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zakruti.com » Blogs and People » Truly
The little girl whose skin grows too fast - born different

The little girl whose skin grows too fast - born different

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Rating: 4.0; Vote: 1
NYLA is a five-year-old fashionista with a rare condition called ichthyosis - this means her skin grows too fast. Nyla, who-s from LA, cannot sweat which means she-s at risk of overheating and it-s important that she bathes several times per day to clear away excess skin. Fortunately she loves bath time and her condition certainly doesn-t stop her from being a fashion icon. If she isn-t painting her nails or shopping for clothes she-s probably modelling her trendy outfits in front of the camera
Date: 2023-09-12

Comments and reviews: 21


i had icthyosis but by 11 i went into heart failure than was told that the doctors had nmesseed up and I'm the first person to ever live with the proper dionsis of icthyosis, the only reason I'm saying this so to please get you little girls heart checked they may say she has a mummer but her heart can be twice as big as an adults because that was what happened to me.
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Not the worst thing for your baby to be born with at all. Some babies need to be covered in moisturizer all day long in a similar way (eczema, so it really shows how she can still live a full life, and she'll be amazing at personal hygiene because of how her parents taught her.
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Her parents are young but i made the maths and they probably look younger than they are: O At this rate the three of them will look like siblings when she's 20 coz they don't seem to age, even with a special needs kid under their care. Congrats fam: )
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You guys are great parents, your baby girl is beautiful and smart. And she truly shines inside and out. My friend when I was young also had this condition. You are doing an amazing job. Much love to you, your daughter and your family.
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These parents are the cutest! I'm so impressed by how young they look and what great parents they are! Their daughter is absolutely beautiful! Much love and joy to you and your family!
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What a beautiful family-that absolutely made my day seeing them smile talking about that little girl and watching how lovely and confident she is! Great job mom and dad!
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They should put Vaseline on her ans not lotion, lotion dries out fast and also while bathing her put olive oil and baby oil on her as she gets out and keep doing that
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Can we give a shout out to her bonus dad, I mean he's so ready to answer the questions and he's very knowledgeable about her condition. Good job you 2.
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This shows the word -stepdad- means nothing he is glowing when talking about his daughter. I have a stepdad like him and I love him more than anything.
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Bro i see nothing wrong with her skin
You shpuld see under my feet bro
Lmaoooooooooooooooooooooooooo
My foot dryer than the sahara dessert

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If I was not told that man was her stepdad I wouldn-t know. He has fully educated himself on her condition which is so comforting and beautiful to see
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The child has a very bubbly happy disposition cuz she's a very lovely child I hope she could become better and better at fighting this illness
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These parents seem incredibly loving! It must be a hard thing for her to deal with but 1 million times easier with her mum and dad being so sweet
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Such great parents such an amazing little girl living life to the fullest as she should love this family may God continue to bless them
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What a cutie! The parents remind me of my late mom. She was so loving and supportive just like them. They have a beautiful family!
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I have a cousin her son has a skin I guess a lot of skin disease or whatever and she had to do the same for her son too as well.
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Man i only get dermatitis- cannot imagine what its like not just with constant dry hands but constantly dry and flakey ALL OVER
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Amazing amazing family and that little girl is going to do big big things I guarantee that she-s so smart and creative!
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I love that step dad is so engaged with her health. He investigated her skin disease to learn more about it. I love it.
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U guys are doing the best for her! U two are wonderful parents! Keep up the good work. She's adorable -
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Ichthyosis. It has the appearance of a permanent sunburn, but its actually the skin growing too fast.
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