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zakruti.com » Blogs and People » Truly
The only girl in the world with 'benjamin button' disease - born different

The only girl in the world with 'benjamin button' disease - born different

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Rating: 4.0; Vote: 1
A LITTLE girl from Leicester is the only person in the world to be diagnosed with an incredibly rare -Benjamin Button- disease. Isla Kilpatrick-Screaton, 4, was born with Mandibuloacral Dysplasia, which is a rapid ageing condition, but doctors discovered she-s the only person with her particular mutation. The condition causes premature ageing of her major organs, including her kidneys and heart, and gives her an appearance much older than her years. Isla-s mum Stacey told Truly: -The mutation [doctors] found, they-d never seen before, they were unable to give us any answers. We have no one we can compare Isla with. - The family try their best to live every day to the fullest, and after sharing Isla-s life on TikTok, they quickly found fans from around the world. Stacey added: -When we first started TikTok, because we were talking about premature ageing, they went with the -Benjamin Button-. It definitely drew people-s attention to it. - The family have set up a GoFundMe to help fund Isla-s medical expenses and family holidays to create more fun memories together. Stacey said: -I try my hardest to envision the future and Isla always being in it. I hope she gives me mischief for many years to come
Date: 2023-09-12

Comments and reviews: 14


It is heartbreaking, how the mother tries incredibly hard to give her as much as possible love and good vibes and confidence. Bless the family and specially Isla!
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She's such a sweet and adorable kid! I wish nothing but the best for her. She's very blessed to have such a wonderful family, and I have nothing but love for them.
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Hate comment? Like whattttt? Who! How! What a sick individual to leave any type of hate comment on this adorable little girls videos: you need help
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She's an angel and obviously very loved. She's intelligent and extremely connected. These parents deserve love and support and I hope they have it.
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The parents are just wonderful, you can just tell by how happy the girls are. I wish them all the best, lots of love from Nairobi, Kenya -
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A Princess Warrior of Love and Life! Beautiful Treasure! You make everything better and greater! Thank you for you and love you!
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Stop calling these types of diseases Benjamin button he got younger and more vital these people are rapidly aging. Not even close
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Everything happens for a reason. This child was born to bring hope and happiness to every person in every path she crosses.
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Shes absolutely adorable! And I wish y-all the best seriously she-s a gift I hope
It gets easier for you guys

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She, is so precious and so smart for her age you can tell: what a blessing she was for your family! She is amazing
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Isla is such a sweetheart. Watching her made me smile. Wishing her a a very full life. With love from Australia.
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And when she reached out and hugged her mom to console her, what a beautiful child, with her beautiful dimple
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As a mother of four I can say she is a creature of incredible beauty and an absolutely splendid gift from God
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The only known girl that has survived and been revealed publicly you mean! Not the only one!
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