VehiclesFashionRecipesBlogsHuntTravelsSportFunHandmadeITEducation
Mini-Games
x

x
zakruti.com » Blogs and People » Truly
The woman who is allergic to sunlight - born different

The woman who is allergic to sunlight - born different

FBTwitterReddit

video description

Rating: 4.0; Vote: 1
AT three years old, Karine de Souza, 30, from Brazil, was diagnosed with Xeroderma Pigmentosum - a rare skin disease that can cause severe sunburn after only a few minutes in the sun and severe pigmentation. This has meant that Karine has spent most of her life indoors, with the curtains closed, only venturing out when the sun is setting. -I never had a life like a normal life, she told Truly. -I don't usually go out, my life is indoors. I felt very suffocated having to stay inside all day. - She has undergone over 200 surgeries to remove cancerous skin tumours from her body; during that time she-s had her lower lip and the tip of her nose removed because of the melanomas. In the last procedure she had, doctors found a lesion that wasn-t superficial, like all the ones before. This time, the lesion was in her head and she underwent an extremely delicate and slow surgery to have it removed. Donate to help Karine here
Date: 2023-09-12

Comments and reviews: 25


What makes me hopeful in this whole video that she has someone to love. the love of her life. god sent her someone to share things with her. andvhere i m. i always complaint to him. never ever feel satiesfied. never cherished what i have. and always focused on what i don't. now i have nothing. god may have sent me that someone but i neglected. i m regretting. will god ever forgive me as i have learnt now. or m i going to suffer for the rest of my life. i don't think i can bare the pain forever. i can't even take the ultimate step. i m lost.
reply

you a 1 special lady and strong not many a like that aders sound look in the mirror and see what der see the same a monster der a the monsters not you so ll the best and be positive don't lissen to tham der don't understand der cant even get out of der cumfertson and thing how you fell you have a good man and i happy to see 2 of you happy
reply

Incredibly courageous. Just wish she-d cover completely up when going outside. Really hope the producers didn-t push her to expose her arms on her walk just for the camera. My son has Gorlins Syndrome, a skin cancer syndrome, and we cover him from head to toe on the few occasions he-s outside (including hats & gloves.
reply

I can-t even fathom the inner strength that this woman possesses to want to wake up another day and go on with a positive attitude. Her boyfriend seems like a hell of a guy.
This story tells me that I have no reason to whine or complain about anything. Things can ALWAYS be worse.

reply

So Ed comes along as soon as she-s collecting a ton of donation money. Seems a little suspect- Brazil is a poor country. There are vultures everywhere.
His favorite thing to do was go out with her, because he knows it kills her faster. The guy is obviously evil and after her money.

reply

I cannot believe the incredible strength this woman has, it really puts me in check for complaining about far less in my everyday life, I really appreciate her being so open and sharing such a vulnerable part of her. I truly thank u and send all my love and positivity to u both -
reply

And here I am worrying about if I-ll get breast cancer someday because it runs in my family.
I feel like she should cover up more if she-s more likely to get skin cancer. Maybe she put sunscreen on though. It doesn-t always work for me but I-m also very fair skinned.

reply

Was depressed for and suicidal for a long time. Over being such a failure but after watching her I am grateful for the things I have. Even though life still sucks, I am hopeful that maybe tomorrow will be better and different. She inspires me to move forward and keep trying
reply

I mean. look at her pictures before. It was already getting bad. Look at her now, she still doesn't care about her disease with the sun. Why is she not taking care of her body? She's literally exposing her skin to the sun. hypocrite is killing herself for attention
reply

Misery loves company, I just hate that when someone that Doesn't look the way society thinks she should look, she can't have a real relationship, that she's unlovable or something, she has just as much right to be happy as anyone else on Earth
reply

She should star in the walking dead in night scenes as the regenerating immortal apex zombie Lord. So she can be famous and help her family and make friends. Getting her a full time zombie gig would help her life dramatically.
reply

I also allergic to sunlight but not so severe. just feel uncomfortable, my skin become red, itchy and rashes. Even though I already apply so many sunblock. my skin still red. I'm going out only at night.
reply

i have to say it. if you know that you have that thing from your early days. why the hell are u in the sunlight. She could be avoid all of that only with not going out in the sun. no? anybody?
reply

As someone with insomnia, sometimes my favorite times to get out of the house is in the middle of the night. Could they not take their walks at night? Being at the beach at night is lovely!
reply

Getting ready for surgery, during and after is a challenge and trial of it in its self. The people who have to under go so many of them are Tough and strong hearted.
reply

I loved this story, he and her inspired me so much. All the times I hated the scars on my face, I am going to use her strength and accept myself going forward. She is my new hero.
reply

If ny one thinks their life is not gud also being attractive u feel ur not perfect then need to see this kind of people who hv 100 reasons to die but still accept them selves
reply

Wow talk about making your problems seem trivial. Prayers for her and her family and great job Ed for over looking the outside and seeing the inside. That is what-s important.
reply

-I'm practically a prisoner because I can't go out in the sun. I simply can't go outdoors because of that. -
(Third shift people be shaking their heads)

reply

Get some ups shirts faec covering would help her condition immensely. I hope she gets better and they find a cure! She is mindblowingly strong!
reply

I really like her, I hope she's gets at least partly sorted out enough to have a good life, she deserves it just off her attitude alone.
reply

Gona seem weird, but she has really nice feet-and I don-t have some kind of weird fetish or anything, but she had really pretty feet.
reply

That's sad I wish people donated money so she could move to a country like norway where you don't have to worry about sun.
reply

We people think we should more beautiful more attractive not happy what we have ask people like her how they r surviving
reply

If she is allergic to sunlight, then she should move to Iceland, because it's dark almost everyday during winter
reply
Add a review, comment






Other channel videos