Defying The Odds Without Ears & Legs - BORN DIFFERENT
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Date: 2024-08-25
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Comments and reviews: 20
kirstenornelas881
What a sweet kiddo. She is obviously very determined and strong willed. Our oldest has three genetic conditions that we were unable to even get any signs of anything being amiss during pregnancy outside of not having a pretty severe case of HG. Then going into premature labor and an emergency c section at 28 weeks. It was during the c section that some of the condition became apparent though we weren’t given any DX until age 14 for the gasteroparesis, ehlers danlos was suspected from the age of a just shy of one year old but not confirmed due to inability to afford the geneticist due to not having one anywhere close to where we live as well as instance won’t cover the genetic testing to find out which if the 12 subtypes of EDS she has though we are able to know that she does have one of the three most severe forms due to the damage to all of the internal organs/the heart/lung involvement with recent DX of POTS as well as connective tissue damage throughout her body on the scans. We are trying to finally find a geneticist currently who will take her insurance as well as trying to get into a gastro to have the GJ tube placed finally as after all these years being able to keep weight stable and bloodwork looking good, now there’s a struggle to keep the weight on as well as deficiencies that are showing up in the bloodwork now and you can good luck and keep up the good work. You have a great kid.
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What a sweet kiddo. She is obviously very determined and strong willed. Our oldest has three genetic conditions that we were unable to even get any signs of anything being amiss during pregnancy outside of not having a pretty severe case of HG. Then going into premature labor and an emergency c section at 28 weeks. It was during the c section that some of the condition became apparent though we weren’t given any DX until age 14 for the gasteroparesis, ehlers danlos was suspected from the age of a just shy of one year old but not confirmed due to inability to afford the geneticist due to not having one anywhere close to where we live as well as instance won’t cover the genetic testing to find out which if the 12 subtypes of EDS she has though we are able to know that she does have one of the three most severe forms due to the damage to all of the internal organs/the heart/lung involvement with recent DX of POTS as well as connective tissue damage throughout her body on the scans. We are trying to finally find a geneticist currently who will take her insurance as well as trying to get into a gastro to have the GJ tube placed finally as after all these years being able to keep weight stable and bloodwork looking good, now there’s a struggle to keep the weight on as well as deficiencies that are showing up in the bloodwork now and you can good luck and keep up the good work. You have a great kid.
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truly
People are so cruel. There are literally thousands and thousands of people in this world who were born without certain limbs, who were born with special needs and just born different. That doesn’t mean they don’t deserve to be here on this earth and having a life. These parents are amazing parents! They care for her, they love her, they provide for her. They’d be bad parents if they didn’t do all of these things. She’s gonna grow up and be just as beautiful and smart as anyone else in this world
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People are so cruel. There are literally thousands and thousands of people in this world who were born without certain limbs, who were born with special needs and just born different. That doesn’t mean they don’t deserve to be here on this earth and having a life. These parents are amazing parents! They care for her, they love her, they provide for her. They’d be bad parents if they didn’t do all of these things. She’s gonna grow up and be just as beautiful and smart as anyone else in this world
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GenaF
Whilst all this therapy will definitely help her, I very much doubt she could ever be independent. It's ok whilst she is little and weeble-like but problems will arise as she gets bigger. Seeing her mother trying to teach her to get her up onto that stool. Maya has nothing on her lower half to move to help give her balance or a partial leg to swing and give her some lift. It's extremely sad.
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Whilst all this therapy will definitely help her, I very much doubt she could ever be independent. It's ok whilst she is little and weeble-like but problems will arise as she gets bigger. Seeing her mother trying to teach her to get her up onto that stool. Maya has nothing on her lower half to move to help give her balance or a partial leg to swing and give her some lift. It's extremely sad.
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Bdear1
What an amazing family, though her sister might teach her the most, judging on the way she looked at her big sister. Social media seems an amazing way to inform, & those of us w/rare disorders, it's possible to find new ideas, & get support from others like them. Hope the surgery goes well. I'm a paragraph writer but all positive here.
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What an amazing family, though her sister might teach her the most, judging on the way she looked at her big sister. Social media seems an amazing way to inform, & those of us w/rare disorders, it's possible to find new ideas, & get support from others like them. Hope the surgery goes well. I'm a paragraph writer but all positive here.
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sugar-free-2centz
With the state of prenatal care available today, it is unthinkably selfish and cruel to willfully bring a pregnancy like that to term. Termination is the only moral choice, when you know the baby you're carrying has such severe defects.
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With the state of prenatal care available today, it is unthinkably selfish and cruel to willfully bring a pregnancy like that to term. Termination is the only moral choice, when you know the baby you're carrying has such severe defects.
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Flippe8970
I can’t see the full shirtperhaps, you should add No limits to the shirt. Because, God has a plan for you allespecially, your beautiful daughter. And His plans are GOOD! Therefore, No limits to what your daughter can and will do in her life.
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I can’t see the full shirtperhaps, you should add No limits to the shirt. Because, God has a plan for you allespecially, your beautiful daughter. And His plans are GOOD! Therefore, No limits to what your daughter can and will do in her life.
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mariarivera4197
You folks are great and the baby is adorable. Just a question. Please pardon my ignorance. So she doesn’t have ear lobes but does she have ear canals Like I said I’m not a doctor so pardon my ignorance.
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You folks are great and the baby is adorable. Just a question. Please pardon my ignorance. So she doesn’t have ear lobes but does she have ear canals Like I said I’m not a doctor so pardon my ignorance.
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cmykimberly
Everyone please help this little girl and her family if you can, their gofund me is in the description.
60, 000 people have watched this video, if we all just gave $1 it would mean the world of difference.
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Everyone please help this little girl and her family if you can, their gofund me is in the description.
60, 000 people have watched this video, if we all just gave $1 it would mean the world of difference.
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McrChemical
Wow, what an abomination. Thanks for showcasing this freak on your show. I'd pay 50 bucks to see this creature in person, behind a glass panel of course, don't want to contract whatever diseases it carries
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Wow, what an abomination. Thanks for showcasing this freak on your show. I'd pay 50 bucks to see this creature in person, behind a glass panel of course, don't want to contract whatever diseases it carries
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HollyGW
I CANT IMAGINE having the BURDEN of worrying about how you're going to pay for your child's surgery, or worry about finances in such a worrisome time! It is just WRONG! I am so glad im Canadian!
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I CANT IMAGINE having the BURDEN of worrying about how you're going to pay for your child's surgery, or worry about finances in such a worrisome time! It is just WRONG! I am so glad im Canadian!
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dejavu2531
So nice to see such loving supportive family. and shame on the systems that charge them even a dollar for the medical care she needs. Pray they receive all the blessings and abundance possible.
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So nice to see such loving supportive family. and shame on the systems that charge them even a dollar for the medical care she needs. Pray they receive all the blessings and abundance possible.
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glowworm2
I love that the only question Amaya's sister Ariah had about her was whether her legs would grow back. That's very understandable. Also, Amaya is a very brave, loved and sweet little girl.
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I love that the only question Amaya's sister Ariah had about her was whether her legs would grow back. That's very understandable. Also, Amaya is a very brave, loved and sweet little girl.
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manyinone1
I love following Amaya and her family. She's amazing and deserves only the best. Good job mom, dad and sister! That little girl will have no issues with the 3 of you having her back!
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I love following Amaya and her family. She's amazing and deserves only the best. Good job mom, dad and sister! That little girl will have no issues with the 3 of you having her back!
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Chillies-b3x
Maya she is so pretty al I see is hands moving every were I could not care munch about the bottom part of her body I wish you could use babywark. she can move around easily
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Maya she is so pretty al I see is hands moving every were I could not care munch about the bottom part of her body I wish you could use babywark. she can move around easily
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jayalexander929
Amaya is absolutely adorable, when I seen her picture I actually thought she was a Porcelain Babydoll. To see her joyous spirit inspite of her condition is so inspiring.
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Amaya is absolutely adorable, when I seen her picture I actually thought she was a Porcelain Babydoll. To see her joyous spirit inspite of her condition is so inspiring.
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yinx4ts883
Idc if i get hate, this child will have a very dificult life, will suffer, etc and Will always depend on parents, SO what if they pass away Who is going to take care of her
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Idc if i get hate, this child will have a very dificult life, will suffer, etc and Will always depend on parents, SO what if they pass away Who is going to take care of her
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HopeLink-x3g
I think you're a beautiful little family and just because she has a disability don't ever treat her any different always help her to focus and strive to achieve her goals
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I think you're a beautiful little family and just because she has a disability don't ever treat her any different always help her to focus and strive to achieve her goals
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kathryntify
What a little beauty. She’s so sweet looking. I think she’ll be a stunner when she grows up, like her big sister.
I love her hair too.
What a great family.
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What a little beauty. She’s so sweet looking. I think she’ll be a stunner when she grows up, like her big sister.
I love her hair too.
What a great family.
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maryalexander3957
Amaya is so cute! I sure enjoy watching and getting to know this Amazing little girl and watch all what she can do! What a Beautiful & Loving Family!
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Amaya is so cute! I sure enjoy watching and getting to know this Amazing little girl and watch all what she can do! What a Beautiful & Loving Family!
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marissa. _
The little girl is adorable but I can't blame people for saying it was selfish to have her. She's gonna have a difficult life and that's not fair to her.
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The little girl is adorable but I can't blame people for saying it was selfish to have her. She's gonna have a difficult life and that's not fair to her.
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