My daily battle with 'butterfly skin' - born different
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Date: 2023-09-12
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Comments and reviews: 9
Graham
I watched a documentary about butterfly skin and it was inspiring and heartbreaking at the same time. Was about a young boy. Blisters over whole body, skin peels and bleeds at slightest touch and the poor bugger was in constant pain. I hope that more can be done to help sufferers, in the near future.
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I watched a documentary about butterfly skin and it was inspiring and heartbreaking at the same time. Was about a young boy. Blisters over whole body, skin peels and bleeds at slightest touch and the poor bugger was in constant pain. I hope that more can be done to help sufferers, in the near future.
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givegoodgrace
Ariana, you are a blessing! it can not be easy to manage your condition but you approach each day with positivity and resilience. You have such lovely eyes and your makeup skills are -your mum must be very proud x
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Ariana, you are a blessing! it can not be easy to manage your condition but you approach each day with positivity and resilience. You have such lovely eyes and your makeup skills are -your mum must be very proud x
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Aaron
Good for her and man can't even imagine how much pain she is in everyday and when she was a baby what her parents must have went through it's sad. Glad she found her voice
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Good for her and man can't even imagine how much pain she is in everyday and when she was a baby what her parents must have went through it's sad. Glad she found her voice
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SHELLYS
I would love so much to be friends with ariana, I know what it's like to be lonely and as a momma I would love to be friends with her momma to and be support for them
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I would love so much to be friends with ariana, I know what it's like to be lonely and as a momma I would love to be friends with her momma to and be support for them
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OhNoYouDidn't
Finally someone worth my time some who has truly a daily battle yet is still such a nice person. Someone young ones should really look up to and respect.
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Finally someone worth my time some who has truly a daily battle yet is still such a nice person. Someone young ones should really look up to and respect.
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MO
I'm so sorry re: your affliction. I live in a very rural area and would gladly switch positions. Please stay positive! You are beautiful.
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I'm so sorry re: your affliction. I live in a very rural area and would gladly switch positions. Please stay positive! You are beautiful.
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David
-ABIOLA: my grand mother's told me a lot by saying: a day will come when many people will just waste their time reading my comment-
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-ABIOLA: my grand mother's told me a lot by saying: a day will come when many people will just waste their time reading my comment-
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Sthembiso
I got severe eczema and I can't live a normal life, you are strong, having a skin condition is tragic
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I got severe eczema and I can't live a normal life, you are strong, having a skin condition is tragic
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Amy
At least her condition isn't super severe, I've seen real bad cases of EB. Still looks very painful tho: (
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At least her condition isn't super severe, I've seen real bad cases of EB. Still looks very painful tho: (
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