The man who's turning to stone - born different
video description
Date: 2023-09-12
Related videos
Comments and reviews: 14
George
This is a horrible condition which my son suffers from and as a parent to see your kid slowly lose mobility is horrendous. BUT these kids are also inspiring my son is at the moment in his 3rd year at university studying ethical hacking and is determined to make his way in the world.
What I would as is to stop using the term -turning to stone- it sounds like some freak show headline
reply
This is a horrible condition which my son suffers from and as a parent to see your kid slowly lose mobility is horrendous. BUT these kids are also inspiring my son is at the moment in his 3rd year at university studying ethical hacking and is determined to make his way in the world.
What I would as is to stop using the term -turning to stone- it sounds like some freak show headline
reply
Mabbyloo
What an inspiration you are! Keep making videos & everyone will support you & keep on watching! I help care for a fellow FOP-er. Rachel Winnard. We did a video challenge for a day with The Born Differently group & it was a fun way to raise awareness! Keep having fun, you have an amazing soul & amazing outlook on life! Long may it continue x
reply
What an inspiration you are! Keep making videos & everyone will support you & keep on watching! I help care for a fellow FOP-er. Rachel Winnard. We did a video challenge for a day with The Born Differently group & it was a fun way to raise awareness! Keep having fun, you have an amazing soul & amazing outlook on life! Long may it continue x
reply
GodzHarleyGirl
You're a brilliant and awesome guy. I'm so glad ya shared this with us. Have you ever thought if the Mutter Museum? There are 2 people who's bodies were donated to them and it helps other's to understand what you're dealing with every moment of your life. Thanks for letting us see a tint bit of your daily life. Hugz, Tree
reply
You're a brilliant and awesome guy. I'm so glad ya shared this with us. Have you ever thought if the Mutter Museum? There are 2 people who's bodies were donated to them and it helps other's to understand what you're dealing with every moment of your life. Thanks for letting us see a tint bit of your daily life. Hugz, Tree
reply
Jeremiah
Man, this guy made my day honestly. He is so happy, funny, full of life. But this horrible condition is ravaging his body. Makes me feel so sad, but he has a great friend that obviously cares about him. Wish you nothing but the best Joey! --
reply
Man, this guy made my day honestly. He is so happy, funny, full of life. But this horrible condition is ravaging his body. Makes me feel so sad, but he has a great friend that obviously cares about him. Wish you nothing but the best Joey! --
reply
Elizabeth
That-s really tough
You-re a nice person and very talented
Do you ever feel cheated out of life and damned annoyed by the
Cards you are dealt
Hugs from Amman Jordan Middle East
reply
That-s really tough
You-re a nice person and very talented
Do you ever feel cheated out of life and damned annoyed by the
Cards you are dealt
Hugs from Amman Jordan Middle East
reply
Darren
You are inspiring, to not let your disability stop you, were even the strongest person otherwise would, amazing. And your best friend Ely is a true loyal and caring person, what a awsome friend
reply
You are inspiring, to not let your disability stop you, were even the strongest person otherwise would, amazing. And your best friend Ely is a true loyal and caring person, what a awsome friend
reply
DrGrukar
I watched a doc on FOP before, and it was really scary that the people had to decide if they wanted to be in a lying down position for the rest of their life, or a sitting position.
reply
I watched a doc on FOP before, and it was really scary that the people had to decide if they wanted to be in a lying down position for the rest of their life, or a sitting position.
reply
Eunae
He could easily have said, -Please let me die, I don't want to live like that, - in any number of ways, but he keeps a positive attitude! I wish more people would be like that!
reply
He could easily have said, -Please let me die, I don't want to live like that, - in any number of ways, but he keeps a positive attitude! I wish more people would be like that!
reply
kavvya
all of my support to both ely & joey, they both seem like amazing people and i truly am wishing joey just an amazing life too; ( hoping for his safety and good health
reply
all of my support to both ely & joey, they both seem like amazing people and i truly am wishing joey just an amazing life too; ( hoping for his safety and good health
reply
RealyWoDoYuBeliv?
This is heartwarming. I was a CNA for 30 years. It was wonderful to be around great people. I love that he has a good friend that helps him.
reply
This is heartwarming. I was a CNA for 30 years. It was wonderful to be around great people. I love that he has a good friend that helps him.
reply
ItsProd.
At least he got a cute chick helping him nice! She prolly give that gawk gawk 30000 to him Lol
No seriously that last part was but a joke
reply
At least he got a cute chick helping him nice! She prolly give that gawk gawk 30000 to him Lol
No seriously that last part was but a joke
reply
poppymcgrath
WELL i feel ashamed of feeling sorry for myself my GOD you are an amazing guy keep on keeping on love to you xx
reply
WELL i feel ashamed of feeling sorry for myself my GOD you are an amazing guy keep on keeping on love to you xx
reply
Katelyn
joeeyyyy, what an amazing feature. it was such an honor meeting and photographing you and ely - thank you both
reply
joeeyyyy, what an amazing feature. it was such an honor meeting and photographing you and ely - thank you both
reply
Cal
Hopefully someday medical science and research will find the cure for this disease and other conditions.
reply
Hopefully someday medical science and research will find the cure for this disease and other conditions.
reply
Add a review, comment
Other channel videos
