Tiny 31-inch boy with primordial dwarfism defies doctors - born different
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Date: 2023-09-12
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Comments and reviews: 12
goodthingsdohappen
It's wonderful that Jonathan and his parents have Walking With Giants in their corner and as support system. It is so helpful to both children and parents of such special and unique primordial dwarf conditions so they don't feel alone in the world. Sadly, in the US, we have a discriminatory primordial group that picks and chooses who they accept into their closed group, Potentials Foundation. My two primordial dwarf daughters were rejected from Potentials Foundation over 10 years ago due to their discriminatory practices. Shameful and shame on them. One of my daughters has since passed, never being able to be accepted into PF and therefore unable to be a part of a minute group of unique and rare PD young ones.
As Dr Bober said, it's great that support groups have been formed. He too, Dr Bober, stated he was surprised that Potential Foundation rejected my daughters; Kristy, 18 lbs. 32- tall and Amber 36 lbs. and 43- tall.
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It's wonderful that Jonathan and his parents have Walking With Giants in their corner and as support system. It is so helpful to both children and parents of such special and unique primordial dwarf conditions so they don't feel alone in the world. Sadly, in the US, we have a discriminatory primordial group that picks and chooses who they accept into their closed group, Potentials Foundation. My two primordial dwarf daughters were rejected from Potentials Foundation over 10 years ago due to their discriminatory practices. Shameful and shame on them. One of my daughters has since passed, never being able to be accepted into PF and therefore unable to be a part of a minute group of unique and rare PD young ones.
As Dr Bober said, it's great that support groups have been formed. He too, Dr Bober, stated he was surprised that Potential Foundation rejected my daughters; Kristy, 18 lbs. 32- tall and Amber 36 lbs. and 43- tall.
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evonline
Jonathan is very cute. Such a sweet smile. I am sorry there is so much work for the parents to do - keeping up with medications must be a lot of work. If I was a neighbor I would offer to take a block of time during the day to give parents free time.
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Jonathan is very cute. Such a sweet smile. I am sorry there is so much work for the parents to do - keeping up with medications must be a lot of work. If I was a neighbor I would offer to take a block of time during the day to give parents free time.
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Kevin
As a father with a child with MOPD 1 You must not treat him
As a 1 year old. I am only tryin to help. He will develop quicker if we treat our children as close to the age they are. The pacifier is a NISH NISH
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As a father with a child with MOPD 1 You must not treat him
As a 1 year old. I am only tryin to help. He will develop quicker if we treat our children as close to the age they are. The pacifier is a NISH NISH
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Mesc
Jonathan is amazing the way he is! -He only exists one time like everybody on this planet-I wish Jonathan and the whole family a lot of strength and hope--and i really like the tattoo-#sunriseavenue#samuhaber--
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Jonathan is amazing the way he is! -He only exists one time like everybody on this planet-I wish Jonathan and the whole family a lot of strength and hope--and i really like the tattoo-#sunriseavenue#samuhaber--
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Kevin
Regardless of him having a disability I believe his parents are doing him a major disservice by treating him like a little baby. He shouldn-t be using a pacifier or be in
A crib
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Regardless of him having a disability I believe his parents are doing him a major disservice by treating him like a little baby. He shouldn-t be using a pacifier or be in
A crib
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Aidan
he is absolutely precious! he has incredible parents and doctors. i wish this family the best, i hope in 20 years we get an update about Johnathan-s college graduation -
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he is absolutely precious! he has incredible parents and doctors. i wish this family the best, i hope in 20 years we get an update about Johnathan-s college graduation -
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Jonny
He is such an amazing little boy and has the most amazing loving parents. Bless that little angel and his family. Here's to many many years to that dear sweet boy -
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He is such an amazing little boy and has the most amazing loving parents. Bless that little angel and his family. Here's to many many years to that dear sweet boy -
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sara
He is so cute! He has a really good dad too! Moms are moms but it takes a special guy to be a really good dad. Staying optimistic helps more than people know!
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He is so cute! He has a really good dad too! Moms are moms but it takes a special guy to be a really good dad. Staying optimistic helps more than people know!
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Eunae
Good thing he lives in Germany. In some countries he would have been considered to be under the influence of evil spirits!
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Good thing he lives in Germany. In some countries he would have been considered to be under the influence of evil spirits!
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Tay
My bestfriend son Has it an hes such awesome little boy. We was just talkin about other kids with it and i found this!
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My bestfriend son Has it an hes such awesome little boy. We was just talkin about other kids with it and i found this!
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Ally
Omg he is the cutest little guy i ever seen! I hope you guys have the best time with your wonderful baby boy!
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Omg he is the cutest little guy i ever seen! I hope you guys have the best time with your wonderful baby boy!
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Sarah
Jon is perfect and handsome and remarkable young man a credit to his parents keep up with the good work
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Jon is perfect and handsome and remarkable young man a credit to his parents keep up with the good work
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