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I have uncombable hair syndrome - born different

I have uncombable hair syndrome - born different

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Rating: 4.0; Vote: 1
SHILAH Madison Calvert - Yin is 12 years old from Doreen, Melbourne. Shilah was diagnosed with Uncombable Hair Syndrome or -Spun Glass Hair- when she was four years old. Until this point her mum was at a loss with how to manage Shilah--s hair, which is thick, frizzy and matted at the root. Her hair can-t grow past a certain length, otherwise it breaks. It is hard to manage and damage occurs frequently. Shilah has received unwanted attention her whole life because of her unique look; judgment has come from other children at school and people on social media who have accused Shilah-s mum of being neglectful. Shilah and her mum now want to raise awareness of the genetic condition and use social media as a platform to celebrate why being different is beautiful. Shilah's Instagram
Date: 2023-09-12

Comments and reviews: 28


-Uncombable hair syndrome is a condition that is characterized by dry, frizzy hair that cannot be combed flat. This condition develops in childhood, often between infancy and age 3, but can appear as late as age 12. Affected children have light-colored hair, described as blond or silvery with a glistening sheen.
Straight hair appears round, curly hair appears oblique, but uncombable hair is triangular or heart-shaped at the cross section and grooved from root to end. The hair stands out from the scalp and grows in different directions. It may be impossible to comb it flat against the scalp. (The condition only affects the hair of the scalp, not hair on other parts of the body. -
The above I found from googling the condition. To those saying she has curly, afro hair that's not quite the case. However I do agree that regardless of her hair type she should not have been bullied and should not have negative attention put on her hair. All hair is good hair. -

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I don't have this condition, but I have about type 3A curly hair, which is uncommon in my very white family of mostly Northern European genetics. After watching lots of videos on Black and African hair care for hair anywhere from curly to kinky and 4C hair, I really learned how to take care of my own hair much better. To be fair, they said the cross section of the -uncombable hair syndrome- is either Triangle Shaped or Heart Shaped, whereas Curly and Kinky hair is a thin oval to almost flat, which still allows the hair to be combed in some states. However, I feel a hair stylist that specializes in black and curly/kinky hair care would be an excellent resource for someone with this condition, regardless of their racial background.
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Her hair shape might be similar to type 4 hair but if you look up pictures of people with this syndrome, it is different and type 4 hair is not brittle or uncombable. People with this syndrome can have straight hair or just wavy hair.
I suppose you can compare them both in the looks and struggles but I still think that her hair cannot be treated as easily as a normal person's hair and with the same treatment as it is clearly a genetic mutation and an abnormality.

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Try mouse, after showers/ washing your hair, use a pick not a comb, nor a brush.
Always USE A PICK & A GOOD MOISTURIZER, ( WEN, always WEN & PUCK YOUR HAIR,
DON'T BRUSH YOUR HAIR.
WEN, hair products worked well on my hair, just don't saturate the scalp with the Wen cleanser, it is rich & moisturizing.
There are curls in your hair, that make it seem fluffy, frizzy, if your using a regular brush it will make your hair speam FRIZZY.

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I've seen people comment that this looks like black hair but it really doesn't. There is no curl or coil texture to her hair. Her hair is straight but very frizzy and fuzzy. And her other symptoms also make it clear that it isn't just a white person having African textured hair. It is really interesting to see, must be very difficult for her.
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She definitely has African American hair the problem is you are treating it like Caucasian hair you are brushing it dry without any oils you will need to put muse and oil first to soften it up then brush gently and also since her hair is blond natural it has very little melanin which makes it even more fragile good luck -
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This one is new to me-I-ve seen many things but this was new to me. I don-t know what I would do if I was her. A wig would solve it in the short term but not in the long term, but the bullying during your childhood does so much damage while your Brain is forming. I-ve been bullied a lot, mostly physical and also verbal.
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All this beautiful little girl needs is a black regimen and she will be fine. From your accent you sound Australian? Look for a good African beautician to show you how to care for your daughter hair. Her is not uncombable. It is just kinky all you need is water and blue bergamot in her and she will be fine.
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Ugh the language they use in this video you can tell what they think of us black ppl. -Makes my hair different than normal ppl hair-? Then proceeds to show photo of white child. Oh it-s -fuzzy and unmanageable- this is literally the struggle of majority of black ppl.
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This doesn-t seem like African-American hair like all the other comments say. It-s a shame to see all this misinformation like -go to a black saloon lol- The hair is sensitive is hell with this syndrome and using such techniques would do more harm then good.
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If anyone saw this girl from afar, she would be assumed to be biracial, as for the hair, all I can say is, -welcome to the life of black women- start using black hair treatments, comb only when the hair is wet and soft
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She should discuss whether treatment like olaplex might make her hair be manageable. Unique and different is great, but not being able to manage her hair probably decreases her quality of life to some degree.
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Does this syndrome prevent her from putting styling cream in her hair? - or did they just brush it out for dramatic effect for the video? Or do the parents just not know how to style non- straight hair?
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I would trade my hair for hers in a heartbeat. I have alopecia. It started when I was just 14. It makes me look ill and old. Any hair is good hair, as long as it looks healthy! Cherish what you have.
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I honestly don-t think there-s anything wrong with her hair that-s worth feeling bad about. She can go to a black hair stylist and embrace a new look that will encourage others.
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She has brittle teeth and bones yet her hair is the biggest concern? Seems like she needs to be taking calcium. And going to a hairstylist
2: 13 ignorance -

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Why is the mom combing her hair dry like that? YIKES! She just needs to work with it while it is wet. Put some product in it, scrunch, and let it air dry.
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To be honest, she looks average to me. I wouldn't even think that there is some kind of syndrome. Just fluffy hair, which every other person has.
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The name of this disease is kind of ridiculous. Her hair is great. She-s adorable and smart and seems to have a great mum and brother. -
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I don't see anything unattractive about her hair. Curly, frizzy, straight - it's just hair. It doesn't define who she (or anyone else) is.
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Then does that mean that black people naturally have brittle bones and teeth? They need to investigate this disease further.
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It-s not that brittle if she brush without it all falling out, those black genes are just finally showing through the child
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I wish this disease wasn-t named what it was. The bigger concern here is the brittle bones and teeth, not the hair.
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Stop letting mom do ur hair and go to a blk women salon. They work wonders there. Also mom why she have blk women hair-
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Hair looks unusual but nice.
But may I suggest an African Solution, Look for an African hair dresser and weave it.

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bruh this hair isn't uncombable. it's dry
her mom is trying to treat her hair like it's straight hair when it's not

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Seems like if brittle bones and teeth come along with this, hair should maybe be the least of their concerns.
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Looks like kinky hair with no solid texture. Someone can braid it or twist it up. Good for mom for trying
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