I Haven't Eaten In 4 Years
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Date: 2023-11-05
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Comments and reviews: 13
Fergus
I have something medical professionals ALL KNOW ABOUT And call it the Suicide Disease or one of them, YET THERE HAVE BEEN 0 STUDIES ABOUT IT! It is called Trigeminal Neuralgia. I have one of the more severe cases, Whole left side of my face and head is affected ( it is progressively getting worse) I have a base level pain then I have the classic flair ups of pain and muscle spasms that have dropped me and made me lose consciousness for hours afterward. It is draining too, but that also could be the other neurological stuff I have been dealing with for a decade, and have been steadily getting worse. I have had Drs tell me either I would be diagnosed with something like lupus, MS or Parkinson's years later or I have something that mimics all that but hasn't been nailed down and called something new. Multiple Drs in this 10 year period have said this. Yes I have seen way too many Drs in a 10 year period but that is because of insurance issues or the doctor would look me dead in the eyes and say, You are too Young to have All these Problems. and then they start playing games with actually doing the things they said they would, like ordering tests, and scans. Even though I do have ALL these medical issues, and some I have a long trail going back Decades proving it including x-rays, MRIs etc. Plus ANY TIME I go to the ER it is because I have No Less than 3 Medical professionals and a bunch of family members begging me to go, I don't want to be there because with most of my issues they CANNOT HELP. Anyways I was totally gaslighted last time I seemed emergency medical attention, and it was because I couldn't even stand I was shaking everywhere but mostly on the right side, they asked me if anything traumatic happened to make my Pre-Existing tremors get 1, 000 times worse. I said my friend committed suicide a couple weeks ago but these bad tremors started 4 Days ago. they zeroed in on me grieving and stuck me in the psychiatric area of the ED. When they saw the results of my blood test they told me they didn't find anything, but the appointment I had with these ULTRA Specialized Neurologists went from 6 MONTHS out to 4 weeks. I see them not this week but next week, and I love my pain management Aprn because after I told her what had happened and said they definitely found something. She goes, Oh Yeah they found something! I wanna know when is your next appointment with me? Is it after your next appointment with me? If not can you change it because I Want to know! She is Great, even if there is a bit of a torture session every time we meet, but my pain is cut So Much by the time I walk out it is worth it. I am going to stop because I forgot what I was talking about and my face and mouth are burning
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I have something medical professionals ALL KNOW ABOUT And call it the Suicide Disease or one of them, YET THERE HAVE BEEN 0 STUDIES ABOUT IT! It is called Trigeminal Neuralgia. I have one of the more severe cases, Whole left side of my face and head is affected ( it is progressively getting worse) I have a base level pain then I have the classic flair ups of pain and muscle spasms that have dropped me and made me lose consciousness for hours afterward. It is draining too, but that also could be the other neurological stuff I have been dealing with for a decade, and have been steadily getting worse. I have had Drs tell me either I would be diagnosed with something like lupus, MS or Parkinson's years later or I have something that mimics all that but hasn't been nailed down and called something new. Multiple Drs in this 10 year period have said this. Yes I have seen way too many Drs in a 10 year period but that is because of insurance issues or the doctor would look me dead in the eyes and say, You are too Young to have All these Problems. and then they start playing games with actually doing the things they said they would, like ordering tests, and scans. Even though I do have ALL these medical issues, and some I have a long trail going back Decades proving it including x-rays, MRIs etc. Plus ANY TIME I go to the ER it is because I have No Less than 3 Medical professionals and a bunch of family members begging me to go, I don't want to be there because with most of my issues they CANNOT HELP. Anyways I was totally gaslighted last time I seemed emergency medical attention, and it was because I couldn't even stand I was shaking everywhere but mostly on the right side, they asked me if anything traumatic happened to make my Pre-Existing tremors get 1, 000 times worse. I said my friend committed suicide a couple weeks ago but these bad tremors started 4 Days ago. they zeroed in on me grieving and stuck me in the psychiatric area of the ED. When they saw the results of my blood test they told me they didn't find anything, but the appointment I had with these ULTRA Specialized Neurologists went from 6 MONTHS out to 4 weeks. I see them not this week but next week, and I love my pain management Aprn because after I told her what had happened and said they definitely found something. She goes, Oh Yeah they found something! I wanna know when is your next appointment with me? Is it after your next appointment with me? If not can you change it because I Want to know! She is Great, even if there is a bit of a torture session every time we meet, but my pain is cut So Much by the time I walk out it is worth it. I am going to stop because I forgot what I was talking about and my face and mouth are burning
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blogs
Girl I love the way you have learnt to deal with the situation. You are an inspiration. You have made up your mind that you want to live life. There are so many people who don't have such a situation but are not grateful for how God has blessed them. You have made your spot in this world. God has chosen you to be a miracle for everyone. You have wonderful parents. That's how a life partner should be. Who stays at your side in a good or bad situation. Your entire family is an inspiration. Lots of love from me to your family for being an inspiration to me and the world.
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Girl I love the way you have learnt to deal with the situation. You are an inspiration. You have made up your mind that you want to live life. There are so many people who don't have such a situation but are not grateful for how God has blessed them. You have made your spot in this world. God has chosen you to be a miracle for everyone. You have wonderful parents. That's how a life partner should be. Who stays at your side in a good or bad situation. Your entire family is an inspiration. Lots of love from me to your family for being an inspiration to me and the world.
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Blue
I have bad genetics, a lot of stuff I don't want to pass on to my kids. So I'm not having them. Especially given that it was passed through the father and not the mother, meaning it would have been easier to have a kid by going to a sperm bank rather than a surrogate, this was irresponsible. He clearly loves his kids, no doubt, but it doesn't change the fact that their shortened life span was preventable.
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I have bad genetics, a lot of stuff I don't want to pass on to my kids. So I'm not having them. Especially given that it was passed through the father and not the mother, meaning it would have been easier to have a kid by going to a sperm bank rather than a surrogate, this was irresponsible. He clearly loves his kids, no doubt, but it doesn't change the fact that their shortened life span was preventable.
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ginnungagap
This reminds me of Prahlad Jani being able to survive 70 years without food, and water (well he claimed that, but he did prove it by being watched for 15 days, and he did not eat or drink anything.
The only difference is this lady s condition could harm her in the future.
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This reminds me of Prahlad Jani being able to survive 70 years without food, and water (well he claimed that, but he did prove it by being watched for 15 days, and he did not eat or drink anything.
The only difference is this lady s condition could harm her in the future.
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It's
This whole family is amazing.
Dad, it's not your fault! You clearly love your daughter very much. I admire the bond that this family has.
This young lady is incredible, and I sincerely hope that she and her family get a few extra years to make memories!
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This whole family is amazing.
Dad, it's not your fault! You clearly love your daughter very much. I admire the bond that this family has.
This young lady is incredible, and I sincerely hope that she and her family get a few extra years to make memories!
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Fred
I definitely would find it very difficult to procreate knowing what about to pass on to my children. I would find a partner who doesn't want children to settle down with because the thought of all that burden on my children would eat me up.
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I definitely would find it very difficult to procreate knowing what about to pass on to my children. I would find a partner who doesn't want children to settle down with because the thought of all that burden on my children would eat me up.
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truly
I live to eat so that would be like torture for me. Her dad has it and he made it past 36 so I hope the same for her. I presume that her brother is still alive and would be curious to hear how it's affecting him as well.
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I live to eat so that would be like torture for me. Her dad has it and he made it past 36 so I hope the same for her. I presume that her brother is still alive and would be curious to hear how it's affecting him as well.
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Вакцина
Thank so much for such an amazing story about the brave woman fighting for rights of other inclusive people. It's s great example god me to be grateful for what I have.
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Thank so much for such an amazing story about the brave woman fighting for rights of other inclusive people. It's s great example god me to be grateful for what I have.
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Waid
This makes me so sad, makes me think how people take there life for Granted and don't realize how lucky they really are to do what they can do what other people dream to do
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This makes me so sad, makes me think how people take there life for Granted and don't realize how lucky they really are to do what they can do what other people dream to do
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Quinn
I have a friend with a similarish condition- vascular ehlers danlos syndrome and she has a lot of similar issues. She also has visceroptosis (prolapse of her GI tract)
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I have a friend with a similarish condition- vascular ehlers danlos syndrome and she has a lot of similar issues. She also has visceroptosis (prolapse of her GI tract)
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KJ
What a brave and graceful young woman. I wish her all of the joy and peace in the world. Her poor dad- you can see he would easily lay his life down for his child
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What a brave and graceful young woman. I wish her all of the joy and peace in the world. Her poor dad- you can see he would easily lay his life down for his child
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Tim
Thank you so much for sharing your story - true inspirational human being.
I wish you all the best and many more happy years with your husband and family!
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Thank you so much for sharing your story - true inspirational human being.
I wish you all the best and many more happy years with your husband and family!
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ConvictedAshes
I m 36 and can t imagine the thought of my life ending out of the blue. The dad shouldn t feel guilty. I wish her the best.
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I m 36 and can t imagine the thought of my life ending out of the blue. The dad shouldn t feel guilty. I wish her the best.
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