Diabulimia The Eating Disorder No One Talks About
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Date: 2023-08-20
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Comments and reviews: 25
Ash
I am currently in an eating disorder recovery center (currently partial-hospitalization, and before that residential) for this exact thing. Thank you for making this video because this mental illness is rarely talked about and the patient is usually just noted as non-compliant and ignored. Many providers also are not fully sure how to treat diabetics in general, but specifically those with diabulimia, in treatment because of the added issue of insulin. I think there is a significant lack of conversation around this extremely deathly illness, and this only fills the gap a small amount. We need more first hand experiences, people to tell their stories, as someone with diabulimia I scoured the internet for any/all i could discover about diabulimia and any stories about it because i strived to feel normal and find someone to relate to, but that does not really exist save for maybe one video. this video is also easily understood, clear, and upbeat so it doesnt feel like a lecture to watch. Thanks: )
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I am currently in an eating disorder recovery center (currently partial-hospitalization, and before that residential) for this exact thing. Thank you for making this video because this mental illness is rarely talked about and the patient is usually just noted as non-compliant and ignored. Many providers also are not fully sure how to treat diabetics in general, but specifically those with diabulimia, in treatment because of the added issue of insulin. I think there is a significant lack of conversation around this extremely deathly illness, and this only fills the gap a small amount. We need more first hand experiences, people to tell their stories, as someone with diabulimia I scoured the internet for any/all i could discover about diabulimia and any stories about it because i strived to feel normal and find someone to relate to, but that does not really exist save for maybe one video. this video is also easily understood, clear, and upbeat so it doesnt feel like a lecture to watch. Thanks: )
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Piotr
I was in hospital in poland about 2 years ago and I was permitted to choose how much do I want to eat on my own.
1 WW=10g of carbohydrates
1st meal - 3WW
2nd meal - 2WW
3rd meal - 4WW
4th meal - 1WW
5th meal - 3WW
6th meal - 2WW
It makes 15WW a day which is 150g of carbohydrates. they have let me eat only this amount, it was ridiculous. I was eating cucumbers between the meals, because I thought I would throw up I was so hungry. I lost couple of kg just in 1 week, but I'm struggling with diabulimia for about 6 years now
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I was in hospital in poland about 2 years ago and I was permitted to choose how much do I want to eat on my own.
1 WW=10g of carbohydrates
1st meal - 3WW
2nd meal - 2WW
3rd meal - 4WW
4th meal - 1WW
5th meal - 3WW
6th meal - 2WW
It makes 15WW a day which is 150g of carbohydrates. they have let me eat only this amount, it was ridiculous. I was eating cucumbers between the meals, because I thought I would throw up I was so hungry. I lost couple of kg just in 1 week, but I'm struggling with diabulimia for about 6 years now
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That
Why does NO ONE talk about how Type 1 Diabetics get shamed by their endocrinologists when they have high a1c's? I struggled with Diabulimia for YEARS and my endo would just get frustrated and shame my elevated a1c. I had an a1c of 14. 9 at one point, and all he did was chastise me. Worst part is, I'm a healthcare professional. I obviously know what diabetes is and how to control it. He never once stepped back and said, hey, why is your a1c so high? He never once considered Diabulimia.
I know I'm not the only T1D who has gone through this.
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Why does NO ONE talk about how Type 1 Diabetics get shamed by their endocrinologists when they have high a1c's? I struggled with Diabulimia for YEARS and my endo would just get frustrated and shame my elevated a1c. I had an a1c of 14. 9 at one point, and all he did was chastise me. Worst part is, I'm a healthcare professional. I obviously know what diabetes is and how to control it. He never once stepped back and said, hey, why is your a1c so high? He never once considered Diabulimia.
I know I'm not the only T1D who has gone through this.
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Katherine
Dear God, I didn't know it existed. Hey Psy2Go, can you guys do one on DMDD? It's short for Disruptive mood dysregulation disorder: It is a mental disorder in children and adolescents characterized by a persistently irritable or angry mood and frequent temper outbursts that are disproportionate to the situation and significantly more severe than the typical reaction of same-aged peers. Thanks for letting us know about diabulimia, there's so many medical conditions were unaware of and it's nice to know you guys care. Thanks!
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Dear God, I didn't know it existed. Hey Psy2Go, can you guys do one on DMDD? It's short for Disruptive mood dysregulation disorder: It is a mental disorder in children and adolescents characterized by a persistently irritable or angry mood and frequent temper outbursts that are disproportionate to the situation and significantly more severe than the typical reaction of same-aged peers. Thanks for letting us know about diabulimia, there's so many medical conditions were unaware of and it's nice to know you guys care. Thanks!
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Hrp
Is there an eating disorder where its, I dont deserve to eat, especially if its good for you?
I find myself eating maybe once a day, and i always feel guilty for eating what I do. If there's 2 cans of tuna left I avoid eating it, if there's only half a gallon of milk left well then im not gonna make any cereal or pancakes, And if there is ever fresh greens/fruit/veggies in the house i especialy avoid eating them, as they are a rare item and ussaly used for dinner, or because my moms docter told her to eat more potassium.
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Is there an eating disorder where its, I dont deserve to eat, especially if its good for you?
I find myself eating maybe once a day, and i always feel guilty for eating what I do. If there's 2 cans of tuna left I avoid eating it, if there's only half a gallon of milk left well then im not gonna make any cereal or pancakes, And if there is ever fresh greens/fruit/veggies in the house i especialy avoid eating them, as they are a rare item and ussaly used for dinner, or because my moms docter told her to eat more potassium.
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Dawn
If you or someone you know has type 1 diabetes and is struggling with food or body image or burn out, Diabulimia Helpline is a non-profit organization dedicated to helping people with diabetes and mental health issues, especially eating disorders. The have a lot of resources including online support groups, a family & friends liaison, a database of providers in the U. S. and an international conference in February in San Diego. You can reach them at www. DBH. org, 425-985-3635, infoDBH. org.
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If you or someone you know has type 1 diabetes and is struggling with food or body image or burn out, Diabulimia Helpline is a non-profit organization dedicated to helping people with diabetes and mental health issues, especially eating disorders. The have a lot of resources including online support groups, a family & friends liaison, a database of providers in the U. S. and an international conference in February in San Diego. You can reach them at www. DBH. org, 425-985-3635, infoDBH. org.
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Anne
I struggled with diabulimia from the age of 14-21 years old. I developed severe neuropathy in my feet which caused extreme pain (managed now. Ive dealt with many addictions and this has been the hardest to beat, but recovery is possible! It took physical pain at first for me to truly start the inner work to heal. I am 25 now and grateful to have been able to live this long, and I actually want to live today. If youre struggling with an ED of any type or addiction- recovery is possible!
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I struggled with diabulimia from the age of 14-21 years old. I developed severe neuropathy in my feet which caused extreme pain (managed now. Ive dealt with many addictions and this has been the hardest to beat, but recovery is possible! It took physical pain at first for me to truly start the inner work to heal. I am 25 now and grateful to have been able to live this long, and I actually want to live today. If youre struggling with an ED of any type or addiction- recovery is possible!
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hoLLy
It needs to be mentioned that the lack of affordability of insulin in the US and unregulated insulin prices over the past decade make living with and recovering from diabulimia much more difficult. It leaves people wondering well I cant get enough insulin to have a good A1c anyway, sooo I might as well be thin since Ill have complications regardless. The incidence of diabulimia-related deaths will be 4 times higher in the next decade as a result.
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It needs to be mentioned that the lack of affordability of insulin in the US and unregulated insulin prices over the past decade make living with and recovering from diabulimia much more difficult. It leaves people wondering well I cant get enough insulin to have a good A1c anyway, sooo I might as well be thin since Ill have complications regardless. The incidence of diabulimia-related deaths will be 4 times higher in the next decade as a result.
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Sharon
when i went to the ER for dka (this was years ago btw, i'm much better now) i told the doctor why i wasn't taking my insulin and he said that was being irrational, killing myself, and overall being not smart. it's crazy to me how people can pick up on anorexia and help them but when i told the er doctor i was struggling and needed help he shrugged me off because he never heard of such an eating disorder
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when i went to the ER for dka (this was years ago btw, i'm much better now) i told the doctor why i wasn't taking my insulin and he said that was being irrational, killing myself, and overall being not smart. it's crazy to me how people can pick up on anorexia and help them but when i told the er doctor i was struggling and needed help he shrugged me off because he never heard of such an eating disorder
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Alice
Thank you for making what you do! I'm struggling with this disease, combinated with orthorexia and overeating. And diabulimia doesn't even have a name in my language (French! I have help and today, in hospital, every trimester. And I'm not the only one according to my doctor (thanks to her. I'm feeling better now. but it's still hard to me to accept my gain of weight.
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Thank you for making what you do! I'm struggling with this disease, combinated with orthorexia and overeating. And diabulimia doesn't even have a name in my language (French! I have help and today, in hospital, every trimester. And I'm not the only one according to my doctor (thanks to her. I'm feeling better now. but it's still hard to me to accept my gain of weight.
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Jungjiaer
I have diabulimia, and when I told the psych, they looked at me like I was delusional. Being that Ive gone to the ICU 7 times Im pretty much playing with fire with the risk being my own life. Now Im on the very long and uncertain road to self help recovery. Ive made some progress but I wish a team like the one mentioned in the video existed for me.
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I have diabulimia, and when I told the psych, they looked at me like I was delusional. Being that Ive gone to the ICU 7 times Im pretty much playing with fire with the risk being my own life. Now Im on the very long and uncertain road to self help recovery. Ive made some progress but I wish a team like the one mentioned in the video existed for me.
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reemxd
currently sobbing over this cuz i clearly have this. im not diagnosed but i have all the symptoms and ive been in the hospital many times during 2020 and this year too. like you said in the video this is not recognized enough. ive never knew about this but ive definitely had it (not diagnosed. how do i get help? im too scared to ask my parents: (
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currently sobbing over this cuz i clearly have this. im not diagnosed but i have all the symptoms and ive been in the hospital many times during 2020 and this year too. like you said in the video this is not recognized enough. ive never knew about this but ive definitely had it (not diagnosed. how do i get help? im too scared to ask my parents: (
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ToastNotifier
I have type ii, but I probably have this, as I get sh from the doctors about gaining weight but I take my insulin and I GAIN weight instead of losing it, so I don't take my insulin and LOSE weight, but get sh from the docs for a high A1c. I will talk to my docs about this possibility. Didn't even know what I was doing had a name.
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I have type ii, but I probably have this, as I get sh from the doctors about gaining weight but I take my insulin and I GAIN weight instead of losing it, so I don't take my insulin and LOSE weight, but get sh from the docs for a high A1c. I will talk to my docs about this possibility. Didn't even know what I was doing had a name.
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niki
I struggled with this throughout middle and high school (now 27, dealing with neuropathy and gastroperisis from it) and my dentist yesterday (kindly) asked me if I suffered from bulimia and I had to explain it was diabulimia I wish so badly this was more known and properly classified as an eating disorder.
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I struggled with this throughout middle and high school (now 27, dealing with neuropathy and gastroperisis from it) and my dentist yesterday (kindly) asked me if I suffered from bulimia and I had to explain it was diabulimia I wish so badly this was more known and properly classified as an eating disorder.
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Kelty
Im scared. I feel like everything in my life is going downhill and I just want to give up. But Im even more scared about my friend. He wants to kill himself and I feel so useless because everything I try doesnt seem to help. If hes gone then I dont know what Ill do anymore. I dont know what to do
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Im scared. I feel like everything in my life is going downhill and I just want to give up. But Im even more scared about my friend. He wants to kill himself and I feel so useless because everything I try doesnt seem to help. If hes gone then I dont know what Ill do anymore. I dont know what to do
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emma
as some one with pre type two diabetes I have consistently abused my metformin to the point of vomiting and diarrhea. (without binging) would this be considered diabulimia or just purging disorder? I have not been diagnosed with anything because I have not reached out about it to anyone
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as some one with pre type two diabetes I have consistently abused my metformin to the point of vomiting and diarrhea. (without binging) would this be considered diabulimia or just purging disorder? I have not been diagnosed with anything because I have not reached out about it to anyone
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Emily
THANK YOU SO MUCH FOR ADDING THE DIAGNOSING DISCLAIMER.
never diagnose yourself or others. These videos are meant to be INFORMATIONAL.
Keep up the good work Psych! I love learning about psychology and your videos make it easy and fun!
Also the animation is great
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THANK YOU SO MUCH FOR ADDING THE DIAGNOSING DISCLAIMER.
never diagnose yourself or others. These videos are meant to be INFORMATIONAL.
Keep up the good work Psych! I love learning about psychology and your videos make it easy and fun!
Also the animation is great
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Cyb3rspac3
Just because I'm interested: If you guys are not licensed psychologists, who are you actually / Where do you get your information from? Do you work together with any psychologists? How can I make sure that what is said in your videos is actually trustworthy?
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Just because I'm interested: If you guys are not licensed psychologists, who are you actually / Where do you get your information from? Do you work together with any psychologists? How can I make sure that what is said in your videos is actually trustworthy?
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PurpleChilly
I didn't even know what I've been doing to myself/going through for years had a name.
People keep chalking it down to im just too lazy to take insulin
I dont eat all day and I neglect my diabetes everyday. I'm Admitting it I have a serious problem
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I didn't even know what I've been doing to myself/going through for years had a name.
People keep chalking it down to im just too lazy to take insulin
I dont eat all day and I neglect my diabetes everyday. I'm Admitting it I have a serious problem
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nova
Is there anyone who also eat a lot and for the whole week they skip meals and most likely eat 1 meal per day because you wanna lose weight, then you eat a lot again and everything repeats again. I use diet pills, they seem to help a little.
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Is there anyone who also eat a lot and for the whole week they skip meals and most likely eat 1 meal per day because you wanna lose weight, then you eat a lot again and everything repeats again. I use diet pills, they seem to help a little.
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Regan
i was diabulipic as a teen but didn't think it was a big deal bc no one talked about it. I had no idea it was a thing let alone an eating disorder. I really wish it was taught as a real disorder, i could have used the help: (
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i was diabulipic as a teen but didn't think it was a big deal bc no one talked about it. I had no idea it was a thing let alone an eating disorder. I really wish it was taught as a real disorder, i could have used the help: (
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Bro
Why do I keep on thinking about that one line from Melanie Martinez Orange Juice where she sings about this one girl who has this condition and the scene in the movie K-12 that shows her throwing up in the school bathroom!
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Why do I keep on thinking about that one line from Melanie Martinez Orange Juice where she sings about this one girl who has this condition and the scene in the movie K-12 that shows her throwing up in the school bathroom!
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Maggie
Okay, now I'm worrying about my friend who has severe diabetes. I don't think she's the type to get an eating disorder, but still- now I know how to look for signs of her or someone else if I think they have this.
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Okay, now I'm worrying about my friend who has severe diabetes. I don't think she's the type to get an eating disorder, but still- now I know how to look for signs of her or someone else if I think they have this.
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jrg305
Thanks for this video. It is odd there are only 4 official eating disorder diagnoses. So what does the diagnosis code eating disorder, unspecified mean? Is it just a code for insurance and not a diagnosis?
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Thanks for this video. It is odd there are only 4 official eating disorder diagnoses. So what does the diagnosis code eating disorder, unspecified mean? Is it just a code for insurance and not a diagnosis?
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Carrie
I no had a doctor suggest to me that I should not get proper treatment because my body was not making insulin, but I was loosing weight and not in a diabetic coma (despite 600+ glucose for about 6 months)
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I no had a doctor suggest to me that I should not get proper treatment because my body was not making insulin, but I was loosing weight and not in a diabetic coma (despite 600+ glucose for about 6 months)
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