The 30-year-old trapped in a toddler's body - born different
video description
Date: 2023-09-12
Related videos
Comments and reviews: 21
blogs
I understand how she feels when she said, other's are shocked, I wish people would see her condition and I could take her out without people asking what happened to her, her age and why she is like this,
My daughter has an opposite problem growing too fast, much bigger than average with moderate autism that is linked to her rare genetic condition, I am constantly bombarded with questions from every new person we meet aswell as strangers, why is she acting like that as they think she's much older and not as forward as toddler's her age anyway then shocked to find out her age and asking why she's her size these questions and reactions are constant, I get accused of over feeding and giving unhealthy foods, in reality she eats very healthy but small amounts and is very active but she produces too much growth hormone so she'll grow like this no matter what I feed her, and when I say she's autistic people say she's too young to know and insist I am making up excuses for her behaviour although medical professionals have been involved and she has neurological problems because her head grew too fast so her brain hadn't developed properly in some cases they can diagnose very young, she's average size of 2 to 3 years older than her age but very young and I always had people calling her giant, saying she's not a baby, treating other's as if they were much younger knowing there older just because of her size, expecting her to act older just because she looks it, saying she shouldn't be in pushchair or nappies when many who are older still are, insisting she get of the toddler swing to let smaller ones on that are older, maya stopped growing at age 3 her head seems big for age 3 just like my daughter's head is big for her age I think maya has something wrong with her brain as I am told by pediatricians my daughter has because head big for age, neurological problems affect anything including growth it can make you grow too quickly but it can also cause an opposite problem dwarfism, along side developmental symptoms which if severe some aren't able to talk, go to toilet, feed themselves, maya struggles to go toilet and intestines narrow, autistic often suffer constipation and digestion problems, she need muscle to be able to walk growth hormone affects all body tissue including muscle mass, most rare genetic syndromes cause low muscle mass or weak muscles especially in the lower part of the body the legs, the main thing is your love for maya is clearly very strong, you're doing what you can to get her the help she need's, having to carry her around all of the time handfeed bath change her forever be a full time round the clock carer it can be exhausting, it can be emotional never hearing her speak not knowing what she is thinking or feeling inside being unable to do anything about her condition so she can have normal life but that's out of your control, she's surrounded by people who love her and you carry on doing all you can to give her the happiest life possible and she will be grateful for that.
reply
I understand how she feels when she said, other's are shocked, I wish people would see her condition and I could take her out without people asking what happened to her, her age and why she is like this,
My daughter has an opposite problem growing too fast, much bigger than average with moderate autism that is linked to her rare genetic condition, I am constantly bombarded with questions from every new person we meet aswell as strangers, why is she acting like that as they think she's much older and not as forward as toddler's her age anyway then shocked to find out her age and asking why she's her size these questions and reactions are constant, I get accused of over feeding and giving unhealthy foods, in reality she eats very healthy but small amounts and is very active but she produces too much growth hormone so she'll grow like this no matter what I feed her, and when I say she's autistic people say she's too young to know and insist I am making up excuses for her behaviour although medical professionals have been involved and she has neurological problems because her head grew too fast so her brain hadn't developed properly in some cases they can diagnose very young, she's average size of 2 to 3 years older than her age but very young and I always had people calling her giant, saying she's not a baby, treating other's as if they were much younger knowing there older just because of her size, expecting her to act older just because she looks it, saying she shouldn't be in pushchair or nappies when many who are older still are, insisting she get of the toddler swing to let smaller ones on that are older, maya stopped growing at age 3 her head seems big for age 3 just like my daughter's head is big for her age I think maya has something wrong with her brain as I am told by pediatricians my daughter has because head big for age, neurological problems affect anything including growth it can make you grow too quickly but it can also cause an opposite problem dwarfism, along side developmental symptoms which if severe some aren't able to talk, go to toilet, feed themselves, maya struggles to go toilet and intestines narrow, autistic often suffer constipation and digestion problems, she need muscle to be able to walk growth hormone affects all body tissue including muscle mass, most rare genetic syndromes cause low muscle mass or weak muscles especially in the lower part of the body the legs, the main thing is your love for maya is clearly very strong, you're doing what you can to get her the help she need's, having to carry her around all of the time handfeed bath change her forever be a full time round the clock carer it can be exhausting, it can be emotional never hearing her speak not knowing what she is thinking or feeling inside being unable to do anything about her condition so she can have normal life but that's out of your control, she's surrounded by people who love her and you carry on doing all you can to give her the happiest life possible and she will be grateful for that.
reply
NorthGaReptile
Two things always pop into my head when I see a story like Maya and her family's.
1. I always wish there's a way to be genuinely curious about Maya's condition without being perceived as rude or judgemental. Where is the line between asking questions respectfully and being invasive?
2. I sincerely hope that she doesn't have the brain capacity of a 30 year old adult. Her mind forever stuck at being a two year old is one thing, but having the mind of an adult? I couldn't imagine having thoughts, dreams, aspirations, or ideas without having the ability to express them to my friends and family because my own body literally won't let me. The possibility that Maya could be screaming inside her own head while her mother and sister continue to hand feed and speak to her as if she's a toddler without -truly- knowing what's going on in her mind breaks my heart.
reply
Two things always pop into my head when I see a story like Maya and her family's.
1. I always wish there's a way to be genuinely curious about Maya's condition without being perceived as rude or judgemental. Where is the line between asking questions respectfully and being invasive?
2. I sincerely hope that she doesn't have the brain capacity of a 30 year old adult. Her mind forever stuck at being a two year old is one thing, but having the mind of an adult? I couldn't imagine having thoughts, dreams, aspirations, or ideas without having the ability to express them to my friends and family because my own body literally won't let me. The possibility that Maya could be screaming inside her own head while her mother and sister continue to hand feed and speak to her as if she's a toddler without -truly- knowing what's going on in her mind breaks my heart.
reply
Margaret
Something doesn't sit right me concerning her family -not allowing the surgery- - Maya is not a child and should have been given the opportunity to have an input, even if that meant communicating with her in a strategic manneer so she could at least signal her input. And the doctor approaching her as though she is a child at the end of the appointment and her sister encouraging it. Shes NOT A FKN CHILD. I feel sorry for this poor soul, i really do.
reply
Something doesn't sit right me concerning her family -not allowing the surgery- - Maya is not a child and should have been given the opportunity to have an input, even if that meant communicating with her in a strategic manneer so she could at least signal her input. And the doctor approaching her as though she is a child at the end of the appointment and her sister encouraging it. Shes NOT A FKN CHILD. I feel sorry for this poor soul, i really do.
reply
Nellie
Poor Maya. She's got all of the very distinct features of congenital iodine deficiency syndrome (which used to be known as cretinism, usually caused by iodine deficiency in the mother during pregnancy. It's been virtually eliminated in the developed countries as it's so easy to screen for and treat. We really take things for granted don't we?
reply
Poor Maya. She's got all of the very distinct features of congenital iodine deficiency syndrome (which used to be known as cretinism, usually caused by iodine deficiency in the mother during pregnancy. It's been virtually eliminated in the developed countries as it's so easy to screen for and treat. We really take things for granted don't we?
reply
Jeri
She looks like she has congenital hypothyroidism. Her droopy and puffy face, short stature, distended abdomen, and constipation are all signs. Notice how slow her movements are. The solution is thyroid pills. very inexpensive. If she had been treated in time she could have been normal. Thyroid hormone would still be beneficial at this point.
reply
She looks like she has congenital hypothyroidism. Her droopy and puffy face, short stature, distended abdomen, and constipation are all signs. Notice how slow her movements are. The solution is thyroid pills. very inexpensive. If she had been treated in time she could have been normal. Thyroid hormone would still be beneficial at this point.
reply
aresef
There was a case kind of like this here in Maryland. A girl stopped growing around the time she was four or five and remained frozen at the size of a 6-month-old baby. Her mental age wasn-t much older than that, though her bones seemed like those of a 10-year-old. She lived to the age of 20. Doctors still have no idea what causes this.
reply
There was a case kind of like this here in Maryland. A girl stopped growing around the time she was four or five and remained frozen at the size of a 6-month-old baby. Her mental age wasn-t much older than that, though her bones seemed like those of a 10-year-old. She lived to the age of 20. Doctors still have no idea what causes this.
reply
SoCalJellybean
Her condition is strikingly similar to Brooke Greenberg, who was 20 years old when she died in 2013.
She was from Baltimore, MD and doctors were never able to determine what she had that caused her to retain the body and mind of a young toddler, simply calling it Syndrome X.
reply
Her condition is strikingly similar to Brooke Greenberg, who was 20 years old when she died in 2013.
She was from Baltimore, MD and doctors were never able to determine what she had that caused her to retain the body and mind of a young toddler, simply calling it Syndrome X.
reply
Tre
That's so sad that the doctor is all they have to go to. I'm sure she's fine for typically developing children with typically issues but clearly she is not suitable for specialized cases. Hence why we have referrals yo specialized care in moat developed countries.
reply
That's so sad that the doctor is all they have to go to. I'm sure she's fine for typically developing children with typically issues but clearly she is not suitable for specialized cases. Hence why we have referrals yo specialized care in moat developed countries.
reply
Alexis
Wow, poor woman! What a life! She really does look like a cute toddler, but even toddlers have ways of communicating and letting it be known when they are hungry. This woman's situation is far worse. I'm glad she has a super supportive family!
reply
Wow, poor woman! What a life! She really does look like a cute toddler, but even toddlers have ways of communicating and letting it be known when they are hungry. This woman's situation is far worse. I'm glad she has a super supportive family!
reply
Cecilia
Someone should donate them a stroller to help get Maya around esp for Mayas mother. Something nice and big to hold stuff underneath, block her from the sun/rain and big enough to hold her and push her around easily.
reply
Someone should donate them a stroller to help get Maya around esp for Mayas mother. Something nice and big to hold stuff underneath, block her from the sun/rain and big enough to hold her and push her around easily.
reply
Sherrie
It-s wonderful that the family loves her so much and takes care of her but on the other hand, if they would-ve went ahead with the surgery she probably would be able to walk and maybe even more. Very sad!
reply
It-s wonderful that the family loves her so much and takes care of her but on the other hand, if they would-ve went ahead with the surgery she probably would be able to walk and maybe even more. Very sad!
reply
Pamela
Folks, she's one of the purest soul ever live on planet earth. May be she have disability but she has a loving and caring family so don't feel pity for her, someday she will fly high.
reply
Folks, she's one of the purest soul ever live on planet earth. May be she have disability but she has a loving and caring family so don't feel pity for her, someday she will fly high.
reply
Thomas
It-s like some parts of her body grew to adult proportions, her neck and torso and stomach area, even her face aged, but the rest of her is like a hormone didn-t develop properly
reply
It-s like some parts of her body grew to adult proportions, her neck and torso and stomach area, even her face aged, but the rest of her is like a hormone didn-t develop properly
reply
Eunae
Indonesia? I'm glad they accepted her for what she is! A lot of people in that part of the world would have thought she had been cursed since she couldn't work or have a baby!
reply
Indonesia? I'm glad they accepted her for what she is! A lot of people in that part of the world would have thought she had been cursed since she couldn't work or have a baby!
reply
Ila
Theirs is: we dont send anybody, we focus on our own, please remove yourself ( a 2 to 1 practice non reproduction desc ) if anybody understands this message me.
reply
Theirs is: we dont send anybody, we focus on our own, please remove yourself ( a 2 to 1 practice non reproduction desc ) if anybody understands this message me.
reply
tiina
------
--What a beautiful loving family- Together they all taking care with love her. I think we can learn something about that. ------------
reply
------
--What a beautiful loving family- Together they all taking care with love her. I think we can learn something about that. ------------
reply
Andrew
I have the opposite problem. I keep telling my wife that I'm a toddler in a 30 year old body, but she doesn't treat me any differently.
reply
I have the opposite problem. I keep telling my wife that I'm a toddler in a 30 year old body, but she doesn't treat me any differently.
reply
Godfrey
Wow. Very interesting and quite unusual. So many questions I have about other aspects of her development, or lack there of.
reply
Wow. Very interesting and quite unusual. So many questions I have about other aspects of her development, or lack there of.
reply
Winarnie
Sehat terus ibu dan kakak, agar terus bisa mengasuh Maya, semoga terlimpahkan Rizky dan Mayapun sehat selalu
reply
Sehat terus ibu dan kakak, agar terus bisa mengasuh Maya, semoga terlimpahkan Rizky dan Mayapun sehat selalu
reply
Dneli
So what happened nothing-! She needs a specialist and tests poor lady to feel helpless if she can feel it
reply
So what happened nothing-! She needs a specialist and tests poor lady to feel helpless if she can feel it
reply
Marilyn
How do they help her defecate? Poor little child. and yet she is surrounded by LOVE. So very touching.
reply
How do they help her defecate? Poor little child. and yet she is surrounded by LOVE. So very touching.
reply
Add a review, comment
Other channel videos
