caring friends and a loving family I feel like he would be a great friend
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I can't imagine what he has to go through but I'm glad he's got caring friends and a loving family I feel like he would be a great friend
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Terence
Damn that's messed up. Hope they do find a cure for him. I couldn't imagine being in pain from eating or just sleeping
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Damn that's messed up. Hope they do find a cure for him. I couldn't imagine being in pain from eating or just sleeping
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Pink
Of course karate would be appealing to him, he-s the toughest guy I-ve seen. He-s a true fighter, keep fighting kid -
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Of course karate would be appealing to him, he-s the toughest guy I-ve seen. He-s a true fighter, keep fighting kid -
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Kate
What a beautiful family and a remarkable young man! I love his personality. - Wish them all the best in the future. -
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What a beautiful family and a remarkable young man! I love his personality. - Wish them all the best in the future. -
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Eunae
Instead of wallowing in self-pity, this boy has an extremely positive attitude. I'd definitely say he's #winning!
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Instead of wallowing in self-pity, this boy has an extremely positive attitude. I'd definitely say he's #winning!
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IceMaidenxx3
Fazeel you are an absolute inspiration. Your eloquence and determination are so uplifting to witness ---
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Fazeel you are an absolute inspiration. Your eloquence and determination are so uplifting to witness ---
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Cherry
He's a beautiful boy! I like that he never gives up and he has a wonderful family, which love him and support.
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He's a beautiful boy! I like that he never gives up and he has a wonderful family, which love him and support.
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Hannah
Praying for him, for relief, for a cure, for continued strength and peace for as long as he has neither.
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Praying for him, for relief, for a cure, for continued strength and peace for as long as he has neither.
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