My rare condition meant i couldn't eat food - born different
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Date: 2023-09-12
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Comments and reviews: 25
ReaperG1rl
She is beautiful inside and out. I know what it is like going through so many surgeries as a baby. I was born with cleft lip and pallet. Also I was born deaf too. I went through my first 18 years of my life with surgeries some were 2 or 3 times in 1 year. It was rough and I missed a lot of school. I am now almost 45 years old, I just had my cochlear implants right side done Nov 2020 and left Oct 2021 the best thing I ever done in my life. I still struggle but I learned to push myself to be ME! I proved myself to my family who are all hearing that I can do it.
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She is beautiful inside and out. I know what it is like going through so many surgeries as a baby. I was born with cleft lip and pallet. Also I was born deaf too. I went through my first 18 years of my life with surgeries some were 2 or 3 times in 1 year. It was rough and I missed a lot of school. I am now almost 45 years old, I just had my cochlear implants right side done Nov 2020 and left Oct 2021 the best thing I ever done in my life. I still struggle but I learned to push myself to be ME! I proved myself to my family who are all hearing that I can do it.
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Yocheved
My ex husband was born with an incomplete midline. He was open from the chest to the pubic bone, and all of his insides were on the outside. He had no bladder, and no rectum. It also turned out that he was sterile. He never got a genetic test done (this was 50 years ago) but we suspect he may have also had Klinefelter's Syndrome. He's had numerous surgeries, and is actually the first person with his condition to have lived as long as he has. Shout out to Dr. Ng at Seattle Children's Hospital!
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My ex husband was born with an incomplete midline. He was open from the chest to the pubic bone, and all of his insides were on the outside. He had no bladder, and no rectum. It also turned out that he was sterile. He never got a genetic test done (this was 50 years ago) but we suspect he may have also had Klinefelter's Syndrome. He's had numerous surgeries, and is actually the first person with his condition to have lived as long as he has. Shout out to Dr. Ng at Seattle Children's Hospital!
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Amanda
I was born premature, and as I've aged, I've had, and will continue to have, numerous health issues.
At one point my mom apologized for having me and me being so sick. I told her I'd rather suffer day to day, then had never been here at all. I still have a huge future of pain and problems; however, I'd rather be here then not.
I cherish everyday I have here in my life. The more the better, and I don't take anything for granted.
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I was born premature, and as I've aged, I've had, and will continue to have, numerous health issues.
At one point my mom apologized for having me and me being so sick. I told her I'd rather suffer day to day, then had never been here at all. I still have a huge future of pain and problems; however, I'd rather be here then not.
I cherish everyday I have here in my life. The more the better, and I don't take anything for granted.
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Ren
I admire this girl & her incredible mum so much! She-s the type of role model young girls should be looking up to. She never let her physical limitations define her & just look at her go! I-m in awe of you, Anya & your incredible support networks. You are unbelievably beautiful & the least of your beauty is the physical. You-re something else & a true warrior! -
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I admire this girl & her incredible mum so much! She-s the type of role model young girls should be looking up to. She never let her physical limitations define her & just look at her go! I-m in awe of you, Anya & your incredible support networks. You are unbelievably beautiful & the least of your beauty is the physical. You-re something else & a true warrior! -
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wildlife
Anna and your wonderful mom are such resilient, awesome, fierce, truthful beautiful women from the inside out. Thank you so much for sharing your story and arduous (hospital) journey. I am so glad you have a supportive and present mum. Do take things slow. Savour and be gentle and kind to yourself.
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Anna and your wonderful mom are such resilient, awesome, fierce, truthful beautiful women from the inside out. Thank you so much for sharing your story and arduous (hospital) journey. I am so glad you have a supportive and present mum. Do take things slow. Savour and be gentle and kind to yourself.
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Pollyanna
This woman's story is so powerful. I'm amazed that a person with so many medical conditions who has gone through so many operations can not only have on optimistic attitude but also manage to make her career dreams of a model come true. Kudos to her mother for being so supportive as well.
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This woman's story is so powerful. I'm amazed that a person with so many medical conditions who has gone through so many operations can not only have on optimistic attitude but also manage to make her career dreams of a model come true. Kudos to her mother for being so supportive as well.
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Gabriella
Thank you so much for sharing your story. My daughter is 5m old and was born with your exact condition. I needed so much to hear your story. We are heading for surgery just like you at 7 months. So happy you have a beautiful quality of life!
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Thank you so much for sharing your story. My daughter is 5m old and was born with your exact condition. I needed so much to hear your story. We are heading for surgery just like you at 7 months. So happy you have a beautiful quality of life!
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Bettina
Who are all these people who say -you can't- or -it'll never work-? And why do we even listen because I can't count how many wonderful successful people who have said they were told - you can't- and were totally and completely wrong.
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Who are all these people who say -you can't- or -it'll never work-? And why do we even listen because I can't count how many wonderful successful people who have said they were told - you can't- and were totally and completely wrong.
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Chelesani
Anja, thanks for sharing your story. You're so beautiful and definitely defying the odds. Your mom is an incredible person too.
I'm a mom raising a VACTERL warrior too. He's just turned 5 in June of 2022.
Much love --
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Anja, thanks for sharing your story. You're so beautiful and definitely defying the odds. Your mom is an incredible person too.
I'm a mom raising a VACTERL warrior too. He's just turned 5 in June of 2022.
Much love --
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Dominique
This is by far the best video to show that appearance could be tricky. No one would ever suspect that this good looking woman went through some really hard time before being where she is.
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This is by far the best video to show that appearance could be tricky. No one would ever suspect that this good looking woman went through some really hard time before being where she is.
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Kybria
This story is beautiful and amazing. Mother and daughter have strong spirits. I am so happy that you continue to have courage. May your health stay optimal and all your dreams come true
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This story is beautiful and amazing. Mother and daughter have strong spirits. I am so happy that you continue to have courage. May your health stay optimal and all your dreams come true
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Colin
Congratulations to such a beautiful woman. You have an amazing positive attitude. Continue to keep your head up. Your dreams will come true. Keep us updated on your progress.
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Congratulations to such a beautiful woman. You have an amazing positive attitude. Continue to keep your head up. Your dreams will come true. Keep us updated on your progress.
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Baby
Wow. All throughout her ordeal she is gorgeous. I am in awe. Even at such a young age. Great parenting as well. Her attitude made all the difference! This is real beauty!
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Wow. All throughout her ordeal she is gorgeous. I am in awe. Even at such a young age. Great parenting as well. Her attitude made all the difference! This is real beauty!
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cheetah
What a phenomenal human being! I have a chronic health condition and her saying that she can't wait until she gets better to do things is truly a remarkable sentiment.
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What a phenomenal human being! I have a chronic health condition and her saying that she can't wait until she gets better to do things is truly a remarkable sentiment.
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Vidushi
Just show how much of a difference a persistent and supportive parent can make in a child's life regrdless of their condition. Love really does heal lots of things.
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Just show how much of a difference a persistent and supportive parent can make in a child's life regrdless of their condition. Love really does heal lots of things.
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Serendipity
I personally have multiple disabilities- but I-m short and not super super thin model material- tho I wanna act or model. Anyone have advice?
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I personally have multiple disabilities- but I-m short and not super super thin model material- tho I wanna act or model. Anyone have advice?
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Patricia
What an amazing girl. She has no self pity. She is a doer and not letting anything stand in her way. Such a beautiful person. Her mom is amazing
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What an amazing girl. She has no self pity. She is a doer and not letting anything stand in her way. Such a beautiful person. Her mom is amazing
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misstina
She's a miracle! This is absolutely fascinating and clearly she has been blessed with a wonderful family and a great medical team!
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She's a miracle! This is absolutely fascinating and clearly she has been blessed with a wonderful family and a great medical team!
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Ninoz
She has grown up well for someone born with a lot of of congenital anomalies. A mothers love and the skills of good surgeons.
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She has grown up well for someone born with a lot of of congenital anomalies. A mothers love and the skills of good surgeons.
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LunaLee
What a truly inspiring woman and her mother, what she went through from her daughter-s birth. They both are amazing!
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What a truly inspiring woman and her mother, what she went through from her daughter-s birth. They both are amazing!
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Jose
She may not have muscle, but she is a strong woman. She has the scars to prove it. May she live a long healthy life.
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She may not have muscle, but she is a strong woman. She has the scars to prove it. May she live a long healthy life.
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Merrick
This is so interesting! I-m very intrigued by medical stuff. She-s incredibly brave and strong! So is her mama!
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This is so interesting! I-m very intrigued by medical stuff. She-s incredibly brave and strong! So is her mama!
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Amber
You're amazing I love how positive you are. your an inspiration to so many thank you for sharing your story.
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You're amazing I love how positive you are. your an inspiration to so many thank you for sharing your story.
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Africana
She looks Soo gorgeous. like an high fashion model. I hope she is utilizing her lemons to her advantage.
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She looks Soo gorgeous. like an high fashion model. I hope she is utilizing her lemons to her advantage.
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Miss
This is what I call defying the odds. Through it all, she's still standing. She's amazingly beautiful. --
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This is what I call defying the odds. Through it all, she's still standing. She's amazingly beautiful. --
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